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  • first symptoms

    so can anyone tell me since I'm sorta new at all of this what your first symptoms were? Mine were constant UTI's that would never go away. Last summer I stayed on anti-biotics for 4 mths. It was so frustrating. I also have constant lower back pain. I've been reading that this is as sign as well. Did anyone have or do you have lower back pain? Also extreme pain in the pelvic/bladder region. I told my nurse today I'd rather give birth 10 times than deal with this. Thanks for all your input and info.

  • #2
    Welcome, I too had what I thought was a constant UTI feeling, bladder pelvic pain and lower back pain and in a severe flare I also had pain in my inner thighs. I'm still learning, just know you will have a life again.
    IC diagnosis 3 weeks ago.
    Vesicare 10 mg once daily
    IBS and Gerd-Zegerid
    IC diet
    Elmiron 100 mg three daily
    Hydroxyzine 25 mg at night
    Amitriptyline 10mg at night
    Diovan 60/12.5 daily
    Topral 50 mg daily
    Zoloft 100 mg at night
    Klonopin .5 twice daily

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    • #3
      wow you are on Emilron 3 times a day? Does that not kill your stomach?

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      • #4
        It hasn't bothered me, it's kinda of funny I normally have bad reactions to meds and I've had none from my meds with IC.
        IC diagnosis 3 weeks ago.
        Vesicare 10 mg once daily
        IBS and Gerd-Zegerid
        IC diet
        Elmiron 100 mg three daily
        Hydroxyzine 25 mg at night
        Amitriptyline 10mg at night
        Diovan 60/12.5 daily
        Topral 50 mg daily
        Zoloft 100 mg at night
        Klonopin .5 twice daily

        Comment


        • #5
          can I ask what the topral is for?

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          • #6
            It's one of my Blood Pressure Meds. I have several things I deal with on a daily basis...Hope your feeling better today.
            IC diagnosis 3 weeks ago.
            Vesicare 10 mg once daily
            IBS and Gerd-Zegerid
            IC diet
            Elmiron 100 mg three daily
            Hydroxyzine 25 mg at night
            Amitriptyline 10mg at night
            Diovan 60/12.5 daily
            Topral 50 mg daily
            Zoloft 100 mg at night
            Klonopin .5 twice daily

            Comment


            • #7
              I've had bladder symptoms for 20 years. But when my IC really kicked in (about a year or so ago), I noticed that I had chronic burning and frequency. It felt like a constant UTI. Yet I had no infection. Sometimes it felt like a yeast infection with outer burning and itching. Additionally I've experienced back pain and stomach pain. I got all multiple back x-rays, went to a Chiropractor, and was told nothing is wrong (except a slight curve in lower back). But I wake up very often with back pains and a burning sensation on my skin on my lower back region. My doctor says it's all related to IC and pelvic pain issues. I also have chronic burning in my urethra, despite nothing being wrong with that area.
              Frances

              Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

              Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

              Other conditions: Migraines, allergies, mild IBS.


              "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

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              • #8
                My problems before being diagnosed with ic were first chronic yeast infections. Long term antibiotics, then recurrent uti's then ic. I really think the antibiotics killed my immune system that is why i ended up with ic. I didn't know about probiotics at that time. Now i take probiotics daily.

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                • #9
                  I kept getting what I thought was a UTI. My NP and I went back and forth with that 4 times, finally she said you need to go to a URO. The first visit with him, he know right off the bat that I had IC. I truely did luck out because all that happened within a 6 month period of time.

                  As Greeneyes said, please know that you will get your life back. It takes trial and tribulations, but you will find the combinations that are right for you.

                  Good luck
                  Minds are like parachutes-they ony function when they are open.
                  -Thomas DeWar-



                  ICN Newbie Volunteer


                  *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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