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  • Ok, its time for me to try next.

    Hey gals, most of us on here have had bad luck with our bosses understanding about IC, and for those that do i think its great! But ive been looking for a job for over three months now. My husband recieves ssi, and our girls will recieve a chec as well bacause he gets one. But me... I have applied, but never finished, i guess bacause im ashamed because i was raised not to look at my disability and not use it as a crutch. I was born with cerabral palsy, and now have had ic for six years. somedays im ok other days its hard to get around bacause of my legs, and then my bladder pain kicks is. <img src="graemlins/banghead.gif" border="0" alt="[banghead]" /> So, Im going to give it my all and apply on the basis of physical and mental disability. I had a stroke in 1999 and have seizures sometimes. so, why not? to me at first it seemed wrong to apply, but i know now that my disabilityes are real and need help. so wish me luck [img]smile.gif[/img]
    christine.

    Newbie Angel- Giving support to those new to the boards with IC

    Angel over the airways- Lets get the word out on IC!

  • #2
    Christine,
    Good luck. That's what it's there for!

    <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" /> Jaime <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />
    Tons of support,
    Jaime

    IC angel helping families in need for the holidays. [email protected]

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    • #3
      I didn't feel bad for a second applying! I have paid into the system all of my life. I never EVER worked just so that when I got lazy I could try to collect. It wasn't even a thought in my mind. For the little amount that we get....it's not near enough to compensate for the amount of pain we deal with every day.....

      YOU GO GIRL [img]wink.gif[/img] And, don't let them beat you....jump thru their stinkin' hoops till you have that check in your hand!!!!!

      tons and tons of <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />
      teri
      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

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      • #4
        Hi Christine! I agree, don't feel AT ALL bad about applying. I STONGLY urge you to send away for the disability workbook AND the disability packet that the Intertitial Cystitis Association puts out (their website is listed in the best IC websites list on this website, they are they other big IC organization in this country). Also definately get the NOLO Press Guide to Social Security Disability, you can get it from the books section of this website. There is a HUGE difference between the "mickey mouse" info that Social Security will send you and the REAL story about what you need to do to get your claim promptly and fairly processed! I was turned down the first time, but after I reapplied using the ICA packet, my claim was approved on the second round, so I didn't even have to get a lawyer or go to court to get my benefits. Good luck! beth_s

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        • #5
          I completely agree with Teri. After working for a law firm for 18 years I had to go on disability for IC. Believe me, I would rather be at work. People treat you as though "Oh, you're lucky you don't have to work" like we have a choice. They don't realize that we are in chronic pain and are making one-third less than when we were working. You have to walk in other people's shoes that's for sure.

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          • #6
            I've been out of work now for over 4 years due to my IC. I applied and was turned down twice and am now I am waiting for a hearing. It has been one year and 8 months since I first put in my application! Did it take you guys that long too? I think it is insane! Most of us would be bankrupt by now. If I didn't have a husband that makes a good living, we would be on welfare after all of my medical expenses, etc. I didn't apply right away because I thought I would get well quickly. I'd never been sick in my life. I've had 5 surgeries (including complete hysterectomy) since the beginning. Anyway, I never imagined that I would have trouble getting benefits. I was just diagnosed 5 months ago. I guess when I finally get my hearing, I can try to use the ICA packet (I need to order it). If I manage to get my long over due benefits, I will not feel the least bit of guilt. I'd love to be able to hold down a job but it is out of the question right now. I hope someone is going to tell me that I don't have long to wait and that once they hear that I finally have a diagnosis... I won't have much longer to wait.

            How long did you have to wait? I just moved and haven't hired a local lawyer yet. I hate to have to pay so much for little work. I've already done most of the work so far. How do I find a good lawyer to see that I am not turned down for a 3rd time? Please help!

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            • #7
              Taylor,
              I am sorry to hear that SS is putting you through so much. I am glad that you are hanging in there to fight for the benefits that you deserve. I applied about a year after I gave up my job. I did hire an attorney because I wanted to make sure that I had enough medical evidence to prove that I couldn't work. He explained to me that since IC is not on their list of impariments, you have to prove that it is as disabiling as the impairments that are listed. Your medical records have to prove everything that you tell SS about your symptoms and limitations. I was very lucky! My case was apporved with the initial application and it took about three months. I think that it is a good idea that you hire an attorney for your hearing. An experienced attorney can go over your case and make sure that you have everything you need to win. Look in your phone book and call some that specialize in disabilty cases. Good luck to you and let us know how it goes.

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