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no help in Tri Cities area.Tennessee

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  • no help in Tri Cities area.Tennessee

    We were hoping the governors bill would pass.But the wealthy,powerful, men refused. Luckly my wife gets elmiron free,but 3 months no help with pain.I give her my pain meds but she has real bad pain.Don't go to a OBGYN here in Johnson City.They are crackpots.I just ordered my wife some dmso,for internal use,sounds promising.We have tried, marshmellow root,coral calcium,potassium,antihistamines,she took so much AZO that last year she had a bleeding ulcer,lost 4 pints of blood.It has healed now.She got a perscription for a anti pee all the time medicine.She did rest some last night.She has had this since 1998,she never gets more than 2 hours sleep because of pain. she will be 64 this year,and is on social security.Our daughter died this year,and left her 3 children 3,4,and 6 behind.We have the 6 year old,the father is a drug addict.These are trying times for her.Any info would be helpful.Oh yes repeated E.Coli infections.She is a very clean woman,was asking yesterday,since she had a histo in 1988, could there be a bladder intestine adhesion.

  • #2
    Re: no help in Tri Cities area.Tennessee

    Any time there is a surgery, there's a possibility for adhesions --- and sometimes they are difficult to diagnose. When I was first diagnosed with IC (1975) I also had adhesions, but they had grown so smoothly they couldn't be felt. My physician finally did an exploratory surgery on me, found and treated the adhesions, and they haven't been a problem since.

    Is she following an IC diet? If not, I suggest you go to the link in my signature below and print out the food list there. There's also a link to the American Urology Association Treatment Guidelines there so you might pick up some treatment option ideas that will help.

    Sending encouragement your way,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: no help in Tri Cities area.Tennessee

      yes we have eliminated all acid triggers.She is taking calcium to control stomach acid,A antihistamine,Tramadol 4 50mg,Loratab 10 m9. 2 a day.Emitrol 3 times a day.Applecider vinegar one teaspoon a day,and msmo one teaspoon a day.We just started the msmo and vinegar friday,it seems she's more active.As she was staying in the bed crunched up with pain.

      Comment


      • #4
        Re: no help in Tri Cities area.Tennessee

        I don't know if this will help, but my Uro did a fellowship in female voiding issues at Vanderbilt Medical Center in Nashville - so I know there are people in their Uro department who are very knowledgeable in IC.

        Comment


        • #5
          Re: no help in Tri Cities area.Tennessee

          yes I would like to know how much they charge to look in the bladder.For all we know she might need repair.

          Comment


          • #6
            Re: no help in Tri Cities area.Tennessee

            Originally posted by oldsinner111 View Post
            yes we have eliminated all acid triggers.She is taking calcium to control stomach acid,A antihistamine,Tramadol 4 50mg,Loratab 10 m9. 2 a day.Emitrol 3 times a day.Applecider vinegar one teaspoon a day,and msmo one teaspoon a day.We just started the msmo and vinegar friday,it seems she's more active.As she was staying in the bed crunched up with pain.
            Most people with IC have a problem with vinegar --- I know I can't have it at all. If you look at the food list at the link in my signature you'll see that vinegar is on the list of foods to avoid.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Re: no help in Tri Cities area.Tennessee

              Yes some people with I.C. have no problem.Some suggest that it weakens the hydrocholric acid in our stomachs.But I told her to stop,and we will see what the dsmo does.I feel she has had it so long,that she might need bladder repair.But a urologist won't see her,because of no insurance.

              Comment

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