No announcement yet.

Early signs?

  • Time
  • Show
Clear All
new posts

  • Early signs?

    When I think about before this all started I remember lots of the time my bladder and urethra being "different" but never really giving it much thought because that was my normal and it wasnt affecting me really. When I say that I mean I would sometimes have this pressure feeling that would just "linger" and make me feel like I had to pee... for example after the movies or after sitting in class for awhile.. (I went to the movies last night and had the SAME feeling that I always got, and was like "Oh I remember this"... I figure it is because I am feeling "ok" right now and so the base level I always go back to is that... does that make sense??)

    I knew I didnt have too pee but it was easy to ignore back then, and lots of the time it would just eventually go away. Some sitting positions made it better, but a hot shower would always take it away.

    Going pee or holding it was never the issue as I didnt have the frequency, but I did notice that sometimes I was having this pinching feeling in my urethra after I went which never hurt, but just felt strange. I also had trouble sometimes initiating the urine stream and had a burning/ tingling feeling JUST before I would actually pee... (like my muscles in my bladder finally letting go so I could pee). When my colon was always full I never ever felt my bladder, and then when I emptyed it, I would always feel raw in my bladder and colon for about a half hour afterwards....(it is the same now but just more severe in that it bugs my bladder more)... When I would sit for too long I would start to feel swollen, but just figured it was the way I was sitting. A few summers ago I had this crazy bout of vaginal itching! It lasted for 2 WEEKS, no infection nothing just severe itching.. All of a sudden it just went away. I often wonder (now) if that was at all related as well.

    Never thought ANYTHING of it (all these signs) and seriously became used to it because it was just whatever, me....

    That began about 4 years ago. I still wonder if it was actually the pill that started it (I was on it for 10 years) and the antibiotics that pushed it over the edge. I do think that something was already wrong when I took all those antibiotics that clearly "broke the camals back"....but I cant help but beat myself up about it because if I was more careful and not took so many antibiotics then maby this wouldnt have happend? Or maby it still WOULD have happend sometime else? I don't know.. As long as I can remember to I have had this "potatoe" smelling discharge too (sorry TMI) and I am now convinced that it MUST be related to yeast somehow that was inflitrating my body already before the antibiotics took over...

    Anyone else have these subtle sighns?

    28 yrs old,

    I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

    What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

    Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!

    Me in my graduation gown!

  • #2
    I had a lot of subtle signs for years, but like you I just considered it 'my normal.' I never had frequent uti's at all but did have frequent antibiotic use for dental infections the year or so before my symptoms got worse. I've often wondered if this may have been the last straw for my already sensitive bladder. Years ago I was told I had a sensitive bladder and probably should have been told by drs. to change my diet, but at that time all they ever said was take some pyridium and don't worry about it!


    • #3
      I also had a sense of my bladder for a long time before my diagnosis. Which I find abnormal as we don't think about our liver and other things unless they are acting up. Yet I believe there was nothing I could have done to ward off full blown IC. I hope I am wrong. Maybe research will help those who have slight symptoms and avoid total IC. I Pray so. Hugs, Ziggy


      • #4
        Mine came on within the weeks following an abdominal hysterectomy --- I had an incision from navel to pubic bone. I suspect the IC was hiding until the trauma of the surgery brought it out.

        Stay safe

        Elmiron Eye Disease Information Center -
        Elmiron Eye Disease Fact Sheet (Downloadable) -

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help:


        Diet list:

        AUA Guidelines:

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool


        • #5
          Urethal burning

          I see that Vit E has been used for this condition. How do you use it and how often. Is there anything else that is used? Hugs to all of you who take time to answer our questions.


          • #6
            Sharyn- I use pure vitamin E oil and it does seem to help the burning feeling in my skin and urethra. I use it when I start feeling any irritation.