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  • #1

    Pain during sex

    Hi does anybody only suffer from pain during sex & not all the time? My main symptom is frequency & urethral discomfort. When i have intercourse I feel a sharp pain in my right side ( maybe where my ovary would be?). If it was part of my ic im thinking I would have pain all the time. Have convinced myself it's endometriosis... I really want a baby in next couple of years- hope I am able to conceive...

    Thanks- Sarah

    Also- Ive had a scan of my bladder & kidneys- would that show cysts or would I need another test for that??x
    Tags: None
  • #2
    Initially, I also only had pain during sex, but at the time, I didn't realize it was IC related. It would hurt all over really - I can't exactly describe where. Now I have slight discomfort all the time, but at least I know what it's from. Not sure about the other questions, but I did have pain only during sex at one time.

    Comment

    • #3
      I have pain on my right side as well, during and after intercourse, I just had out pt surgery Thursday to check for endo, none was found but my gyno did remove some scar tissue from that area from previous surgeries so I'm hoping since it's gone maybe the pain will be too.
      Last edited by greeneyes; 07-09-2011, 03:11 PM.
      IC diagnosis 3 weeks ago.
      Vesicare 10 mg once daily
      IBS and Gerd-Zegerid
      IC diet
      Elmiron 100 mg three daily
      Hydroxyzine 25 mg at night
      Amitriptyline 10mg at night
      Diovan 60/12.5 daily
      Topral 50 mg daily
      Zoloft 100 mg at night
      Klonopin .5 twice daily

      Comment

      • #4
        yes, i have pain during sex , its terrible, during and after for a few days..
        my husband doesn't even ask for sex from me because he knows how bad it hurts... I wish I didn't have IC..

        Comment

        • #5
          Yes, for me it is more of an uncomfortable feeling. My bladder really doesn't tolerate being poked very well -- I know that just from regular examinations. I can't answer your other questions, but I can tell you that I think going very slowly (i.e. -- a lot of foreplay) and lubrication go a long way to making me more comfortable and able to enjoy sex again. (My husband and I hadn't been able to do it for a looooong time until recently.)
          ----------------------
          -Amanda
          34 years old, bladder symptoms all my life
          diagnosed with PFD and VV October 2009; IC May 2010

          Current meds:
          Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
          Other past treatments:
          IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
          Tried and didn't work:
          Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture

          Comment

          • #6
            I am also finding that these bladder issues really interefere with a healthy sex life. For myself, it isnt so much pain as it is pressure, or feeling like I have to pee. My mind is always thinking about " oh this is taking too long, i need to pee soon" ..and my boyfriend can tell that it is uncomfortable .
            I find what helps is emptying the bladder before, and trying positions that are most comfortable for you. men are really not THAT picky!!

            I also wonder if some lubricants or condoms promote flare ups. any thoughts?
            28 years old
            UTI's for 10 years
            very bad urgency and frequency started Aug '10 Severe pressure, pain and burning in bladder, lower back, and thighs since May '11.
            endometriosis removed (Sept 15th)
            chronic pelvic pain since then
            I currently take: elavil 25mg mg at night
            clonazepam .25 mg daily for anxiety and nerve calming
            probiotics
            baking soda occasionally
            Marshmallow root tea/capsules occasionally
            other: heating pad/ice packs daily
            deep breathing
            massage
            pelvic phsyio since jan '12




            testing :cystoscopy ( urlogist said I have a small bladder but nothing abnormal)
            many..MANY urine tests that all determine I do not have an infection.

            ultrasounds for pre and post void (nothing abnormal)

            things I would like to try :MSM, silver, medicinal mushrooms

            Comment

            • #7
              Originally posted by featherbullet View Post

              I also wonder if some lubricants or condoms promote flare ups. any thoughts?
              Yes, they do in some. I only use Astroglide that is glycerin and paraben free. Slippery Stuff is ok though too. In my experience, definitely stay away from KY (even the so-called "sensitive") kind, especially if you also have vulva or vaginal issues. I use non-lubricated condoms with the Astroglide. I'm sure others can tell you what works best for them since even the friction of any kind of condom can irritate some women.
              ----------------------
              -Amanda
              34 years old, bladder symptoms all my life
              diagnosed with PFD and VV October 2009; IC May 2010

              Current meds:
              Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
              Other past treatments:
              IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
              Tried and didn't work:
              Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture

              Comment

              • #8
                Hi there, as long as I am "in the mood" and I have already had the big "o" I do ok, I think b/c the endorphine are kicked in. There isn't much burning or discomfort. If I don't have the big "o" I hurts a lot and I am basically waiting for it to be done. My husband is also very supportive b/c he will do other stuff instead of just sex. Sometimes I think he likes it just as much. Condoms do not help against a flair up and we use the lubricated kind.
                I wish there was an easy way to fix this!! Sex should feel good for everyone
                -Pammylynn Rose
                Wishing everyone a pain free bladder day!

                Painful symptoms start in May 2011
                Diagnosed with IC in Aug 2011

                MEDICATIONS
                Elmiron
                Axert (only for rare migraines)
                Strict IC diet
                Gluten/dairy/egg free diet

                Comment

                • #9
                  I have pain during sex, about half of the time. Pain at the entrence to my vagina caused by the vv. This is burning. I also sometimes get a poking feeling in my bladder.

                  Warm baths prior to sex, lots of forplay, 'yes' lubricant, latex free non lubricated condoms and the right position go a long way.

                  PT helped alot!!!

                  Claire
                  TMJ Dysfunction 2009
                  Vulvodynia and/or PFD 2010
                  IC, based on symptoms alone 2010.
                  PCOS March 2012

                  8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

                  Currently using: IC Diet...pain meds as needed
                  Medications / treatment tried and discounted:
                  Fluconazole 150mg 1 per week for 6 months (yeast)
                  Endep 25mg - 4months
                  Lyrica 75mg - 2 months - FLARE
                  Oxytrol patch - I think this caused retention.
                  Countless creams, lotions and potions.
                  Cystoprotek - no change in symptoms
                  PT - for 1 year
                  Various herbs and supplements

                  Comment

                  • #10
                    I had pain during sex for years, almost my whole life. Then it increased to pain during and for about 5 days after. Thought I was having UTIs for years. Then it stopped for about 2 years, just completely stopped. Then the IC started and now I have both! The PT is helping alot

                    Comment

                    • #11
                      I also have terrible pain during intercourse. My doctor thinks I may have vulvodynia as well as IC. VV is when your vagina burns or hurts with penetration. I have terrible right side pain during sex as well as pain for a couple of days after sex. I also dont like having orgasm's because they also cause me to have pain afterwards. My husband and I are working through the sex issues but it is very hard on our relationship. I know he's there for me but it's very hard to be married and not wanting to be intimate. We have to use special positions because regular missionary hits my bladder and hurts incredibly bad. I use lydocaine gel for intercourse so my urethra doesn't burn and penetration doesn't hurt. I also take oxycodone for after sex but I'm begging to think I should take it before sex as well. Does anybody have a successful sex life with IC?

                      Jessica

                      Take: elmiron 2twice a day
                      Cymbalta once a day
                      Prosed ds as needed
                      Lydocaine gel for sex
                      Tramadol as needed
                      Oxycodone as needed

                      Diagnosed with severe IC April 2011

                      Suffered for 8 years without a diagnoses

                      Comment

                      • #12
                        I also have pelvic pain so I take ibuprofin before intercourse. I also just tried combining tea tree oil and coconut oil and putting it on my urethra helps a lot. I also put it on in the morning then a couple more times during the day if needed for burning.

                        Comment

                        • #13
                          Please be cautious with ibuprofen --- it's an irritant to many IC bladders (mine included!).

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                           [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment

                          • #14
                            THanks Donna. I didn't know ibuprofin could irritate the bladder. How about tylenol?

                            Comment

                            • #15
                              Most of us can take tylenol with no problem --- just be sure to stay within the guidelines of no more than 3000 mg in a day.

                              Donna
                              Stay safe


                              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                              Have you checked the ICN Shop?
                              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                              Patient Help: http://www.ic-network.com/patientlinks.html

                              Sub-types https://www.ic-network.com/five-pote...markably-well/

                              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                               [3MG]

                              Anyone who says something is foolproof hasn't met a determined fool

                              Comment

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