Announcement

Collapse
No announcement yet.

Bacteria??

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • mich2604
    replied
    Add me to the list that feels BV caused my IC.

    Frequent urination started on my birthday in october at dinner 2005...but i had vag symptoms before that...(thought it was just part of whatever illness i had....since i was so sick.....later diagnosed as lyme)

    well....I tested HIGH for nitates twice but NO bacteria was found .....went to gyn, she diagnosed BV on the spot ....test was pos for BV. wasnt able to use the metrogel.....cause everything was so tight down there

    given flagyl.......frequency got better and burning subsided........ive never been the same since then.

    I was treating with diflucan because i thought it was yeast before going to the gyn....it helped some symptoms.......so i think i had a combo of yeast/BV due to the lyme disease.


    im on the anti yeast diet now......and nizarol.......i feel better....but not normal.

    I also had a discharge tht i thought was normal for a long while........dont have it now so i dont think it was normal.
    Last edited by mich2604; 07-22-2006, 01:48 PM.

    Leave a comment:


  • jah
    replied
    Good question

    It just makes me think that when patients are given antibiotics over and over again within a short period of time the bacteria mutates and becomes a different organism which does not respond to all antibiotics. The infection is real, the discomfort is real, the symptoms are real, but do not show up under the current detection devices....cultures, dip stick tests. I really think half of painful bladder syndrome is infections. I sure wish doctors would take people with PBS seriously...very frustrating when nothing shows on the Cystoscopy but the pain is there...very frustrating.

    Leave a comment:


  • Lisa_S
    replied
    I started having UTIs last year for the first time at age 26. I had 5-6 of them within a 6 month period. With the last one (which was cultured to show bacteria), my symptoms didn't go away when I started the 3 days of antibiotics. I didn't feel better until I had taken the very last dose. About a month later my symptoms came back and I thought I had another UTI, but the culture came back clean. I've had these symptoms now since January, and my current urologist thinks it is IC.

    Something interesting my urologist told me is that according to a recent study, at any given time, 1 out of 5 women have bacteria in their bladder. However, they don't always have symptoms. I wonder what it is that causes one person to show symptoms and not another?

    Leave a comment:


  • jah
    replied
    I agree 100 percent

    It would be interesting to take a poll of how many ICers have had repeated UTIs. I sure wish doctors would treat ANY bacteria as serious.

    Originally posted by lilac22362
    I think it must be bacteria related. I'm 38 years old and never in my life did I have a bladder infection or problems, until my hysterectomy in Oct.2000. I got a bladder infection gram positive and after 7 rounds of antibiotic's I just showed multiple organisms with small colony count and they do not consider that infection? I knew I had a small bladder so that wasn't a knew thing but I also showed some red spots on distention so there fore got diagnosed with IC. I feel I had red spots due to it was only 6 weeks after my surgery and off course I just had a serious bladder infection. I had a catheter for 2 days and was in and out cath a few times as well. If it's not bacteria then how did I get it from hysterectomy? I honestly have never had a prior problem with bladder until the hyst and infection. I still feel there is infection I believe that some of us do get symptoms from low bacteria and why they won't treat it is beyond me.

    Leave a comment:


  • niki_72
    replied
    oh wow that is weird, we each had the bacteria vaginosis huh? hmmmmmm.... well my opinion is that IC can happen from many different causes...who knows, I know it is frustrating... I wonder if the bacteria of BV can travel up into the urethra and damage the bladder..cause i think i had this BV for a while before I actually got treated..i mean, i kept seeing this dicharge like off -white color, and i thought it was just hormonal or something, but then the discharge starting getting worse, so i finally went to the doctor..

    Can an antibiotic damage a bladder??? who knows

    sometimes i feel like i did something wrong to cause my IC..but all I did was live my life like everyone else, and trust my doctors when i was sick.. maybe they did not catch something..some undetected bacteria...i just dont know
    Last edited by niki_72; 07-11-2006, 02:21 PM.

    Leave a comment:


  • glenda
    replied
    I definitly had the bv issue before and while I started having IC symptoms... I always thought it was related (still do).

    Leave a comment:


  • LoriWithIC
    replied
    You know, that's a good question. I had bacterial vaginosis too when I was first diagnosed with IC. Basically after I had IC, they did a pap smear and caught it then. So I don't know which one started first to be honest. But I took that med (metronidizole) after I was diagnosed with IC. So I'm guessing if either one or the other was the cause, that it would be the bacteria rather than the drug. But it's just a guess on my part.

    I sure do wish we knew more about how IC starts and how to cure it.

    Blessings,
    Lori

    Leave a comment:


  • niki_72
    replied
    hello there my name is niki, I have not logged into this website for like a year, because I just got frustrated to be honest..anyway, I was reading this topic about bacteria, and wanted to mention about my first symptoms of IC. well, one day I noticed quite a bit of discharge from my vagina, I went to the gynecologist. He said I had bacterial vaginosis. He gave me the cream (metrogel) that you insert into the vagina for like a week or something.Then I went back to the gynecologist, and he re-tested me, to see if the infection went away. Unfortunately, he again found that I still had this bacteria. He then gve me metronidizole, (an oral antibiotic). this antibiotic is the same ingredient that is in the gel, but stronger, being it is taken by mouth. I believe from what I remember, this finally cured my problem.

    when I was being treated with this medication, (when I was using the gel) is when I first started having my very first symptoms of IC. I kept having to pee, and I thought I had a UTI. I was saying to myself, "oh ok well i probably have a UTI, it will be cured with antibiotic, no prob" but unfortunately, when I went to my family doctor, my urinalysis came back crystal clean, bacteria free..so I kept having these bladder symptoms. eventually he sent me to a urologist..

    I was given a cystoscopy w/ hydrodistention, and that is when he diagnosed me with interstitial cystitis..this was in 1997.. What my concern is, did my ic start from having bacterial vaginosis? or from the drug metronidizole????????? i wish someone would do a test to see if metronidizole or the bacteria from bacterial vaginosis can cause bladder damage...

    Leave a comment:


  • willoweyes
    replied
    strep infection

    I definitely think IC is induced from an undiagnosed or unknown bacteria. Recently, the doctors found strep in my kidneys. They were freaked. I have had a bad time with strep throat infections; I had five in one year! Now its been found in my kidneys. The really bad thing is that when I would get strep throat infections I did not have classic symptoms. I just felt really tired. Also, I had ulcers for years. Now the doctors know that ulcers are caused by bacteria and they are treated with antibiotics. It is possible that IC is an offshoot of that same bacteria. I think it is just something they haven't learned to identify yet. I also pray that someone will find out what is causing this disease and find out how to stop it in its tracks. I wonder if they find a cure, will our bladders really "heal"?

    Leave a comment:


  • PlainJane
    replied
    Originally posted by chelseahoffman
    I was diagnosed with a UTI, was given strong antibiotics and 6 weeks later I have the same symptoms. I am not going to take another cycle.

    I am taking goldenseal, 1 litre of water, cranberry juice pills and juice and acidophillis. Any more sugestions?

    Could it be yeast in the bladder? Also it comes on when I start ovulation. This is for sure.
    Are you sure that those antibiotics are the right ones for the type of infection you have? I have heard it takes a long time to heal the bladder wall once an infection has gone untreated for months or years.

    It is possible1.) those weren't the right antibiotics 2.) the dose wasn't high enough or wasn't prescribed long enough 3.) your bladder wall hasn't gotten a chance to heal yet.

    Just my ideas though.

    Leave a comment:


  • PlainJane
    replied
    Bacteria

    After two years of being told I had no infection turning up on my urine tests I sent away a sample for broth culture. My test came back positive for group d streptrococci. I also just found out I am positive for Lyme disease which can cause serious IC bladder symptoms.

    I am sure there are bacteria that are getting missed by regular urine tests. Also, most doctors don't think to test for Lyme - none of mine thought to test for it anyway. Also, I've read that chlamydia trachomatis infections get missed a lot by regular general practioners and ordinary labs.

    I think a lot of people are suffering needlessly. Most doctors/labs do not do broth cultures because it is expensive and time consuming. I had never heard of a broth culture until recently. I know there are a lot of docs out there who don't even know what a broth culture is so I'm not alone. If I think too long about this stuff and all the things that go wrong in labs and doctors offices it makes me a little crazy ( I like any excuse to use that emoticon).

    Erica

    Leave a comment:


  • chelseahoffman
    replied
    UTI, anti-biotics, recurring, something else, then?

    I was diagnosed with a UTI, was given strong antibiotics and 6 weeks later I have the same symptoms. I am not going to take another cycle.

    I am taking goldenseal, 1 litre of water, cranberry juice pills and juice and acidophillis. Any more sugestions?

    Could it be yeast in the bladder? Also it comes on when I start ovulation. This is for sure.

    Leave a comment:


  • JOJO
    replied
    SHARON S. I AM REPLYING TO YOUR MESSAGE POSTED ABOUT VAGINAL PAIN AND YEAST. I TOO SUFFER FROM ITCHING AND VAGINAL PAIN,ITS HARD TO EXPLAIN,NOT IN THE INSIDE. YOU MIGHT WANT TO PICK UP A BOOK CALLED THE YEAST CONNECTION AND THE WOMANBY WILLIAM G. CROOK,MD. MY DISCHARGE SEEMS WORSE WHEN IM PREMENSTRUAL AND DURING OVULATION. FREQUENCY IS MY PROBLEM SECONDARY IS PAIN. I CAN RELATE THIS IS ALL SO CONFUSING!!!
    I TOO MIGHT LOOK INTO DR FUGAZZOTTO INTHE NEAR FUTURE. RIGHT NOW I HAVE BEEN DOING ALOT OF READING ON YEAST. THE ELMIRON DID NOTHING FOR ME. GOOD LUCK -JOJO

    Leave a comment:


  • SharonS
    replied
    Hi. thank you all for answering my post. It feels so much better to know that there are people that understand. So many times I feel alone and depressed. Wondering if it will ever stop. I get a few days repreve of symptoms and I often think that it is gone for good. Wishful thinking at best. Any way, The Elmiron gave me worse symptoms then I had before I started taking the drug. I had frequency at night where I literally could not get any sleep. After reading that some are allergic to the outer capsule of the pill and they had the same symptoms, I stopped the drug completely. Now I am on Cypro and Terazol. Which has helped me a great deal but now I'm back in a flare.
    I get this feeling as if I have a cut on the outside of the vaginal area. Does anyone else get this? It is not a cut but actually feels like one. I've used cortisone cream but it doesn not help. I thought that maybe it was inflamed from acidic urine.
    The dr. wants to do the hyroextension, which I had 8 yrs. ago. But I did not have good luck with that either, so I am a bit afraid to try again. For the pain got so much worse after the surgery. Another dr. told me that, if that dr. had not gone in and done the biopsey and extension i wouldn't have the IC now. He said that he most likely aggravated a condition.(which at the time was imflamation)
    I heard of Dr. Paul Fugazzotto. I, in fact, spoke to him on the phone several times. My own dr. is very open to anything I find in reasearch so I know that he will, hopefully, give me the drugs I will need. I have not sent in for my kit yet to dr. Fugazzotto because I have been on the cypro for a couple of weeks. I have to wait until it leaves my system. (which makes me afraid to stop, that my symptoms will worsen).
    I also have a yeast problem that I have had before the IC. Which I am wondering if it could be my whole problem. Some say that yeast can mimic IC symptoms.
    It is all so confusing and fustrating. For finding the right doctor(s) is so very hard. I have a wonderful dr.(uro) but the second I mention yeast he tells me it is not his field. The gyno tells me I have a problem but doesn't know how to cure the yeast thing. She then sent me to a nutritionist that never heard of IC and doesn't know how to rid the yeast. It takes a very long time to clear the yeast completely out of your system.
    I will be sending to Dr. Paul and I will certainly let you know.
    Please let me know if anyone gets this feeling like a cut outside the vaginal area. (it is not from sex or tampons for I can not do or use either)! :-(
    Good health to all of you. And thanks so much for being there

    Leave a comment:


  • Jesi
    replied
    Originally posted by shell:
    It seems completely possible that IC is caused by bacteria, but that the researchers just haven't identified it yet. The researchers who thought certain types of ulcers were caused by bacteria were laughed at until they were able to prove it. Or maybe I'm just too optomistic, I keep hoping for a simple solution, like a magic antibiotic, to be found for all of us.

    Leave a comment:

Working...
X