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Atypical Cause of IC Symptoms?

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  • Atypical Cause of IC Symptoms?

    Hi, I am the father of a healthy 23 year old son who suddenly developed IC symptoms a bit less than 2 years ago. Upon visiting about a half dozen doctors, he was diagnosed at each visit with something new, i.e. UTI, STD, appendicitis, intestinal blockage and more (can’t remember them all). He was prescribed stronger and stronger antibiotics. Upon taking ciproflaxin, he had a very, very bad reaction and decided to stop the cipro and stop seeing doctors altogether. At that point he and I began our own research. Long story short, we have come to the very strong conclusion that my son’s bladder pain was caused by an injury or irritation (now inflammation) in the area of the L4 and L5 lumbar vertebrae spinal nerve to the bladder. We also believe there is a strong possibility that this injury occurred during weightlifting. During the early months, there was a very minor lower spinal lumbar ache but mostly strong bladder pain flares (typical IC symptoms) especially after certain exercises using the muscles of the lumbar area. However, going on walks relieved the bladder pain somewhat. Over the past 9 months the flares have gradually decreased in pain and frequency. We think it is slowly healing. My son is on a very careful diet eating all the right things and carefully working out again (without weights). Over the past 22 months we have tried many things and although he has endured many painful episodes, he has refused to take any analgesic painkillers. These days his most effective bladder pain relief is deep self finger massage of the lower lumbar area and the brief use of cold packs (a bag of frozen peas) on the same area. It seems IC can have many causes. To date (Jan. 2020) the medical community in general does not recognize the connection between IC symptoms and lower spine trauma. Do not discount the possibility of a physical injury to the lower lumbar area as the cause of your Interstitial Cystitis, especially if you are young. Good luck! Bob, Colorado

  • #2
    to the IC Network. It's good that you and your son are working together towards a solution to his problem. Is the diet he's following the IC one? There's a link to diet information in my signature below.

    There's some thought that IC results from trauma --- in my case, I strongly suspect the IC would have eventually shown itself, and the trauma of a major abdominal surgery caused it to show symptoms.

    I hope he continues to improve.

    Donna
    Stay safe

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I just finished reading the book "Breaking Through Chronic Pelvic Pain" by Dr. Jerome M. Weiss (Highly recommended by Jill as well!). I think you will find his book to be a wealth of information. I'm feeling quite hopeful about relieving the "IC" I've had most of my life.

      Comment


      • #4
        Originally posted by Sarahbear8 View Post
        I just finished reading the book "Breaking Through Chronic Pelvic Pain" by Dr. Jerome M. Weiss (Highly recommended by Jill as well!). I think you will find his book to be a wealth of information. I'm feeling quite hopeful about relieving the "IC" I've had most of my life.
        to the IC Network.

        I hope you will find some relief soon.


        Donna
        Stay safe

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Has you son been to a chiropractor? I remember reading about someone who claimed their IC was cured by visiting the chiropractor. I believe IC does have many causes. I’ve had this condition for almost 15 years now. I discovered about two years ago that I had to stop all lower body workouts as they aggravated my bladder. Now I just spin (cycle) five days a week and do upper body workouts. I’m glad your son is starting to feel better.

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