I am going to have to start by saying that if I had any real knowlege of the cause of IC, I wouldn't be working and running to the bathroom every few minutes, but I would be headlined on the IC-Network page as a hero! So, just to set the record straight right from the get-go - these are only my guesses.
I was diagnosed the first time right after I had been through a surgery where the recovery room people removed my catheter before I woke from surgery. I didn't pee for almost 20 hours, even though I had received to complete bottles of IV solution. After threatening to phone my doctor at home at 5 in the morning, the nurse in charge came in and was going to just cath me long enough to 'drain' me. When she saw how much pee was in me, she was irrate! When she found out how long it had been and that I had requested a catheter the previous shift, she was even more upset and in fact, catheterized me for the remainder of that day. Soon after, I had trouble 'holding' it. I leaked, and I had terrible pain in the mornings. Unfortunately, this was about 15 years ago and the urologist I saw back then only told me that I had IC, and gave me a list of foods to avoid. No return visit, no understanding of what I had.. just don't eat these foods... Period!
Now, years later,. but several years ago, I started having very similar problems including terrible pain when I urinated. I didn't want to return to the 'helpful' urologist of 15 years ago, so I found a new one and he is a wonderful doctor! He did the hydrocysto and not only diagnosed a very severe case of IC with ulcers, but also did the biosy to rule out cancer. I am very blessed that he has treated me with elmiron, and DMSO treatments, as well as a few other meds for comfort. [img]biggrin.gif[/img]
So, my guess is that a mistreatment of the bladder can proceed the onset of IC.
I also have asked and wondered if those women you 'wipe' back to front, could be causing bacteria and eventually this problem... but since it isn't supposed to be a bacteria problem, I guess that would get ruled out quickly. [img]confused.gif[/img]
Just a little food for thought, but I would be curious how many others have experienced a surgery room "ooops" [img]mad.gif[/img] before the onset of their IC.
I was diagnosed the first time right after I had been through a surgery where the recovery room people removed my catheter before I woke from surgery. I didn't pee for almost 20 hours, even though I had received to complete bottles of IV solution. After threatening to phone my doctor at home at 5 in the morning, the nurse in charge came in and was going to just cath me long enough to 'drain' me. When she saw how much pee was in me, she was irrate! When she found out how long it had been and that I had requested a catheter the previous shift, she was even more upset and in fact, catheterized me for the remainder of that day. Soon after, I had trouble 'holding' it. I leaked, and I had terrible pain in the mornings. Unfortunately, this was about 15 years ago and the urologist I saw back then only told me that I had IC, and gave me a list of foods to avoid. No return visit, no understanding of what I had.. just don't eat these foods... Period!
Now, years later,. but several years ago, I started having very similar problems including terrible pain when I urinated. I didn't want to return to the 'helpful' urologist of 15 years ago, so I found a new one and he is a wonderful doctor! He did the hydrocysto and not only diagnosed a very severe case of IC with ulcers, but also did the biosy to rule out cancer. I am very blessed that he has treated me with elmiron, and DMSO treatments, as well as a few other meds for comfort. [img]biggrin.gif[/img]
So, my guess is that a mistreatment of the bladder can proceed the onset of IC.
I also have asked and wondered if those women you 'wipe' back to front, could be causing bacteria and eventually this problem... but since it isn't supposed to be a bacteria problem, I guess that would get ruled out quickly. [img]confused.gif[/img]
Just a little food for thought, but I would be curious how many others have experienced a surgery room "ooops" [img]mad.gif[/img] before the onset of their IC.
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