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Elmiron for those with no insurance/low income

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  • Elmiron for those with no insurance/low income

    Hi, I wanted to share how I was able to get my Elmiron free for a year. I don't have heath insurance and as you probably know Elmiron is very expensive.

    Go to this website:

    Go to patients and there is an eligibility tool to see if you may be eligible. You need to make under about $20,000 a year and have no prescription coverage (or at least no coverage for the medication you're applying for). If you don't meet these qualifications they will give you other suggestions that may be able to help.

    If you qualify for the free medication, don't submit the form online - I submitted mine online and they don't even look at it. You have to print out the form, fill it out and take it to your doctor for them to fill out their part and fax or mail the form. If you qualify you'll get a prescription card to take to your pharmacy (give it to them before having your prescription filled) and you'll have a $0 copay for a 30 day supply for a year. You can reapply after a year.

    If you have any questions feel free to ask. I also work at a pharmacy so if you have any trouble with the pharmacy end I may be able to help you out too.

    Good luck!

  • #2
    I still haven't been diagnosed but as I've said many times, I suspect I have IC. I actually have my first urologist appointment tomorrow.
    I am gonna bookmark that link because I have no nsurance whatsoever. THANKS!

    -Started having symptoms in May 2009.

    -Doing pretty well on diet alone.


    • #3
      Thank you for sharing this information.

      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        You're welcome!

        Good luck baaaby!


        • #5
          Thank you so much for posting this, I'm going to try this right now! I don't have coverage for prescriptions and elmiron is wayyy too expensive for me to try w/out help. I thought I'd be able to do without it, but after 8 months of trying every thing I can afford with no success at all, I would really really like to start the elmiron.
          IC symptoms since Dec. 12 2010 after confirmed bladder infection "never went away." Recently also diagnosed with PCOS, piriformis syndrome, and pelvic floor dysfunction, sinus issues. I was in great health before fall 2010.
          Current medications: citalopram 40 mg, valium 2.5 mgs a night, lidocaine patch (for back pain), Prelief
          Therapies tried or continuing: stretches, walks, baths, internal massage, physical therapy, IC diet, IF unit, heating pad, mindfulness based stress reduction classes, cognitive therapy, books on IC and pelvic pain...

          Drugs Tried: the urinary analgesics, 4 kinds of muscle relaxants (including in suppository form), hydroxyzine, 3 kinds of TCA's, lyrica, cymbalta, 6 months elmiron, vesicare, antibiotics, prednisone (after sinus surgery), NSAIDS...
          Supplements: over 20 herbs and supplements, including regimens from TCM practitioner and a naturopathic MD
          Intravesical/Surgical: 3 instills of Uracyst, 2 “rescue instills” lidocaine, bicarb, elmiron; 1 self-instill of marcaine, a steroid, bicarb and heparin; 1 hydrodistention and capsaicin instill (made me worse, still recovering two months later...)
          Other: Acupuncture treatments, magnets (LOL), Anti-Candida Diet (2 months), Wheat free diet, water pH


          • #6
            You're welcome Dani, good luck, hope it works for you!!


            • #7
              They told me I make too much to qualify ($14K a year). Really? I sent in an appeal anyway but I still haven't heard back. I think it's because I have private insurance and they 'pay' for prescriptions (instead of $600 I get to pay $500 -- thanks a lot!).

              But I hope it works for at least some of you!


              • #8
                Yeah, you have to have no prescription coverage. I thought you could make up to $20,000 a year to qualify though, so I don't think it's your income, I don't know why they'd say that. I know it sucks though that even though your meds are still ridiculously expensive, you can't get help.