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Always feel an urge and nothing helps!

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  • Nal
    replied
    So I'm sitting here. Still dealing with a constant urge to have to pee. My sr is calling in some Valium suppositories? Do those help?

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  • Nal
    replied
    So I printed off the quick reference to the diet. Thank you for the link btw!!! I think I mentioned I ordered a couple books...theIC survival guide and something called the Better Bladder Book I think? lol.


    I see a new urologist next week. What information can I can give to share with him so that maybe we can get on the right track to something helping me?

    Thanks again.

    Nancy

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  • Nal
    replied
    No, it didn't really help. I'm still dealing

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  • curlycue
    replied
    urgency

    Nal so did the Toviaz not work for you? Pyridium works well for me as well.

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  • Jinny Jean
    replied
    Hi!!!

    The diet is very worth it I promise!

    I had a hard time coping with it too... as I think we all do at the beginning!... but then I started to realize that what I COULD eat was actually a pleasant suprise, and sometimes I had to get a little creative. There are so many things you can eat, so just look at those for awhile and ignore the stuff you cant until you start to feel better.


    The have to go all the time feeling was the worst one I had, it drove me mad! After I was on the diet for about 4 months it went away, that and being on elmiron as well

    Now the only time I DO get that symptom back is when Im bad and I eat what I shouldnt!! Like last night when I gorged on strawberries!!! lol. Normally they dont bother me at all though-- but too many is just bad news ..lol... I even ate pineapple in a marshmellow salad the other day for thanksgiving! ... There clearly IS a reason for me to be peeing my face off today hahaha...

    Anyways. Hang in there and please try the diet!

    Jenn

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  • skybluesoul
    replied
    If pyridium didn't work right for you (me either -- I felt horrible on it!), you could try urelle or uribel. They're similar, and neither one caused me problems. They stain your urine blue/green instead of orange.

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  • Nal
    replied
    Thanks guys. Man what an ugly disorder isn't it? Heres answers to your questions Briza:

    What are your symptoms and when did they first start? Oct 2009. Had a UTI so burning, urgency, lower bladder pressure, never felt like I empty my bladder. Have had these symptoms ever since.

    When were you diagnosed? March 2010

    Which procedures were used to help in your diagnosis? hydrodystention, urodynamics and a bladder scope

    Do you still have the interstim and how is it working for you? I still have it. Sometimes it help a little and other times it doesn't help at all.

    Have any of your past or current meds or treatments helped with your symptoms...what and how? The hydroxyzine did in the beginning but not now. Nothing else has helped

    Are you following the IC diet? If so, how strictly and for how long? I havent. I dont know where to begin on it!

    Any other medical or emotional health issues that may be contributing to your symptoms? Im stressed all the time.

    Any help and advice is great. I just ordered a couple books-IC survival guide and A Better Bladder.

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  • ICNDonna
    replied
    If you haven't tried the diet, my best suggestion is to do so --- beginning today! You'll find the latest food list at the link in my signature below. Diet can be the most helpful thing you can do. I know if I ingest problem foods or drinks, I can know for sure that by the end of tomorrow I would be in a severe flare.

    Sending encouraging hugs,
    Donna

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  • vanilla
    replied
    Always feel the urge

    Hi that's my biggest problem.

    The only thing that stops the urge for me is oxycodone, but because I don't want to take that forever, my doctor wants me to try botox. Have you tried strong pain medicine?

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  • Nal
    replied
    I have used pyridiom before and it just seemed to cause a lot of bladder retention. See? By can't these things just WORK for me??

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  • Nal
    replied
    Yeah. The same thing. I tried Tovias too. The constant urge to pee is the worst thing ever

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  • curlycue
    replied
    got to pee

    Do you mean urgency? I use Toviaz 8mg

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  • Nal
    started a topic Always feel an urge and nothing helps!

    Always feel an urge and nothing helps!

    Please, someone help me!!! I've been a member here quite a while but I'm still feeling awful. My biggest symptom??? ALWAYS FEEL LKE I HAVE TO PEE! I know most of you deal with it to and I'm sorry. No one should have to deal with this! What helps you individually? Here's what I've tried:
    Hydtoxyzine
    Ditropan
    Ativan
    Valium
    Sacral
    implant
    All bladder incontinence drugs
    Pelvic floor therapy for several months

    I'd try the diet but where in the world do I begin with that??? Is there stood book for the diet? Alternative Meds?

    Please. I cry all the time now. His thing is horrendous. I need help. Please. Thank you sO much!!!

    Nancy
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