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  • Sleep helps IC?

    This is strange, but I have been sick for the past 2 days and have slept a TON. Since then, my IC has gotten tons better. I don't even feel my bladder at all, which is new for me. I am wondering if some of my pain is because I sit at a computer all day at work OR does the pain just get better the more sleep a person gets? It just seems odd that I've had a drastic improvement since I have gotten so much sleep....

    Thoughts?
    ~Valery~
    Dx with IC 3/2009 - Cysto w/Hydro
    Meds: Elmiron (400mg), Atarax (10mg), Elavil (20mg), Pyridium (as needed)

  • #2
    I don't know what all to be thinking. (hmmm) Some IC'ers don't always get much sleep, but I have never read where an IC'er reported that getting proper sleep actually took some of the pain away.(as in sleep deprivation just might be adding more problems)(headaches, tiredness, etc) (as opposed to sleeping good)Of course, I sleep good, and I am still tired right now. At least, you have felt better. That is good for you. Yep!

    Comment


    • #3
      Originally posted by statesboro View Post
      I don't know what all to be thinking. (hmmm) Some IC'ers don't always get much sleep, but I have never read where an IC'er reported that getting proper sleep actually took some of the pain away.(as in sleep deprivation just might be adding more problems)(headaches, tiredness, etc) (as opposed to sleeping good)Of course, I sleep good, and I am still tired right now. At least, you have felt better. That is good for you. Yep!
      hmmm...I'm not saying sleep deprivation causes or worsens IC. (Although, it probably could since stress can impact it.) What I am saying is that no matter how much sleep I've had, if I sleep more (or maybe it's the act of laying flat), my IC symptoms improve. I am wondering if my issue has to do with PFD since lying flat seems to help me a lot.
      ~Valery~
      Dx with IC 3/2009 - Cysto w/Hydro
      Meds: Elmiron (400mg), Atarax (10mg), Elavil (20mg), Pyridium (as needed)

      Comment


      • #4
        Hi, Valery ~ I'm not sure about the "sleep" part, but my husband has certainly seen a correlation between my pain level and excessive activity. For instance, I've been at the hospital with my Mom for the last 11 days (day and night), therefore pretty much off my feet....my IC seems sooo much better than when I spend a day say at Disneyland. I do think the rest helps reduce any irritation from movement but that's just my opinion.

        I think I'd change my name to "Sleeping Beauty" and enjoy the pain relief while it lasts!

        Blessings,
        Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

        11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
        8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
        8/2010 Surg gallbladder
        TREATMENTS (updated 4/15)
        IC Diet since 8/2009 (Able to vary 4/15)
        Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
        Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
        Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
        *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
        Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
        PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

        Comment


        • #5
          Yes!!!

          I found that as soon as I got my meds figured out and I could sleep, I felt much better. If I don't get enough sleep, my bladder is certain to be fussy. I sometimes just sleep 9 or 10 hours (including potty breaks) if I am feeling bad. It really does help!
          Julie Beyer, MA, RDN
          IC Dietitian, Patient Advocate, Speaker, & Author


          Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

          Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

          You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

          ........ ........


          Other IC Diet Resources:

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          For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
          Free IC Diet Booklet: What Can I Eat?
          Confident Choices IC Diet Blog
          IC Diet Newsletter


          *Let's Connect!*

          Comment


          • #6
            When I first started seeing a pain management doctor the very FIRST thing he focused on even before my pain was my sleep. We moved out of state and my new doc here did the same thing. I definitely feel better when I get better sleep. I think part of it is like you said with the pressure off of the pelvic floor muscles and bladder. I'm guessing it helps with the stress of just dealing with IC everyday as well. Like Julie, I will also try to get better sleep when I am in a flare up as it does seem to help.
            Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
            _____________________________

            DX: IC - November 2002 after hysterectomy
            Interstim implanted March 2006 - died May 2011
            Interstim replacement June 2011
            Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
            Docs: Pain management doc, urologist, family practice

            Comment


            • #7
              Sleep helps a lot with resilience which helps me keep the IC managed physically and emotionally. Lying down for a bit each day also takes the pressure off the pelvic floor muscles. I have also noticed when I have a bad cold, my IC seems to be better. My doctor says that's because if you hit your thumb with a hammer, you forget your headache, but I'm not sure. I wonder if it has something to do with the immune system being weakened and unable to attack my own body...
              Kadi

              -------------------------------------------------------------
              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              ------------------------------------------------------


              New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
              Source - Pinterest
              "


              Current treatments:
              -IC diet
              -Elavil 50mg at night
              -Continuous use birth control pills (4-5 periods/year)
              -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
              -Pyridium if needed,
              -Pain medicine at bedtime daily, as needed during the day several times per week
              -Antibiotic when doing an instillation to prevent UTI
              -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
              -Dye Free Benadryl 50 mg at bedtime
              -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
              -Managing stress= VERY important!
              -Fur therapy: Hugging the cat!

              Comment


              • #8
                I am retired and nap during the day and lie down and listen to comforting music. Sleep does help for me anyway
                I like "fur therapy" pet the cat. I don't have one but this makes me smile which is good because I am flaring and it is calming down finally.
                God bless everyone here and may we all be better.
                If you keep a green bough in your heart
                the singing bird will come.
                http://www.obsidian-sun.com/

                Comment


                • #9
                  Originally posted by kadi View Post
                  I wonder if it has something to do with the immune system being weakened and unable to attack my own body...
                  That makes a lot of sense Kadi, since some say IC is an autoimmune disease.

                  Comment


                  • #10
                    I do find that getting excessive amounts of sleep helps lessen my pain. Like sleeping 12 hours or more. Of course I have to get up and use the bathroom once or twice in that time. Sleeping that much doesn't happen that often but I'm glad when it does.
                    Current Meds: Nortriptyline (35 mg), Hydroxyzine (50 mg), Cephalexin (250 mg before sexual activity)
                    As Needed: Prelief, AZO, Evian Water, Aleve

                    Comment


                    • #11
                      Sleep helps

                      Sleep is definately a must for me, when I am deprived I feel terrible and my IC symtoms certainly increase. I think it's fair to say that everyone feels better with proper sleep but with any chronic illness such as IC I think it plays a key role in controlling pain.
                      It would make sense to need more sleep because many of us have so many interuptions through the night (for me usually 4 times) and then to get back to sleep is another story. (Poor quality sleep = need more sleep)
                      Also because that is a time when our bodies get to relax having constant pain causes tension which triggers even more pain so a little break when we can get a deep sleep really helps. (Does that make sense to you?)
                      I could easily stay in bed 10 - 12 hrs. just to feel somewhat normal.
                      Cindy-Lou

                      Comment


                      • #12
                        Originally posted by Cindy-Lou View Post
                        Sleep is definately a must for me, when I am deprived I feel terrible and my IC symtoms certainly increase. I think it's fair to say that everyone feels better with proper sleep but with any chronic illness such as IC I think it plays a key role in controlling pain.
                        It would make sense to need more sleep because many of us have so many interuptions through the night (for me usually 4 times) and then to get back to sleep is another story. (Poor quality sleep = need more sleep)
                        Also because that is a time when our bodies get to relax having constant pain causes tension which triggers even more pain so a little break when we can get a deep sleep really helps. (Does that make sense to you?)
                        I could easily stay in bed 10 - 12 hrs. just to feel somewhat normal.
                        Cindy-Lou
                        Great post Cindy-Lou! I totally agree.
                        Current Meds: Nortriptyline (35 mg), Hydroxyzine (50 mg), Cephalexin (250 mg before sexual activity)
                        As Needed: Prelief, AZO, Evian Water, Aleve

                        Comment


                        • #13
                          Originally posted by kadi View Post
                          Sleep helps a lot with resilience which helps me keep the IC managed physically and emotionally. Lying down for a bit each day also takes the pressure off the pelvic floor muscles. I have also noticed when I have a bad cold, my IC seems to be better. My doctor says that's because if you hit your thumb with a hammer, you forget your headache, but I'm not sure. I wonder if it has something to do with the immune system being weakened and unable to attack my own body...
                          This is so true about being sick with a cold! I have had one now for several days, and I swear my IC has gotten tons better. I told my husband that same thing you said. My body is too busy fighting off this cold to attack itself. Sad but true!!
                          ~Valery~
                          Dx with IC 3/2009 - Cysto w/Hydro
                          Meds: Elmiron (400mg), Atarax (10mg), Elavil (20mg), Pyridium (as needed)

                          Comment


                          • #14
                            Thanks for all of the responses! So, let me pose this to you. Since sleep does seem to relieve my pain, and we think it is related to resting the pelvic floor and bladder, could I maybe benefit from some pelvic floor therapy? I am not sure how doctors determine when that could help.
                            ~Valery~
                            Dx with IC 3/2009 - Cysto w/Hydro
                            Meds: Elmiron (400mg), Atarax (10mg), Elavil (20mg), Pyridium (as needed)

                            Comment


                            • #15
                              When I am sick I don't feel my bladder, I don't even have frequency?!

                              Sleep is the best thing. If I am in that much pain I just go to sleep and most times wake up feeling better.

                              I also feel a lot better on the weekend, away from my desk. On the weekends I don't sit at all

                              Ps, I think anyone with IC would benefit from getting their pelvic floor evaluated!
                              TMJ Dysfunction 2009
                              Vulvodynia and/or PFD 2010
                              IC, based on symptoms alone 2010.
                              PCOS March 2012

                              8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

                              Currently using: IC Diet...pain meds as needed
                              Medications / treatment tried and discounted:
                              Fluconazole 150mg 1 per week for 6 months (yeast)
                              Endep 25mg - 4months
                              Lyrica 75mg - 2 months - FLARE
                              Oxytrol patch - I think this caused retention.
                              Countless creams, lotions and potions.
                              Cystoprotek - no change in symptoms
                              PT - for 1 year
                              Various herbs and supplements

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