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  • How many times do you go a day?

    I am just curious how many times people with IC who are being treated go to the bathroom a day compared to when they were first diagnosed?
    I haven't been officially diagnosed (yet)but the number of times a day I would have to use bathroom before is anywhere from 20-60 (I wish I was exaggerating with that last number).
    Now that I am on IC diet and Elmiron I go maybe 8-15 times per day. I think this is a VAST improvement from above.
    I wonder what a normal number is?
    How about you?
    -Pammylynn Rose
    Wishing everyone a pain free bladder day!


    Painful symptoms start in May 2011
    Diagnosed with IC in Aug 2011

    MEDICATIONS
    Elmiron
    Axert (only for rare migraines)
    Strict IC diet
    Gluten/dairy/egg free diet



  • #2
    I will state I don't even know how many times that I have peed so far today. Why? I stopped keeping count because it was too frustrating to me. I know I was diagnosed back in 1997, but I still pee more than 20 times a day. OK. I don't know how many times yesterday, but I can figure 20 times in a day would not be all so bad compared to 60. (which I have been there) If you don't urinate more than 15 times in a day, then you definitely improved by now. I am not saying I have not improved at all. I did notice you don't consider yourself to be officially diagnosed yet.(hmmm) I will just state I can see why the doctor did suspect IC by now. None of us enjoy having IC, or any chronic illness, but it is still good to be properly diagnosed. Yep! Oh! I happen to be a male, by the way. IC does suck for us as well.

    Comment


    • #3
      I haven't been diagnosed b/c the person I saw was a nurse practioner who was almost positive I have IC. She said it needs to be confirmed by a urologist. I can't get it until Aug 18,,, frustrating!! Luckily I found this site, thank the Lord, and I found out about diet. The nurse practioner is the one who prescribed my Elmiron, so she must be pretty sure..
      -Pammylynn Rose
      Wishing everyone a pain free bladder day!


      Painful symptoms start in May 2011
      Diagnosed with IC in Aug 2011

      MEDICATIONS
      Elmiron
      Axert (only for rare migraines)
      Strict IC diet
      Gluten/dairy/egg free diet


      Comment


      • #4
        At least 25-30 times....on a good day. Sometimes it is as much as 10 times in the 30 mins before I go to bed.

        Comment


        • #5
          I probably went every 15 mins or so, now I can ussally make an hour. Last time I did a voiding diary I still adverage 20 times a day, more if I am stressed or flaring.

          MG
          My are with you all. May you all find a way to peace and joy in your lives.

          Comment


          • #6
            I go anywhere from six to twelve times in a day.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              I am still 'new' to this but:

              With the medications and/or diet for 2 weeks I go once every 2 hours during the day. At night I get up about 2-3 times. However with my period on the way I am going every hour or so. SUCH an improvement over my week before I got meds. Back then it was once every 10-15 minutes and I only got sleep for an hour or so when I would pass out.

              I think I have always gone more than 'normal' people when I look back. Probably once every 3 hours. If I even had the slightest stress/worry it was every hour. I would have to go 4 times before I went to sleep and was getting up 2-4 times a night. Even as a child I remember having a phobia when I didn't know if there would be a bathroom or if I would be allowed to use it (in school).

              Comment


              • #8
                I was just diagnosed in February and I go any where from 8 to 12 times a day and also more when Flaring. But I wanted to add that it all depends on how much water each of us as individuals drink, I for example drink 2 liters a day in water and when Flaring even more to try and flush things out. How much water do you others drink averagely on a day to day basis?

                Comment


                • #9
                  I drink 1.5 litres of water and make the rest up with milk/hot water and honey/herbal tea (total 2litres) and go between 6-9 times between when I get up 6.30 and when I go to bed 10pm. More if im flaring but only like 3 times more.

                  On the weekend I drink less water (about a litre) and go maybe 5 times a day.

                  Claire
                  TMJ Dysfunction 2009
                  Vulvodynia and/or PFD 2010
                  IC, based on symptoms alone 2010.
                  PCOS March 2012

                  8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

                  Currently using: IC Diet...pain meds as needed
                  Medications / treatment tried and discounted:
                  Fluconazole 150mg 1 per week for 6 months (yeast)
                  Endep 25mg - 4months
                  Lyrica 75mg - 2 months - FLARE
                  Oxytrol patch - I think this caused retention.
                  Countless creams, lotions and potions.
                  Cystoprotek - no change in symptoms
                  PT - for 1 year
                  Various herbs and supplements

                  Comment


                  • #10
                    Water is a struggle for me. I do drink more than I did before IC (since it's the only thing I can drink right now.) If I drink the recommended quantity I get physically ill. When I have flared in the past drinking more made it worse. I am wondering if that's because I have frequency IC and rarely any pain. I spoke with my Uro about it and he told me not to force it. So I only drink 2 bottles worth a day. I know water can be an ICrs saving grace but for me more than usual for me prolongs my flare. Since I only have had noticeable IC for a month perhaps as I progress water will become my friend and not my enemy.

                    Comment


                    • #11
                      If I don't drink enough, my urine becomes concentrated and frequency increases and it's painful.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment


                      • #12
                        On a good day, I usually go 10-12 times during the day, and once at night. On a flare day, it would be at least double those numbers.

                        I'm very thankful for my "normal" days, though I know they're far from normal for people without IC with all the urgency I experience.
                        ----------------------
                        -Amanda
                        34 years old, bladder symptoms all my life
                        diagnosed with PFD and VV October 2009; IC May 2010

                        Current meds:
                        Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
                        Other past treatments:
                        IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
                        Tried and didn't work:
                        Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture

                        Comment


                        • #13
                          I drink lots and lots of water. I do much better keeping my urine dilute.

                          I know this causes me to pee more often but at least I can pee, I always feel as if I have to go anyways, so if I have urine in there at least I can go and it hurts less and is a bit less frustrating for me.

                          I have a big water bottled labeled just for me, I take it with me everywhere I go even room from room and I sip on it all day, I find this is better for me than a lot at once my bladder doesn't like that.

                          Over the course of a day you can take In a lot of fluid this way, when it is hot the importance of this goes up.

                          We all need a certain amount of water to function but if what you are drinking you are doing fine with then that is the right amount for you, it just depends on how much you sweet, if you are active in the heat etc.

                          Most Dr's to tell you to drink lots to keep your system flushed out, if you are not having increase pain from it being to concentrated, or UTI's from urine being in your bladder too long than you are probably drinking what is right for you.

                          I don't know about the type of tea you are drinking most teas and coffee if you go there are diuretics, so is alcohol so if you are going to indulge in any of these you should drink a glass of water for each glass of the other.

                          Hope this helps you trial and error like always.

                          MG
                          My are with you all. May you all find a way to peace and joy in your lives.

                          Comment


                          • #14
                            As statesboro mentioned, I no longer track how much I go in a day. It was crazy-making for me. I had a chart. I kept track of ounces. It was not a good time to be in my brain.

                            Since I've been diagnosed, I haven't noticed a decrease in my frequency. That said, I went probably only a few times more than "normal" and still do. I probably go between 4-9 times a day, depending on a lot of factors. I do not go at night. I generally go anywhere from every 30 minutes (when I'm in a flare, which is rare) to every 6 hours. Yeah, that's a pretty big spread. I'd say I average at this point every 3 or 4 hours. I drink a lot of milk and water. Keeping my urine diluted actually helps me go less. I probably take in about 100 oz of liquid a day, the majority of that being water. I used to pee anywhere from 8-14 oz at a time, unless I was flaring, then it would be about 4. Usually 16-18 in the mornings. Don't know about now, and that's probably for the best.
                            Symtoms started July 2010.
                            Severe pelvic floor pain only.

                            2 time PT graduate!
                            In medical remission since August 2011; able to eat and drink anything I want currently.

                            IC meds:
                            200 mg Elmiron in the morning
                            100 mg Elmiron @ night
                            Macrobid after intercourse

                            03/11 07/11 01/12
                            If at first you don't succeed: 07/26/2013!

                            Comment


                            • #15
                              I usually go about 6-8 times aday. I Know yesterday at work I think I went once in the whole 8 hours (and that's when I realized that I haven't went except in the morning. At night I usually get up once.

                              Comment

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