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  • #16
    oh wow that is weird, we each had the bacteria vaginosis huh? hmmmmmm.... well my opinion is that IC can happen from many different causes...who knows, I know it is frustrating... I wonder if the bacteria of BV can travel up into the urethra and damage the bladder..cause i think i had this BV for a while before I actually got treated..i mean, i kept seeing this dicharge like off -white color, and i thought it was just hormonal or something, but then the discharge starting getting worse, so i finally went to the doctor..

    Can an antibiotic damage a bladder??? who knows

    sometimes i feel like i did something wrong to cause my IC..but all I did was live my life like everyone else, and trust my doctors when i was sick.. maybe they did not catch something..some undetected bacteria...i just dont know
    Last edited by niki_72; 07-11-2006, 02:21 PM.


    • #17
      I agree 100 percent

      It would be interesting to take a poll of how many ICers have had repeated UTIs. I sure wish doctors would treat ANY bacteria as serious.

      Originally posted by lilac22362
      I think it must be bacteria related. I'm 38 years old and never in my life did I have a bladder infection or problems, until my hysterectomy in Oct.2000. I got a bladder infection gram positive and after 7 rounds of antibiotic's I just showed multiple organisms with small colony count and they do not consider that infection? I knew I had a small bladder so that wasn't a knew thing but I also showed some red spots on distention so there fore got diagnosed with IC. I feel I had red spots due to it was only 6 weeks after my surgery and off course I just had a serious bladder infection. I had a catheter for 2 days and was in and out cath a few times as well. If it's not bacteria then how did I get it from hysterectomy? I honestly have never had a prior problem with bladder until the hyst and infection. I still feel there is infection I believe that some of us do get symptoms from low bacteria and why they won't treat it is beyond me.


      • #18
        I started having UTIs last year for the first time at age 26. I had 5-6 of them within a 6 month period. With the last one (which was cultured to show bacteria), my symptoms didn't go away when I started the 3 days of antibiotics. I didn't feel better until I had taken the very last dose. About a month later my symptoms came back and I thought I had another UTI, but the culture came back clean. I've had these symptoms now since January, and my current urologist thinks it is IC.

        Something interesting my urologist told me is that according to a recent study, at any given time, 1 out of 5 women have bacteria in their bladder. However, they don't always have symptoms. I wonder what it is that causes one person to show symptoms and not another?
        IC and IBS


        • #19
          Good question

          It just makes me think that when patients are given antibiotics over and over again within a short period of time the bacteria mutates and becomes a different organism which does not respond to all antibiotics. The infection is real, the discomfort is real, the symptoms are real, but do not show up under the current detection devices....cultures, dip stick tests. I really think half of painful bladder syndrome is infections. I sure wish doctors would take people with PBS seriously...very frustrating when nothing shows on the Cystoscopy but the pain is there...very frustrating.


          • #20
            Add me to the list that feels BV caused my IC.

            Frequent urination started on my birthday in october at dinner 2005...but i had vag symptoms before that...(thought it was just part of whatever illness i had....since i was so sick.....later diagnosed as lyme)

            well....I tested HIGH for nitates twice but NO bacteria was found .....went to gyn, she diagnosed BV on the spot ....test was pos for BV. wasnt able to use the metrogel.....cause everything was so tight down there

            given flagyl.......frequency got better and burning subsided........ive never been the same since then.

            I was treating with diflucan because i thought it was yeast before going to the helped some i think i had a combo of yeast/BV due to the lyme disease.

            im on the anti yeast diet now......and nizarol.......i feel better....but not normal.

            I also had a discharge tht i thought was normal for a long while........dont have it now so i dont think it was normal.
            Last edited by mich2604; 07-22-2006, 01:48 PM.

            Lyme disease diagnosed 11/05
            vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
            IC diagnosed with hydro/cysto- may 17, 2006

            Over growth of lactobicilli found 8/07 treating with doxy.

            Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

            8/22/07- was able to get my first speculum exam, with pap

            Strep D found in bladder with United medical labs May 2006
            2 strains of strep in stool culture 9/06
            high Strep ASO titre found 10/06

            NEW MED

            Capsasin cream-once a day for 20min,
            BUt wont lie it does burn

            About to start valium supositories for PFD

            Trigger point injections- oct 07

            Current meds:
            Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
            Zanaflex 2mg
            IC and low oxalate diet, no sugar diet
            Xanax for appointments to help relax me since they cause so much pain

            Started PT 3/07, PT has really helped me in ways I never knew that it would

            Meds ive tried
            Soma- can barely tolerate half a pill
            Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
            Estradiol cream
            Urelle- caused worse bladder spasm and retention

            Various antibiotics for lyme which caused yeast and made the IC and VV worse

            waiting for the next chronic illness to pop up

            "Did you know?
            Every 15 seconds,
            a person is
            diagnosed with
            interstitial cystitis."
            Source: J. Dimitrakov, MD