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  • Won at SS Hearing!

    Hello Ladies,

    It has been awhile since I posted.

    I wanted to post back to you all and let you know that I won my SSDI at my hearing. :woohoo:

    It was a long horrible process of 2 years bleeding thru my retirement account-- scared that we would be forced to sell the house and downsize if I lost my case.

    Had to hire a lawyer and go the full 9 yards but it was definately worth it.
    Still fighting with Cigna our private insurance carrier for my disability claim.
    Having trouble with Medicare prescription program.
    Being sick sucks, and the SS money doesn't solve the illness. But I really can't complain about my current situation knowing others are struggling worse than me at this point. I will keep you guys in my prayers.

    My advice to anyone contemplating filing for SS disability, get to it, stick to it, don't give up, don't anyone tell you your not entitled. As we all know it is hard being so sick (but not visably injured- being that other shun your medical and emotional state of being). Even after winning my case I still have some doctors, family members, and friends who actually think I got away with something from goverment. Can you imagine? I am sure you can!
    Embrass those who love you, escape those who are incapable.

    Thanks for all the help this board has given me. You all have been an inspiration-- and I felt a pay back was important in posting this message.

    Love you all,

    Kay

  • #2
    :woohoo: :woohoo: :woohoo: :woohoo: :woohoo: :woohoo:
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        :woohoo: :woohoo:
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #5
          Good news is the best news. I am so happy for you.
          Sharon

          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

          Where I can be found most days.



          Link to the ICN Patient Handbook:
          http://www.ic-network.com/handbook/

          Link to the IC Diet:
          http://www.ic-network.com/diet/


          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            Congrats! And yes, I understand that some people just don't get how devastating IC can be to your whole life. Like you would have gone through all of that if you really weren't disabled! UGH!
            But we get it and are so happy for you!
            Rachel
            DX's:
            IC; PFD; possible Fibromyalgia; IBS;

            Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

            I've Tried:
            three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
            Currently using:
            Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
            Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
            I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

            Comment


            • #7
              Congratulations!! I am in the process of appealing my case and can only hope I have a good outcome also....Good Luck

              Jennifer
              Interstitial Cystitis(Interstim Therapy)
              IBS
              Fibromyalgia
              Pseudotumor cerebri
              Type 2 Diabetes

              Comment


              • #8
                That is great news, Kate! Congratulations. I hope that having that stress and worry behind you will allow you to relax and start to feel at least a little bit better.
                Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                Wishing you happiness and good health, and all the best out of life.

                Peace, Carolyn
                ___________________________________________________

                Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                On the Beach with IC

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                • #9
                  Congrats! You are an inspiration to many in the same situation!
                  You didn't give up!
                  I'm so proud of you!!!:woohoo:

                  mare mare

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                  • #10
                    Fantastic!! :woohoo:
                    Meds I take:
                    Elmiron, Elavil, Vagifem- for IC
                    Albuterol, Flovent, Atrovent- for Asthma and lung problems
                    Paxil, Clonazepam- for depression and Anxiety
                    Atenolol- for rapid heart rate
                    Nexium- for Gerd
                    Levothyroxin- for Hypothyroidism
                    Lasix, Pottasium- for edema
                    Lipitor- for High Cholesterol
                    I coated aspirin
                    02 at bedtime

                    Comment


                    • #11
                      Kay,

                      That is great news!

                      :woohoo:
                      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                      I also have some journals of my journeys, past and some present at:
                      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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                      • #12
                        :woohoo: :woohoo: :woohoo:
                        "Never Give Up."

                        To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

                        My Photobucket Link:
                        http://s237.photobucket.com/albums/f...ramack_photos/

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                        • #13
                          What was your hearing like?

                          My hearing is next month and I'm wondering what to expect? I have an attorney but I don't meet with him again until four days before the hearing. How long did your hearing take? When did you get your answer? Was anyone there (Dr's, family)? Did anyone have to testify? I would just really like to know what's going to happen. Be prepared and all.
                          Sarah
                          The avid San Antonio Spurs fan...

                          No one can make you feel inferior without your consent - Eleanor Roosevelt

                          But if I must afflicted be,
                          To suit some wise design;
                          Then, man my soul with firm resolves
                          To bear and not repine!
                          Robert Burns

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                          • #14
                            Congratulations!
                            One of my neighbors told me it took him 10 years to get his.He didnt have ic just a bad back and a few other medical problems.The only way he could get it was to be declared incompetant.His sister recieves the check and gives it to him.Thats a hell of a way to do it,but it worked out that way.
                            I just have 10 months to go till my retirement and if I make it I will be able to survive.I can actually retire now,but the penalty is 10% deduction of my pension pay.When you add that to about $400 a month for health insurance it eats you alive.If I choose to go the disabled pension plan route on my pension I would lose even more.Not to mention when you do this it also reduces your ss disability according to my plan.
                            54 year old male
                            Diagnosed with IC in 1994
                            Had symptoms since 1992
                            Three cystoscopies.One biopsy with hydrodistention.
                            This is what I have tried,Dmso cocktail,Elavil,Atarax,Hytrin,Detrol,Pyridium,Elmiron,Allegra,Augmenti n,Flomax,Ditrapan,Vesacare.
                            Sent urine samples about 10 years ago to the famous Dr Fugguzatto.Went through plenty of Dr's which took about 2 years for an IC diagnosis.I am considered having one of the worst IC conditions known to my doctors.
                            Thanks to reading the great info on this board I am presentally trying 3 more natural remedies.Msm,Glucosamine,and Quercetin

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                            • #15
                              great to hear..
                              Angela aka sleepyangel30

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