Spasms

[songbird7]

Anyone else get spasms in the pelvic area? I've had a complete hysteromy years ago. Absolutely no bladder infection. This is a new symptom for me. I recently had dental surgery which aggrevated IC.

[earthlady]

I had a lot of pelvic floor spasms at one time and sometimes felt like my bladder itself was spasming. Really painful thing to get- at least mine were. They've resolved now though.

[ICNDonna]

Bladder spasms are my primary symptom. I take Levsin when they hit.


Donna

[tpronti]

Hard/tight feeling?

I think this is a spasm? When I bend too much then I start getting this feeling?

[Toto]

I get a lot of spasms. I can actually feel my bladder fluttering and I pee every 5 to 20 minutes. It is sometimes very painful. I often don't know the cause but do know hormones and stress affect my bladder very seriously and contribute to spasms.

Donna, this is the first I've heard of the med Levsin. I'd love to have an anti-spasm drug on-hand for emergencies. Those spasms have caused me YEARS of grief. Do you get tired from it? How quick does it work?

[ICNDonna]

Levsin is a brand name for hyoscyamine --- it can take a day or so to be effective.

Donna

[Redducky1]

Why wouldn't u just use the medication Pyridium for spasms? It works within an hour or as soon as the bladder refills. It's sort of an antisthetic for the bladder. The only real down side is that it turns your pee orange and stains everything it comes into contact with.

[NewtoIC2012]

I am on hyoscyamine, I take the pyridium and I also take oxy something or other and all three are supposed to help with bladder spasms but not only am I having bladder spasms but the nerves and muscles that control the bladder which also happen to be the same ones that work your colon are spasming as well. I was taking flexeril recently for spams in my back when i pulled it and I noticed a big difference in my bladder spams so I'm trying to get the Dr. to give me some more of it. I've been on the Hyoscyamine for nearly two years now for my IBS, because I have chronic diarrhea my colon spasms so bad. A Lot of the time the Hyoscyamine doesn't work for the colon for me let alone the bladder spasms. I still have to take Imodium quite often.

[Redducky1]

I also have had ulcerative colitis. Thank God, it is in remission right now! I used to take Asacol for it. The oxy med that you mentioned, can also be called Ditropan. It strongly cautions against use in patients with bowel disorders. If I were you, I think I might consult with the doc on the risks vs benefits of this med in your regimine as it may be making your bowel issues worse and not really helping your bladder. Or maybe you can find another drug to use for your bladder issues that does the same thing in place of the Oxy/Ditropan? That is just my suggestion. I'm trying to help. I have had spasms in my bladder since I was 14 yrs old. (; husf has nt

[Redducky1]

My last message cut off. I was saying that I've had bladder spasms since I was 14yrs old. I was told I have IC and given Pyridium. Sometime in the last 10yrs or so my urologist has decided that he's not so sure I have IC after all. I don't know what that means except that I still have the same symptoms I've always had & even more often recently. I've decided to go to a different urologist to see what he has to say. All of my urinalysis tests always come back positive for bacteria, they always have, whether I have an infection or NOT. The docs say its because of my IC. I have a lot of questions for this new urologist cuz from what I've read about IC, it's always in the ABSENCE of any sort of infection. Also, I had a PCP tell me that the reason my bladder was stinging was not because of spasms but because of herpes in the bladder. I never heard of anything like that before either! One thing I never experience is the pelvic/abdominal pain I read that others experience. I did have endometriosis pretty bad when I was younger. I had abdominal pain then. I've since had a uterine ablation which seems to have relieved the endometriosis. I also have fibromyalgia, chronic fatigue, migraines, and rheumatoid arthritis, which all go along with IC.

[jen74]

Interesting that you say your cultures always show bacteria? Did your doctor treat you with antibiotics? If so did they help you? My main issue is severe pain in my bladder. It is in the base of my bladder. It feels like I got like a third degree burn in there, it is awful. Just constant burning.

I was on an antibiotic keflex low dose for over 4 years and it is the only thing that helped my bladder. But now it is not working . I am back in pain. I think my IC is all bacteria related, but my cultures do not always show bacteria, yet my pain usually responds to certain antibiotics. really odd...

My last message cut off. I was saying that I've had bladder spasms since I was 14yrs old. I was told I have IC and given Pyridium. Sometime in the last 10yrs or so my urologist has decided that he's not so sure I have IC after all. I don't know what that means except that I still have the same symptoms I've always had & even more often recently. I've decided to go to a different urologist to see what he has to say. All of my urinalysis tests always come back positive for bacteria, they always have, whether I have an infection or NOT. The docs say its because of my IC. I have a lot of questions for this new urologist cuz from what I've read about IC, it's always in the ABSENCE of any sort of infection. Also, I had a PCP tell me that the reason my bladder was stinging was not because of spasms but because of herpes in the bladder. I never heard of anything like that before either! One thing I never experience is the pelvic/abdominal pain I read that others experience. I did have endometriosis pretty bad when I was younger. I had abdominal pain then. I've since had a uterine ablation which seems to have relieved the endometriosis. I also have fibromyalgia, chronic fatigue, migraines, and rheumatoid arthritis, which all go along with IC.

[Redducky1]

Yes. That is the same type of pain I have. It is a constant burning like it is on fire. It is very very painful. The urologist told me that it was because my bladder was spasming but it is the same pain I get when I have an infection. Yes, I have been given antibiotics. I have a script of Keflex or Cephalexin for prophalactic use after intercourse. It is supposed to keep bacteria from entering my urethra and infecting my bladder. The problem is that I have the burning even when I am not being sexually active at all. In that case, I'll usually self-treat with Keflex for a few days & the Pyridium till the burning goes away - IF it goes away. Lately it has been burning for the last month consistently!

[jen74]

Ughh, That sucks, I know. I am debating going to a pain specialist, but not sure who to go see. I saw one once and all he wanted to do was spinal injections which I was NOT comfortable with at all. Anything that involves my spinal area scares me.

This pain is the worst. Does the pyridium work for that pain you have? I tried pyridium awhile back and did not remember it helping a whole lot and thought it made my bladder feel odd. What else have you taken so far to treat the pain, and what has worked for you?

Yes. That is the same type of pain I have. It is a constant burning like it is on fire. It is very very painful. The urologist told me that it was because my bladder was spasming but it is the same pain I get when I have an infection. Yes, I have been given antibiotics. I have a script of Keflex or Cephalexin for prophalactic use after intercourse. It is supposed to keep bacteria from entering my urethra and infecting my bladder. The problem is that I have the burning even when I am not being sexually active at all. In that case, I'll usually self-treat with Keflex for a few days & the Pyridium till the burning goes away - IF it goes away. Lately it has been burning for the last month consistently!

[Redducky1]

Yes, the Pyridium works for me. But the problem is that it wears off & you're not really supposed to use it for more than 2- 3 days in a row. So Once I'm in pain, I have to take it then wait nearly an hour for my bladder to fill up completely again (while I'm in extreme pain & guzzling water like an elephant) so that I can pee it back out again so I can get relief. It seems to work in a way that it takes fluid to activate it & then after I begin to pee orange I'm beginning to get relief. That relief lasts for about 24 hrs., sometimes less. I do get really good relief though when I get it so I can't complain. Some people say the meds don't work for them. I can't imagine having this burning pain & no way to get rid of it!! I would literally go CRAZY!! Its like I'm on FIRE & I can't concentrate or do anything at all until I get relief. Its horrible!!

[bigbabybaby19]

My fiance has these same symptoms. Unfortunately he can't take narcotics, OTC pain relievers...nothing. They all shut down his urethra and he can't pee or they burn his bladder more....and then comes the urgency/frequency. He has been seeing a physical therapist but that hasn't really helped much in the U/F department. It has started to help with the pelvic pain a little but not the bladder yet. We go see his urologist again tomorrow and are hopefully getting Elavil. We have been reluctant to start it due to the side effects. He is already on Zoloft so it is a little scary to combine the 2 but we hear it should help with all the bladder problems. Oh and antihistamines inflame the prostate so he can't take ANY antihistamine...GRRRR. We are also thinking of trying plain Quercetin. We stried a supplement with other stuff in it and BAM a flare. I hate watching him suffer all the time. He is just miserable.