Announcement

Collapse
No announcement yet.

Cause of IC? Well, My guess stems from my own experience of course!

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    I agree with both Sapp and Darlene...My IC onset was after having several months of extreme stress and anxiety related to a very difficult situation I was dealing with. In fact, it was a matter of weeks after the issue was resolved that the IC started. I had also just started a sexual relationship with my now husband, which for a long time I thought might have been the trigger. Now I do believe that some kind of stress (be it physical or emotional) and genetic tendency is the key. I recently got my hands on my great grandmother's diary from the 60's. We had known for years that she had bladder problems, but after reading her diary, I'm convinced she had IC and that's where mine came from. She had references throughout the whole year about difficulty with her bladder...one entry said that she wishes they would figure out what was wrong with her "bladder and insides" some day. Poor thing!

    [img]frown.gif[/img] Melanie J.
    "The sun shines not on us, but in us." John Muir

    Living a happy life in spite of IC! http://www.ic-network.com/patientstories/melanie.html

    Comment


    • #17
      Has anyone ever wondered if our grandmothers, etc, had to ever have catherization? I just wonder if IC was around when things werent quite so invasive!! Sandy

      Comment


      • #18
        Has anyone ever wondered if our grandmothers, etc, had to ever have catherization? I just wonder if IC was around when things werent quite so invasive!! Sandy

        Comment


        • #19
          I guess everyone is different. When I got IC in 1992 I had never had any pregnancies, surgeries, etc. It just came out of the blue. I had only had one UTI also. Sure, I was under stress but no more so than usual. There are so many different causes of this horrible disease; I guess that is why progress on its cause is taking so long. My prayers to all of you!

          Comment


          • #20
            7 years ago I had a hysterectomy that went terribly wrong...I ended up hemmorraging and had to go in for a second surgery within 2 days to remove 2 liters of blood from behind my right lung.Most of my life I have had Scoliosis and Fibromyalgia...and about 50% of my life I have had a tremendous amount of stress, two family members dying within a year of each other ...etc etc but I recovered and that was that till a few years ago I got married and my sex life was consistent...then the Bladder Infections started one after another with blood mixed in...I asked my Dr if I could be getting them from my husband he said no when I got my husband to shower before sex things went ok... and when the bladder infections stopped I still had the symptoms...Urgency, pain , discomfort, itching , burning, so I requested to see a Uro...and he did a cysto and since then the pain has increased and so have the meds. When I got this I don't know...how I got this I can only assume...when will they find a cure...I hope very soon.
            <img src="graemlins/banghead.gif" border="0" alt="[banghead]" />
            SO HERE IS A <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" /> FOR EVERYONE!
            Don't let the Bastards grind you down!!

            Medical Background

            Fibromyalgia
            IC
            Scoliosis
            Disc Disease
            Disc Degeneration
            Herniated Disc
            Had a Hysterecomy
            Had Rectocele Repair..couldn't repair it all

            Medications

            Cyclobenzaprine-10 mg 1 tab 2x`s a day
            Topimax-25 mg 1 tab morning-1 tab bedtime
            Mirtazaprine-30 mg 2-bedtime
            Citalopram-20 mg 1-bedtime
            Cemetidine-600 mg 1 tab 2x`s a day


            Darla

            Comment


            • #21
              Hello there,

              One day I started to noticed I had alot of pain in my bladder and I had alot of urge to urinate every 5 to 10 min. I went to the doctors and He then tested me for infection of the blader and that test came back that I did have an infection. I took some meds for that infaction and two weeks went by and still I had the same pain. I went back and the doctor tested my urine and it was clean and thats how I think I got IC. I think that my bladder infection was the couse of my IC.

              Antoinette,

              Comment


              • #22
                This is really interesting. In my case, I was in high school. Don't remember a lot about it now, but always stress in high school. But 10 years earlier when I was around 6 and 1/2 I had a massive infection in my pelvic area. They thought it was appendix but that ended up normal when it was checked after surgery. I got the records and there was infection around my bladder and female organs. They put a million units of penicillian in the cavity before they closed me up and then I remember the 40 shots of penicillian for the next 10 days in the hospital. I am allergic to penicillian(sp) now and really don't know if that incident in my life had anything to do with developing IC later when something else triggered it. I can tell you though that stress is definatley a trigger for me now.
                Jolene

                "Life is what happens when you are making other plans" John Lennon

                IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                Information for Patients can be found here.
                http://www.ic-network.com/patientlinks.html


                Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

                Comment


                • #23
                  I think we probably are the genetic "sensitives" whose bladders can't repair themselves. I always felt mine was caused by 1st bladder infections, being treated repeatedly with antibiotics even when no infection was present, and long term therapy with nitrofuradantin.
                  We can help one another here. Sue

                  Comment


                  • #24
                    Hello, I'm very new to this site but I would like to give you my thoughts on the cause of this life long unwelcomed visitor. I have suffered with Cystitis since 2 years old and I am now 38, so plenty of time to relflect on the problem. I have recently suffered the worst symptoms ever and have undergone a totally different approach to this problem and truly believe that YEAST and PHYCOLOGICAL factors are the main culprit. I know that the Yeast factor is somewhat controversial with a complete change of diet omitting Yeast, sugar, fungi and also the phycological point, but they do say that we tend to hold all our fears, worries, doubt and guilt inside us. I think who ever said this was speaking some truths. When we start to seriously analyse our lifes then some unsolved bits start to float to the surface. I only say this because I have tried every other road and this is the only one that I am making any progress with.
                    Thanks

                    Comment


                    • #25
                      Please, especially anyone new to this site---Do not think you have psychological problems!!! Doctors have made IC patients feel that way for years. We don't need to do this to ourselves, too. <img src="graemlins/kissing.gif" border="0" alt="[kissing]" />
                      We can help one another here. Sue

                      Comment


                      • #26
                        Sue, you are soooo right. Back in 1975 when I was diagnosed it was common in the medical community to consider IC as a "disease of neurotic women." It has taken many years and a lot of research to dispel that belief.

                        Stress and psychological factors may effect our IC symptoms, but they do not cause us to get IC in the first place.

                        I tend to think in terms of a trauma relation, since I had two major abdominal surgeries and developed IC soon after.

                        Sending healing thoughts,
                        Donna
                        Stay safe


                        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help: http://www.ic-network.com/patientlinks.html

                        Sub-types https://www.ic-network.com/five-pote...markably-well/

                        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        [3MG]

                        Anyone who says something is foolproof hasn't met a determined fool

                        Comment


                        • #27
                          I think the abdominal surgeries must play a big role, seeing how many of you had your i.c. start after one. That is how mine started. I had never had any bladder problems, no uti's or anything wrong with the bladder except stress urinary incontinence. I had a bladder suspension surgery in late November, and in January I had the first onset of i.c. symptoms. I believe that somehow the surgery was instrumental in starting it, but obviously everyone who has a bladder suspension doesn't develop i.c., so there must be other factors probably genetic.

                          Comment


                          • #28
                            I had my uterus removed when I was 24 but I was having bladder and urethra problems way before then. The Dr. said very soon I needed surgery on it so I had that done at 26. I feel all the females surgeries made it worse though. They removed a ovary at 25. I have always been sickly and I just hate it. Hugs <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />

                            redstonebef

                            Comment

                            Working...
                            X