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Is this is a symptom of IC? Sometimes during flare periods when my urgency/frequency is especially bad, my urethra is visibly inflamed...the meatus (external part of the urethra/urethral opening) gets very visibly swollen and painful. What are some ways of lessening this symptom?
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28 y/o female
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Bladder Symptoms:
Severe urinary urgency/frequency with no bladder pain; severe urethral spasms (3x 'normal' pressure). Symptoms began in 2009.
Failed medications:
Ditropan XL (severe retention); Hyoscyamine (made bladder spasms worse); Marshmallow Root; D-mannose; Pristiq; Cymbalta; Lyrica; Nortryptaline; Prelief; Enablex; Baclofen; Ativan; Myrbetriq, Valium Vaginal Suppositories; Amitryptaline; Hydroxyzine
Failed treatments:
IC Diet (diet does not trigger or improve symptoms); Hydrodistentions (x2); Bladder instillations (made frequency worse); Heating pad (makes frequency worse); Surgical removal of adhesions on bladder -
msm gel
You can find posts on this forum about this jacob's lab msm gel. Some people have luck with that. I tried some manuka honey one time and that felt soothing. It kills gerns, but I don't know if it could agrevate yeast by the sugar content or whether it kills that too.I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many. -
The bladder and urethra are so closely tied together that it's not surprising that when we have bladder discomfort it can extend to the urethra.
DonnaStay safe
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Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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Sub-types https://www.ic-network.com/five-pote...markably-well/
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AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
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I've been having trouble with that too. Even the outside area looks red and feels really dry/chapped (like chapped lips). I've been putting hypoallergenic baby oil with aloe and vitamin E all over down there several times a day and it seems to help with the discomfort. I know some people can't tolerate certain products down there, especially if they have vulvodynia.. but I wanted to share my advice in case it does help someone. I actually got the idea for the oil from someone else on here.. in the urethral problems forum.Comment
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