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IC and a UTI

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  • IC and a UTI


    I've been diagnosed for a while with IC. A few days ago I had a "flare" which is still going on. I went to my doctor who gave me a heparin/lidocane installation and found white blood cells in my urine so it seems I have a UTI. I could have guessed it because the pain was more intense.

    I recall the last few weeks having trouble emptying my bladder. The nurse says this happens with UTIs but can IC make you retain urine which can lead to a UTI?

    Also, is anyone on family medical leave from IC? My doctors office specializes in IC but never does family medical leave for patients although they want me to come in two times a week for an insallation and the elmiron can take 6 months to work.

  • #2
    I can't answer the question about retaining urine, but I can talk a bit about family medical leave. I was on it about 2 years ago, more for my PFD. It seems strange that your doctor wouldn't help you with that. Do you see any other doctors who might be willing to fill out the paperwork? Maybe your family doc or gyno? I was very desperate and grateful that once I started seeing a pelvic specialist, they had no problems helping me get leave.
    34 years old, bladder symptoms all my life
    diagnosed with PFD and VV October 2009; IC May 2010

    Current meds:
    Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
    Other past treatments:
    IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
    Tried and didn't work:
    Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture


    • #3
      I agree. You could ask your primary care physician about the paperwork for family leave. That would allow you to keep your appointments without problems with your work place.

      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        Sorry to hear you're not feeling the best. I just wanted to say that it is possible to have white blood cells in your urine without a UTI. I had them every time I was tested for several months and none of the cultures came back positive.. and I know others on this site have experienced the white cells during flares. White cells are known to respond to inflammation, which is what IC is. So I'm not telling you to stop whatever your doctor has told you to do.. just make you aware so you don't end up taking tons of unnecessary antibiotics like I did. A lot of doctors aren't aware that IC can cause white cells without infection so ask your doctor to do a culture if white cells were the only thing positive on your test.
        Also, have you been tested for pelvic floor dysfunction? That can cause retention. Some medications can as well like antispasmodics and anti-depressants like elavil.
        That's about all the advice I have. Hope you feel better soon!