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  • #1

    Itching and aching bladder

    Does anyone else get the itching?

    Its like I have been bitten by some insect, inside my bladder! it's so annoying!

    Also the aching just wont go away. it is about 2 inches wide directly above my pubic bone. Diet isn't helping this, only frequency.

    It comes - lasts for 3-4 days, goes away for a day then starts over.

    Colostrum has finally come in the post. Hubby is trying this first bottle for his ulcers/ibs. He is in more pain than me at the moment so I'll let him try first. Still waiting for cystoprotek and prelief.

    I can also see my overies through my skin they are that swolen. No cysts though.

    F-e-d-u-p

    TMJ Dysfunction 2009
    Vulvodynia and/or PFD 2010
    IC, based on symptoms alone 2010.
    PCOS March 2012

    8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

    Currently using: IC Diet...pain meds as needed
    Medications / treatment tried and discounted:
    Fluconazole 150mg 1 per week for 6 months (yeast)
    Endep 25mg - 4months
    Lyrica 75mg - 2 months - FLARE
    Oxytrol patch - I think this caused retention.
    Countless creams, lotions and potions.
    Cystoprotek - no change in symptoms
    PT - for 1 year
    Various herbs and supplements
    Tags: None
  • #2
    I take dye free Benadryl at night when I have an IC flare that seems allergy related. I tend to have those flares in the spring and fall. But this past spring was so bad, I took a Claritin in the morning as a preventative every day. (I only do the Benadryl when I have a big symptom spike - not every night as it tends to affect part of the sleep cycle and leaves me waking up feeling less rested overall.)
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

    Comment

    • #3
      I'm sorry you are feeling so awful. I never had itching in my bladder but just on the outside. To me that's a strange symptom and I often think I have some infection. But there usually is not one present. Inner bladder itching sounds terrible!

      I too get mysterious ovary pains and various other pains from the top of my stomach down to my vaginal area. I was tested for edometriosis and the results didn't show any growths on my ovaries.

      I am starting Gabapentin for the burning, outer itching and other strange pains. The doctor told me with PFD (and IC and other related disorders) that the nerves around the pelvic area can create all kinds of pains and sensations. I think it will take some time for the Gabapentin to work. Just wanted to mention it in case you were interested in trying it, if you haven't already. I'm glad to know the PT helped you somewhat because I've just started.

      Feel better!
      Frances

      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

      Other conditions: Migraines, allergies, mild IBS.

      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

      Comment

      • #4
        Claire, itching is basically a form of pain. Think of your skin when you have a rash, hives, or poison ivy- it is irritated and you itch. So treat your IC just as if you have pain. Try Elmiron which is basically lotion for your bladder. I would also try Elavil that will block the nerves sending the signal to your brain. Best wishes for success!

        Comment

        • #5
          Barbm

          I tried Endep (Elevail) for 4 months. It did nothing for my bladder for vulvodynia. I was on it for burning hands and feet anyway and after coming off this has resolved but the others have not.

          Elmiorn is $200 per month and we can't claim on insurance here. I can't afford it.

          Cystoprotek just arrived I am going to give it a go for 4 months.

          Thanks for everyones responses. I really really want to do this naturally.

          Wish this was not reality for any of us
          TMJ Dysfunction 2009
          Vulvodynia and/or PFD 2010
          IC, based on symptoms alone 2010.
          PCOS March 2012

          8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

          Currently using: IC Diet...pain meds as needed
          Medications / treatment tried and discounted:
          Fluconazole 150mg 1 per week for 6 months (yeast)
          Endep 25mg - 4months
          Lyrica 75mg - 2 months - FLARE
          Oxytrol patch - I think this caused retention.
          Countless creams, lotions and potions.
          Cystoprotek - no change in symptoms
          PT - for 1 year
          Various herbs and supplements

          Comment

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