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  • Back from my intake interview

    Today was my intake interview. I had to go down to the Social Security Office, and sit for two hours with a man who appeared to be typing in all my answers from the form, then scanning the same form There's actually not all that much to report. He just takes the information in, and sends it off to the Disability Determination Office, where they look at the medical evidence that I submitted, and they will be interviewing me again by questionnaire, apparently.

    You have got to love the government. I was told I would be receiving a Denial letter immediately for SSI benefits (that's the poverty program), which I did not and am not and could not possibly apply for. But apparently there's a rule, that I have to be denied that first before they consider my SSD application. Then the other wacko government rule was: Medical records from one of my doctors could be scanned and emailed over to the other office, but the other doctor's records had to be mailed, because there's a rule that you can only scan 20 pages of records per doctor. This is idiotic because the only cost to increased scanning would be disk storage space, which is incredibly cheap. So they'll mail this, and then the next office will probably photocopy it, and the whole thing will cost more money, but at least it will have been done according to regulations!

    So I feel pretty relaxed right now. I've done everything I can do for the moment, and I probably won't hear from them for about a month, and that won't be a determination either. Nothing for me to do but sit here and collect the short term disability until it runs out in the end of April. There ought to be an icon for "twiddling thumbs."
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

  • #2
    the waiting game lasts forever, I did not hear anything form they time I replied in august, until I got the approval letter in December.
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3
      Carolyn, I know this can all be aggravating and to us stupid but hang on. I think we all have to fight for things, and be that fighter, don't stop until that last of it. Hang in there.

      Sending hugs, Trishann

      Comment


      • #4
        Carolyn,

        Wow...isn't the government grand??? It would seem with all this time and money they are wasting, they could approve everyone that really does deserve the SSD. Just the fact that you had to waste your time and energy driving to the office, to sit there while some guy wasted HIS time by typing AND scanning in the documents that YOU already filled out...and then they are going to send you ANOTHER form that will likely contain the same information that you've already filled out, Worker #1 already typed in and scanned in and sent to this mysterious "other" office.

        Anyway, I'm glad the stress of this interview is off of you now. Try to get some rest today!!!

        ~Claudia

        "A heart is not judged by how much you love; but by how much you are loved by others."
        ~ The Wizard of Oz

        "If I ever go looking for my heart's desire again, I won't look any further than my own
        back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


        Comment


        • #5
          Glad you got that part over with. I agree, it does take a while to get approved, but at least you have the ball rolling now. I hope things move quickly for you!!

          Hugs,
          Amy

          Comment


          • #6
            Carolyn,
            I hope things go a little quicker for you also. In my case, it took nearly 6 whole months to get my first denial letter. And only about 30 days to get the second. Then a couple of years to get a hearing date! It's such a crock!
            One thing I was told (and I'm glad I was) is that you don't ever even have to go into the office. You can do everything over the phone, even the interview parts. The only times I ever went in were just to put things in a drop box and leave. Of course, I went to my hearing, but it was in another town.
            I hope you find out an answer soon! I know how frustrating the waiting can be!
            Elle

            Comment


            • #7
              I'm sure you guys know this already, but even when it takes SO long to get to a hearing and get approved, I believe you are entitled to back pay from when you initially filed the claim.

              ~Claudia

              "A heart is not judged by how much you love; but by how much you are loved by others."
              ~ The Wizard of Oz

              "If I ever go looking for my heart's desire again, I won't look any further than my own
              back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


              Comment


              • #8
                Sorry you had to go through all of that today, but hopefully it won't take them too long to get everything approved.....keeping my fingers crossed!!
                Miss Bessie

                Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                Comment


                • #9
                  Thanks, everyone. I'm really not bothered. I know I've mentioned that my older sister is a disability lawyer, so I had a fairly clear understanding of the process from the start, and I expect to be denied initially just on the statistics: They deny something like 92% of initial applications. I was just stupified that I have to be formally denied SSI, which I did not even apply for. What a waste of resources!

                  I am very fortunate that my husband's salary will carry us easily until they decide to pony up, and I do think I'll win in the end. After all, I genuinely do qualify based on their standards, and I have a great lawyer who works real cheap!
                  Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                  Wishing you happiness and good health, and all the best out of life.

                  Peace, Carolyn
                  ___________________________________________________

                  Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                  On the Beach with IC

                  Comment


                  • #10
                    How does this SSD work?

                    I noticed from time to time women on this site posting info regarding the status of their claims. I assume this has to do with not being able to work any longer, or at the level you once used to. I am starting to accept the fact that I may not be 'on the stage' ever again. It makes me sad, but I can't do anything about it. It would be nice to have some recompensation for not being able to work at what I used to love doing.

                    Any info would be appreciated!

                    Danita
                    Dani


                    -Bladder surgery to correct reflux-'68
                    -Terribly painful periods, [email protected] 13 (most likely due to endometriosis, no dx then)
                    -4 gyn surgeries since 2003 to remove cysts, ovaries, endometriosis and uterus
                    -DX'd w/I.C. before 3rd gyn surgery, but sure I've had it since childhood
                    -Gastrointestinal allergies to nuts and shellfish - {I would like to know if there is some connection of gastro allergies to I.C.?}
                    PTSD (sexual abuse by teenage boy when I was 4 and s. abuse by adult male who was friend of my Dad's - my parents still don't know)
                    -DX'd with IBS in 2000
                    -Rhabdomyolysis in 2001 (has not returned)
                    -DX'd with Eosinophilic Esophagitis (Asthma of the Esophagus) 3/07
                    -DX'd with TMJ in 2000-wear splint
                    -Hydrodistention and Cystoscopy w/ biopsy of tissue in bladder-2003
                    -DX'd with Epilepsy -2000
                    -SSS (Selective Sound Sensitivity)-wear earplugs most of the time to screen out certain noises
                    -DX'd with Fibromyalgia (2006)

                    Medications:MS [email protected],Hydrocodone-10/650:up to 4day,Levothyroxine,Soma,Clonazepam,Vesicare,Keppra (anti-seizure),Flovent FHA 220mcg (swallowed for E.E.),Elmiron,Instillations-5+per week for flares,Lidocaine,Cysta-Q,Prelief, Dulcolax,Baby Aspirin(for FM),God blessed me w/2 boys: Devin-14 and Logan-9, Jim, my husband of 18+ years who sort of understands what I.C. is...still working on educating him!, my springer spaniel "Wookie" ('cause he makes sounds like 'Chewbacca' from "Star Wars" when my son plays with him) and the most important 'medicine' of all...PRAYER...because ONLY God knows the answer to why we are all going through this awful I.C.!

                    Comment


                    • #11
                      Go to www.ssa.gov.
                      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                      Wishing you happiness and good health, and all the best out of life.

                      Peace, Carolyn
                      ___________________________________________________

                      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                      On the Beach with IC

                      Comment


                      • #12
                        Hey Carolyn,

                        I am glad things went sort of ok. Sorry I did not call...but my last epidural was yesterday and I was hyped on anesthesia all day. Call me if you want to chat.

                        April
                        Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

                        Comment


                        • #13
                          Hey Carolyn,

                          What's up with your PM box. I tried sending you something I really don't want to post. It said you have chosen not to receive them or either can't. Is your box full again? Please let me know this is some important stuff, ok. Some of it includes Social Security Disability information personal to you and me.

                          April
                          Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

                          Comment

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