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I was just denied by the state of mass for a handicap plate even with my doctor's letter saying I could not walk 200 yards without assistance and i needed immediate access to buildings I am very frustrated where i work i have to park and take a shuttle it is very hard when I need to pee any suggestions???
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I don't know, are the handicap plates and placards handled through the Dept of Transportation, they are here in PA. I would check the website and see if there is a way to appeal or call their customer service and see if there is anything else you can do.
I looked into it for myself just in case because it can be really uncomfortable at times. You have to meet one of the pre set reasons that they list and if you don't you can't get one. I don't think I fall under all of them so I haven't even bothered to ask my dr. Hope you can figure something out.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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do you park in your companies parking lot? If so, i would ask them special permission to use the handicap parking spot. I know where i worked they would do this for the women who were pregnant.
I would also appeal and have your dr write another letter and also maybe ask your dr if other patients have been approved.
Lyme disease diagnosed 11/05
vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
IC diagnosed with hydro/cysto- may 17, 2006
Over growth of lactobicilli found 8/07 treating with doxy.
Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:
8/22/07- was able to get my first speculum exam, with pap
Strep D found in bladder with United medical labs May 2006
2 strains of strep in stool culture 9/06
high Strep ASO titre found 10/06
NEW MED
Capsasin cream-once a day for 20min,
BUt wont lie it does burn
About to start valium supositories for PFD
Trigger point injections- oct 07
Current meds:
Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
Zanaflex 2mg
IC and low oxalate diet, no sugar diet
Xanax for appointments to help relax me since they cause so much pain
Started PT 3/07, PT has really helped me in ways I never knew that it would
Meds ive tried
Lyrica
Klonopin
Singulair
Claritin
Pyridium
Soma- can barely tolerate half a pill
Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
Estradiol cream
Urelle- caused worse bladder spasm and retention
Various antibiotics for lyme which caused yeast and made the IC and VV worse
waiting for the next chronic illness to pop up
"Did you know?
Every 15 seconds,
a person is
diagnosed with
interstitial cystitis."
Source: J. Dimitrakov, MDComment
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maybe have your doctor rewrite your letter using 100 feet, thats just insane. Did they give you a list to follow to get one?'The will of God will never take you where the Grace of God will not protect you.'Comment
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