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  • #1

    crying and ? on ketoconazole

    All I can do these past couple of days is cry. My flare up is so bad!! That feeling to pee all the time with with my 24/7 lately. I could just die!! My urine looks clear. The interstim isn't working.

    One thing was my dr prescribed and recommended ketoconazole for 10 days in case i have a fungal infection? Anyone heard of taking this drug for the bladder? Does it help?? Man this bites!

    Nancy
    Nancy - newly remarried Sept 2011! Have 5 kids ages 7-22.

    Had a UTI in Oct 2009
    IC symptoms started immediately: strong urgency, little bit of burning, fullness in the bladder, urethera spasms

    Had three scopes of my bladder and one hydrodystention-this did not help at all. Found classic bleeding during the hydro. Later told almost everyones bladder bleed the test Also had a urodynamics test-normal. Did anyone have it done more than once? My newest urogynocologist does not believe

    Diagnosed fibromyalgia/lyme disease in 1999
    Acid reflux since 1998

    Have tried the following therapies:
    pelvic floor PT-relaxed the muscles but did nothing for the urgency feeling.
    Ativan-helps some
    Vicodin-some relief.
    ditropan-only caused fluid retention
    toviaz-same as abovee
    detrol-no relief
    hydroxyzine-get some relief but not for urgency
    valium-helps relax the muscles
    flexeril-same as the valium
    B&O suppositories-they help a little
    started estrogen cream
    starting effexor soon

    Had an interstim placed in 2010. Do not really notice any changes with the urgency feeling. I turned it off 6 mos ago.

    current meds and treatment:
    nexium
    ativan
    valium suppositories
    hydroxyzine
    IC diet
    methenamine mandalate
    estrogen cream
    effexor
    B&O suppositories

    Had bladder instills but this made the urethra spasms much worse.

    Had hernia repair with fundoplication dec, 2011

    Will be trying the anti inflammatory diet. Hope it works. I dont know where to start with this diet.

    Always looking for ideas on how to stop urethra spasms and urgency. Anyone in the Colorado Area? Always looking for support.

    Husband is my biggest supporter. I need the urgency to go away. What helps??
    Tags: None
  • #2
    I haven't heard of anyone on this med for bladder problems, but your dr. must have his reasons. I'd be interested in knowing why he felt an anti fungal med would help. Maybe he has had other patients that showed improvement with this. I'm sorry to hear you're having such a bad flare right now. I can remember crying sometimes for days when I was in pain. You get so frustrated with this ugly condition that sometimes all you can do is cry. I hope you have some other meds that can get you through this right now.

    Comment

    • #3
      So what helps you for horrible frequency symptoms?
      Nancy
      Nancy - newly remarried Sept 2011! Have 5 kids ages 7-22.

      Had a UTI in Oct 2009
      IC symptoms started immediately: strong urgency, little bit of burning, fullness in the bladder, urethera spasms

      Had three scopes of my bladder and one hydrodystention-this did not help at all. Found classic bleeding during the hydro. Later told almost everyones bladder bleed the test Also had a urodynamics test-normal. Did anyone have it done more than once? My newest urogynocologist does not believe

      Diagnosed fibromyalgia/lyme disease in 1999
      Acid reflux since 1998

      Have tried the following therapies:
      pelvic floor PT-relaxed the muscles but did nothing for the urgency feeling.
      Ativan-helps some
      Vicodin-some relief.
      ditropan-only caused fluid retention
      toviaz-same as abovee
      detrol-no relief
      hydroxyzine-get some relief but not for urgency
      valium-helps relax the muscles
      flexeril-same as the valium
      B&O suppositories-they help a little
      started estrogen cream
      starting effexor soon

      Had an interstim placed in 2010. Do not really notice any changes with the urgency feeling. I turned it off 6 mos ago.

      current meds and treatment:
      nexium
      ativan
      valium suppositories
      hydroxyzine
      IC diet
      methenamine mandalate
      estrogen cream
      effexor
      B&O suppositories

      Had bladder instills but this made the urethra spasms much worse.

      Had hernia repair with fundoplication dec, 2011

      Will be trying the anti inflammatory diet. Hope it works. I dont know where to start with this diet.

      Always looking for ideas on how to stop urethra spasms and urgency. Anyone in the Colorado Area? Always looking for support.

      Husband is my biggest supporter. I need the urgency to go away. What helps??

      Comment

      • #4
        I don't recall anything that worked immediately but over time certain things did help me. I was taking Benadryl and a low dose of Surmontyl and later added supplements Quercetin and Hyaluronic acid along with using prelief. Also was taking Ativan that sometimes calmed everything down. I also eliminated coffee, tea, wine, and citrus. A lot of people are helped by the OAB meds but they didn't do much for me long term. I've been in remission now for a good while and currently only taking the Quercetin and using prelief with certain foods and of course watching my diet. I still may get some frequency at night but it's never as bad as it was when it first started. In the beginning I think the Surmontyl (mild tricyclic med) did help quite a bit for the frequency but it took a while to work.

        Comment

        • #5
          earthlady

          What is[ Ativan and how does it work?

          Man I want remission
          TMJ Dysfunction 2009
          Vulvodynia and/or PFD 2010
          IC, based on symptoms alone 2010.
          PCOS March 2012

          8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

          Currently using: IC Diet...pain meds as needed
          Medications / treatment tried and discounted:
          Fluconazole 150mg 1 per week for 6 months (yeast)
          Endep 25mg - 4months
          Lyrica 75mg - 2 months - FLARE
          Oxytrol patch - I think this caused retention.
          Countless creams, lotions and potions.
          Cystoprotek - no change in symptoms
          PT - for 1 year
          Various herbs and supplements

          Comment

          • #6
            It's a benzo which is usually used for anxiety but I found that it helped calm my bladder and pelvic floor muscles. Probably in the same way that valium helps a lot of people here who use it as vaginal valium. It is addictive so a lot of drs. don't like to prescribe it but my anxiety was so bad in the beginning that I just about had a meltdown in the drs. office and told her if I didn't get some sleep soon I was going to loose my mind. So she gave it to me- probably to prevent me from having a nervous breakdown right there in her office- Ha. When my bladder was going into painful spasms I would take it and sit on a heating pad and within about 20 minutes I felt a lot better. It worked about 80% of the time so it wasn't always 100%. There are other meds to calm things down but I never did very well on the anticholinergics

            Comment

            • #7
              Nancy,
              Did the ketoconazole help?
              I'm taking it now.

              things that seem to help me: *Uribiotic (it's acidic so I take it with eCal) *eCal (whenever I eat a "bad" food) note: I have started taking magnesium along with the calcium (1 part magnesium to 3 parts calcium) and also zinc in a trace mineral supplement. I hope this will help balance out the calcium supplementation. If anyone has any experience with this please let me know. *ultimate lectin defense, *natur leaf
              things that worsened my condition: *aloe vera whole plant, *CystoProtek,B Vitamins
              other things that I have taken: *femflora probiotics seem to be Ok, please be careful with probioitics -since large amounts of probiotics seem to cause bladder problem/irritation.*Vestriol, *Cabbage celery juice in the vitamix
              *Avoid Fruit and Acids
              - used to take 100 or 200 mg. ketoconazole about once a week
              -used to take Peppermint and Oregano oil
              Other health problems: menstrual migrane, allergies, and arthritis (arthritis is sopratic and somewhat helped by grapefruit pectin and very small doses of pregnenalone - 5 mg or less).
              I like to drink nettle tea.

              Comment

              • #8
                Both the Ativan and the ketoconazole helped but the bladder instills are helping more
                Nancy - newly remarried Sept 2011! Have 5 kids ages 7-22.

                Had a UTI in Oct 2009
                IC symptoms started immediately: strong urgency, little bit of burning, fullness in the bladder, urethera spasms

                Had three scopes of my bladder and one hydrodystention-this did not help at all. Found classic bleeding during the hydro. Later told almost everyones bladder bleed the test Also had a urodynamics test-normal. Did anyone have it done more than once? My newest urogynocologist does not believe

                Diagnosed fibromyalgia/lyme disease in 1999
                Acid reflux since 1998

                Have tried the following therapies:
                pelvic floor PT-relaxed the muscles but did nothing for the urgency feeling.
                Ativan-helps some
                Vicodin-some relief.
                ditropan-only caused fluid retention
                toviaz-same as abovee
                detrol-no relief
                hydroxyzine-get some relief but not for urgency
                valium-helps relax the muscles
                flexeril-same as the valium
                B&O suppositories-they help a little
                started estrogen cream
                starting effexor soon

                Had an interstim placed in 2010. Do not really notice any changes with the urgency feeling. I turned it off 6 mos ago.

                current meds and treatment:
                nexium
                ativan
                valium suppositories
                hydroxyzine
                IC diet
                methenamine mandalate
                estrogen cream
                effexor
                B&O suppositories

                Had bladder instills but this made the urethra spasms much worse.

                Had hernia repair with fundoplication dec, 2011

                Will be trying the anti inflammatory diet. Hope it works. I dont know where to start with this diet.

                Always looking for ideas on how to stop urethra spasms and urgency. Anyone in the Colorado Area? Always looking for support.

                Husband is my biggest supporter. I need the urgency to go away. What helps??

                Comment

                • #9
                  What is PT?

                  things that seem to help me: *Uribiotic (it's acidic so I take it with eCal) *eCal (whenever I eat a "bad" food) note: I have started taking magnesium along with the calcium (1 part magnesium to 3 parts calcium) and also zinc in a trace mineral supplement. I hope this will help balance out the calcium supplementation. If anyone has any experience with this please let me know. *ultimate lectin defense, *natur leaf
                  things that worsened my condition: *aloe vera whole plant, *CystoProtek,B Vitamins
                  other things that I have taken: *femflora probiotics seem to be Ok, please be careful with probioitics -since large amounts of probiotics seem to cause bladder problem/irritation.*Vestriol, *Cabbage celery juice in the vitamix
                  *Avoid Fruit and Acids
                  - used to take 100 or 200 mg. ketoconazole about once a week
                  -used to take Peppermint and Oregano oil
                  Other health problems: menstrual migrane, allergies, and arthritis (arthritis is sopratic and somewhat helped by grapefruit pectin and very small doses of pregnenalone - 5 mg or less).
                  I like to drink nettle tea.

                  Comment

                  • #10
                    Physical therapy
                    Nancy - newly remarried Sept 2011! Have 5 kids ages 7-22.

                    Had a UTI in Oct 2009
                    IC symptoms started immediately: strong urgency, little bit of burning, fullness in the bladder, urethera spasms

                    Had three scopes of my bladder and one hydrodystention-this did not help at all. Found classic bleeding during the hydro. Later told almost everyones bladder bleed the test Also had a urodynamics test-normal. Did anyone have it done more than once? My newest urogynocologist does not believe

                    Diagnosed fibromyalgia/lyme disease in 1999
                    Acid reflux since 1998

                    Have tried the following therapies:
                    pelvic floor PT-relaxed the muscles but did nothing for the urgency feeling.
                    Ativan-helps some
                    Vicodin-some relief.
                    ditropan-only caused fluid retention
                    toviaz-same as abovee
                    detrol-no relief
                    hydroxyzine-get some relief but not for urgency
                    valium-helps relax the muscles
                    flexeril-same as the valium
                    B&O suppositories-they help a little
                    started estrogen cream
                    starting effexor soon

                    Had an interstim placed in 2010. Do not really notice any changes with the urgency feeling. I turned it off 6 mos ago.

                    current meds and treatment:
                    nexium
                    ativan
                    valium suppositories
                    hydroxyzine
                    IC diet
                    methenamine mandalate
                    estrogen cream
                    effexor
                    B&O suppositories

                    Had bladder instills but this made the urethra spasms much worse.

                    Had hernia repair with fundoplication dec, 2011

                    Will be trying the anti inflammatory diet. Hope it works. I dont know where to start with this diet.

                    Always looking for ideas on how to stop urethra spasms and urgency. Anyone in the Colorado Area? Always looking for support.

                    Husband is my biggest supporter. I need the urgency to go away. What helps??

                    Comment

                    • #11
                      Nancy,
                      congratulations on your marriage!
                      how long did you take the ketoconazole?
                      how come there is no test to know if you have a fungal infection? (just thinking out loud, maybe someone knows something)
                      what if the ketoconazole helps because of some other property of the drug? though I wouldn't be suprised if I have a fungal infection, they are very common where I live and I have been treated with antibiotics for months at a time.

                      things that seem to help me: *Uribiotic (it's acidic so I take it with eCal) *eCal (whenever I eat a "bad" food) note: I have started taking magnesium along with the calcium (1 part magnesium to 3 parts calcium) and also zinc in a trace mineral supplement. I hope this will help balance out the calcium supplementation. If anyone has any experience with this please let me know. *ultimate lectin defense, *natur leaf
                      things that worsened my condition: *aloe vera whole plant, *CystoProtek,B Vitamins
                      other things that I have taken: *femflora probiotics seem to be Ok, please be careful with probioitics -since large amounts of probiotics seem to cause bladder problem/irritation.*Vestriol, *Cabbage celery juice in the vitamix
                      *Avoid Fruit and Acids
                      - used to take 100 or 200 mg. ketoconazole about once a week
                      -used to take Peppermint and Oregano oil
                      Other health problems: menstrual migrane, allergies, and arthritis (arthritis is sopratic and somewhat helped by grapefruit pectin and very small doses of pregnenalone - 5 mg or less).
                      I like to drink nettle tea.

                      Comment

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