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I got it!!

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  • I got it!!

    Wow. I can't believe it. I got the letter today; I have been approved for SSD benefits. I only applied about 4 months ago. I haven't even had time to accrue any backpay. I should get my first check around May 17. Wow.

    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

    On the Beach with IC

  • #2

    That is great news. I have been meaning to ask you if you had heard anything. I am so happy for you!



    • #3
      Wow Carolyn, that's great! Is this your first time applying?? I'm so happy for you!

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #4
        :woohoo: you were one of the 15% that get it first time. So glad you didn't ahve the long drawn out process.


        • #5
          How wonderful!

          Diagnosed August 2001

          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


          • #6
            Thats so great!!!!!!!!!!!:woohoo:

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

            Link to Patient Handbook:

            Diet Reference Sheet:

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


            • #7
              :woohoo: WoW! This is Awesome! I had no idea that you werent already on it! I was thinking that you had already been on it for a while! But, this is great! I am so glad they approved you right off the bat and you didnt have to go thru the whole stressful ordeal of denials, appeals, and judges and all that! You are very, very lucky! Congratultions!!!!!



              • #8
                woohoo how awsome. I got mine first try too and was shocked. Everyone told me how hard it was to get on it, and I would have to appeal. I am glad you didn't have to fight. I wish it was like this for everone.
                'The will of God will never take you where the Grace of God will not protect you.'


                • #9


                  • #10
                    Yeah -- I wish it was like this for everyone, too.

                    Amy -- I was on short-term disability from my state, for six months, which took me straight into the SSD benefits. I really am fortunate.
                    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                    Wishing you happiness and good health, and all the best out of life.

                    Peace, Carolyn

                    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

                    On the Beach with IC


                    • #11
                      YEA!!! That's great!


                      • #12
                        That's AWESOME!
                        current meds:
                        cytotec 200mcg twice daily

                        ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

                        dx: hashimoto's thyroiditis 1998
                        dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
                        dx: endometriosis 2003
                        dx: innapropriate sinus tacchicardia 2005

                        meds tried but failed:
                        elavil (6months)- severe tachycardia
                        elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
                        a bunch of others

                        Me and my best friend's baby (also my Godson!)


                        • #13
                          WOW! That is fantastic! I'm so happy for you

                          There can not be a crisis next week. My schedule is already full.

                          March 2006 IC tested positive

                          current treatments for IC:
                          Zoloft 100mg
                          tramadol hcl 50mg (4-8 per day)
                          diphenhydramine (1 nightly)
                          elavil 25mg, Just started Nov 11

                          additional meds for pain if needed:
                          tried Elmiron for over year and didn't see much of a change, gained weight

                          Also take Lisinolpril for high blood pressure

                          Other conditions:
                          IBS '93
                          depression '94
                          stomach ulcers '95
                          Mitral Valve Prolaspe Syndrome '01
                          Migraines since childhood
                          Chronic Fatique '03

                          It's not the number of years in your life that matter but rather the life in your years.


                          • #14
                            Congratulations!!!!!!! :d


                            • #15
                              That's so awesome...I am so glad you haven't to go through THAT bs and humilation. Congrats to you...
                              I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                              Medications I CURRENTLY take:
                              90 mgs Ms contin (45 mgs Am/PM)
                              Percocet as needed
                              Topomax 100mg day
                              Ambien 10 mg bed
                              desipramine 25 mgs

                              If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                              Albert Einstein