Announcement

Collapse
No announcement yet.

Elmiron

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Elmiron

    I just decided that I am not going to take my Elmiron any more. I have been approved for free Elmiron for one year and they are several more monts left.
    Last edited by ICNDonna; 03-10-2010, 02:59 AM.
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Symptoms since 2005
    Diagnosed with IC october 2009 via PST

  • #2
    Elmiron can take up to a year to help --- if you aren't having side effects, I suggest you continue taking it.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I would like to know how you are getting Elmiron free. It is so expensive. I just started taking it and am not sure how long I will due to the cost. I would love to try and see if I could qualify to get help on it. Any sites for help would be appreciated.
      God Bless,
      Lynette

      Current treatment:
      Elmiron 100mg TID
      Elavil 10mg QHS
      Enablex 7.5 mg QD
      Heating Pad
      IC Diet
      Lortab 7.5mg PRN
      Synthroid 100mcg QD for hypothyroidism

      Comment


      • #4
        I see you delite important part from my thread. I want to know what is the legal way to donate medication. ?
        I have reason to not take Elmiron any more .


        P.S To get Elmiron for free You can try to apply for their patient accistance program.Here on the site have more information. Another very helpful program is TogeterRXaccess . The second one was very helpful for me before I was approved from JenssenOrtho. http://www.togetherrxaccess.com/Tx/jsp/home.jsp
        Last edited by sofirus; 03-10-2010, 07:30 AM.
        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        Symptoms since 2005
        Diagnosed with IC october 2009 via PST

        Comment


        • #5
          Hi Sofi,I got Elmiron through the patient assistance program too.I was so happy when I was approved but I soon found out that Elmiron was not for me either.I tried it 2 separate times.Each time it caused severe anxiety and heart palpitations.This must really be a rare side effect because I have mentioned this before and I think I only got one response saying that this happened to them.

          I am trying Atarax right now.I've only been taking it a week so I don't know if it's helping or not.Maybe you could ask your doctor about this medication to see if it's right for you.This medication is very inexpensive too.

          My main problem is frequency.I wish something would help soon.

          I hope you are doing well.

          Duana

          Comment


          • #6
            Hi, Duana. I hope that Atarax will help you. I tried it for three months with no change in my symptoms.Right now I am on no treatment. No diet ( it does not make any difference for me ) , no medications, nothing ...and sometimes I feel even better than when I was on some treatment like bladder instalations-they are just not for me. Thank god I do not have a lot of pain so I do not need pain killers . My frecuency is betwen 30-47 times per day and this is if i go every time I feel I have to go,.but Usually I will hold it for hour .
            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            Symptoms since 2005
            Diagnosed with IC october 2009 via PST

            Comment


            • #7
              Hi Sofi,how long did you try the diet?The diet has helped me only a little but I will take any improvement.I am like you,having the frequency as my main symptom but mine is not as severe.I know what that "gotta go"feeling is,even if you have just went.I try to stay away from acidic foods and coffee,tea,and pop.Some things that I think are okay to eat,still increases my frequency.Sometimes I get a burning feeling too.Does baking soda in water help you at all?It helps me some.

              Take care,

              Duana

              Comment


              • #8
                Duana - it is interesting you mention the heart palpitations with Elmiron. I have been taking 300mg/day for almost a year and get frequent palpitations. They used to come and go but lately I get them every day. A month or so ago my palpitations were not happening much at all, and my uro put me on a trial of hydroxyzine. I did tolerate it well but noticed the palpitations came back, so stopped taking the med. Now I still get the flutters and wonder if it is indeed the Elmiron. I have a physical scheduled soon so will definately ask my doc. By the way, even after one year on the Elmiron, I can't say I've noticed an improvement, but then again, how would I know? The majority of my pain and pressure is diet related, so I am not sure how to tell if the E is working or not. Sorry I went off topic a bit there!
                Pat

                Comment


                • #9
                  heart palpitations, elmiron?

                  Hi - I hope GPat sees this as this is continuing an old thread.
                  I'm looking for some help with this. I noticed that you and duana mentioned elmiron and heart palpitations. I was getting some before I started elmiron about 6 weeks ago, as I always had a few, but not so bad. Since I started Elmiron I think they are way worse. In fact I just wore a heart monitor to check it out but don't have results yet. Today I stopped elmiron even though heart palpitations are not listed as a side effect. I was wondering if you really both believe elmiron really caused you to have palpitations and if so, did stopping elmiron make them go away and how long did it take them to stop after you stopped elmiron (that is if you stopped). I'm under a bit of stress now so that could be a contributing factor, too. Thanks for any info. I think doctors don't know.
                  I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

                  Comment


                  • #10
                    Are you on any other medications? I noticed you are taking some herbals, which can also be a problem. I really think you should see a physician ASAP.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      doc no help

                      This should be in another thread but the monitor showed palpitations frequent but "not worrisome" and the nurse said to see the doc but I don't hava an appt to the 19th. I think the doctor should have called me - not the nurse who could not answer any questions. Don't know if to stop elmiron or not.
                      I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

                      Comment


                      • #12
                        Yes,elmiron made my palpitations way worse.

                        Comment

                        Working...
                        X