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  • #1

    Long term disability company sending me to their dr

    Does anyone have any advice for me?

    I know the dr I am going to probablly wont know about IC, PFD and VV. Im so beyond depressed right now. I just dont know how they think that i can work. Im on my period and the burning is just inhumane


    thanks


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD
    Tags: None
  • #2
    I just got back from seeing a Dr. the long term company sent me to. The Dr. was very smart and said he was recommending me to get disability based on all the information that he had and from the state of depression he saw in me. This is the last step before the "disability" review board decides ya or nah.

    Laura

    Comment

    • #3
      May I ask which insurance carriers you all have?
      I have The Hartford and am filling out my claim forms right now.
      Wendi
      IC symptoms began in 1975; diagnosed in March 2006.
      Other conditions: PFD, Migraine, VV, Total Abd Hysterectormy on 12/27,06 for Cervical Cancer, Fibromyalgia.
      Current Daily Meds: Roxicet, Methadone, Flexoril, Flomax
      I use Prayer, Yoga, Relaxation Breathing and TENS to help relieve stress, anxiety and pain- LOTS of make up to hide my true identity!

      myspace page:www.myspace.com/armslee

      Comment

      • #4
        redfearn thats good to know, if only i will be that lucky. Seems i look healthy to most dr, and i doubt she will be looking at my inflamed vulva.


        I have Cigna ins.
        Last edited by ICNDonna; 03-08-2007, 02:40 AM.


        Lyme disease diagnosed 11/05
        vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
        IC diagnosed with hydro/cysto- may 17, 2006

        Over growth of lactobicilli found 8/07 treating with doxy.

        Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

        8/22/07- was able to get my first speculum exam, with pap

        Strep D found in bladder with United medical labs May 2006
        2 strains of strep in stool culture 9/06
        high Strep ASO titre found 10/06

        NEW MED

        Capsasin cream-once a day for 20min,
        BUt wont lie it does burn

        About to start valium supositories for PFD

        Trigger point injections- oct 07

        Current meds:
        Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
        Zanaflex 2mg
        IC and low oxalate diet, no sugar diet
        Xanax for appointments to help relax me since they cause so much pain

        Started PT 3/07, PT has really helped me in ways I never knew that it would

        Meds ive tried
        Lyrica
        Klonopin
        Singulair
        Claritin
        Pyridium
        Soma- can barely tolerate half a pill
        Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
        Estradiol cream
        Urelle- caused worse bladder spasm and retention

        Various antibiotics for lyme which caused yeast and made the IC and VV worse

        waiting for the next chronic illness to pop up


        "Did you know?
        Every 15 seconds,
        a person is
        diagnosed with
        interstitial cystitis."
        Source: J. Dimitrakov, MD

        Comment

        • #5
          Please dont worry. Most people will weigh the opinions of the the Drs you have been seeing for YEARS much more heavily than the opinion of someone you have seen one time. I know you are worried, but I will be praying for you. You will get thru this. I just know it.

          Many hugs,
          Amy

          Comment

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