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  • Surgery

    I had a hysterectomy followed by both ovaries removed 3 years later. That's when it all started. Not a single problem before then. makes me wonder if my bladder was injured somehow during surgery. Or is this all hormone related? I take Evamist estrogen replacement and my levels are good. I do have really bad allergies and am sensitive to everything on the planet which must play into it. I still don't understand why this has happened, why I have periods of remmission and then WHAM parties over!! Flare time
    I'm Perfectly Imperfect and Praying for Remission

  • #2
    I developed IC following a hysterectomy. I honestly think that I probably had it before then, but the trauma of the surgery made it show itself big time.

    Stay safe

    Elmiron Eye Disease Information Center -
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    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool


    • #3
      My IC started directly after a hysterectomy'


      • #4
        My mother has OAB really bad and she said it started after her hysterectomy too and got even worse after they made her quit taking oral hormones.
        She is doing the interstim trial and so far is thrilled with it. I guess she will have the real thing put in in a week or two.

        Gelnique for frequency/urgency - works great
        Macrobid after sex
        Prilosec, continuous birth control pills
        synthroid .088mg, mucinex-d, restasis

        Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

        Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

        IC Diet Link:
        AUA 2011 Guidelines to diagnosing and treating IC overview-
        AUA 2011 Guidelines to diagnosing and treating IC PDF:
        Great treatment flowchart on page 19 of the pdf


        • #5
          I can't really remember when I started to develope IC; I know I have having UTI symtoms in my late teens to when my eldest was born, had a c-section with him. It wasn't till I had my youngest that the IC was showing its ugly head; however it took 5 years for the doctors to figure out what was wrong with me.


          • #6
            I've never had any kind of surgery. My IC began after a succession of extremely nasty UTIs.

            My theory is that it's there, and it waits for a traumatic event to set it off.

            "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."


            • #7
              Hi, Flowerchild ~ I never had any bladder issues until after my hysterectomy/bladder suspension surgery. I truly believe it all started as soon as during my recovery period....Immediately painful urge and frequency.
              I still don't understand IC or bladder issues either. It seems to have a mind all of its own and rears its ugly head whenever it feels like it.

              Prayers that you'll feel better soon and that this is a lovely week for you,
              Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found can you...keep the hope.

              11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
              8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
              8/2010 Surg gallbladder
              TREATMENTS (updated 4/15)
              IC Diet since 8/2009 (Able to vary 4/15)
              Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
              Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
              Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
              *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
              Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
              PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret