VERY upset w/ what the SS replied to me with>

[danielled]

I received, after 6 months, my disapproval claim, I'm so upset. This is what they wrote:

"You said you became disabled b/c of chronic bladder pain, urgency, cystitis, and urethral syndrome. The medical evidence shows you hve had a history of chronic bladder infections, vaginal pain, and pelvic pain. Although you may experience discomfort and urgency, you should still be able to perform some types of work. The evidence shows no other conditions which limit your ability to work. We realize that your condition prevents you from doing any of your past work, but it does not prevent you from doing work which is less demanding and requires less physical effort. (I AM A RECEPTIONIST, I SIT ON MY *** ALL DAY, WHAT'S LESS DEMANDING?) Based your your age, education and past work experience, you can do other work. (SO B/C I'M YOUNG, 25, I CAN'T BE IN PAIN?)


I simply cannot believe this. I feel like I am not taking seriously, I am in pain! They don't know what it feels like! I am crying, I'm so upset. As usual, no one believes me. [img]frown.gif[/img]

[Teri]

The end part of that response is what they send to all the the first time rejection notices, NOW they want to see how serious you are and your work begins [img]mad.gif[/img] [img]mad.gif[/img] It's a pain in the butt but we have to jump thru all of the hoops the way 'they' want us to jump. Did you have you dr write a letter for you explaining what this disease is doing and taking from your life? How many dr's are you seeing? Have you ever had counceling? I'm asking because they really seem to listen up if you have. Is there any way that someone you work with can write a letter to put in with your appeal? Anything you can think of, you need to be throwing at them right now.
I know how mad you are right now. I was completely housebound when I got my rejection notice but I KNEW that I was completely disabled and there was no way I was going to let them beat me [img]mad.gif[/img] I would gladly throw the lousey $640 a month I get from them BACK at them to feel better and beable to live a normal life! I can't see any of us trying to do this 'for the money' because you sure can't live on the money <img src="graemlins/banghead.gif" border="0" alt="[banghead]" />

Don't give up!!!!!!!!!

[AmyinAL]

I believe you sweetie! I have my first interview on Wed. I'm scared to death b/c I don't know what I'm doing. I have been out of work for 4 mos now and we are on the verge of losing everything. I was supposed to go "home" to my family for Thanksgiving this week but I don't even have gas money to get me there. I don't know what we are going to do. I know that I will be turned down my first attempt like everyone else but I don't know what to do in the meantime. It will be months maybe even years to go through this. From you first interview to sending all your medical records and paperwork in how long did it take to get your response? Please try to hang in there sweetie. I understand how hard it is to be young (I'm 31) and be in this condition. I will be praying for you. HUGS HUGS HUGS ~~~AMY~~~

[danielled]

Teri, I've been to many counselors & psychiatrists and they offered responses to SS as well, all of my doctors did. It ****** me off, I gave them a HUGE list of the doctors I've seen.

Well, after being off 4 months, with pay, my company accepted me back. I've been here nearly 2 months now, so I wouldn't be able to collect SS anyway. But, it's the principle of the thing. It just really upsets me to be treated like my pain is "nothing" and is bearable, it's not! I am having horrible days here, sitting on my heat all day long in agony. My hubby told me that the only thing we can do is if it gets too untolerable again, he'll have to quit college and go to work. It wil KILL me to do that to him. [img]confused.gif[/img]

[danielled]

Amy
It took them 6 months to even reply to me. That's unbelievable. Disability last week said it would be another 45 days for them to even make a decision, which will be denied I'm sure. It all sucks, it's not fair at all. It makes me feel like everyone thinks I'm a nutcase and doesn't believe the pain I'm in.

[Amanda]

Danielle,

I only know the stats for Michigan, but I am sure they are similar nationally...

Almost everyonw is denied on first try (all of us in Michigan know the stories of our wonderful former govenor), because over half stop there Keep trying--- many, many more are given disability as you go further down the line.

Amanda

[nccarol]

Danielle, as Teri said you have to jump through their hoops. I am on SSD, and my friend has applied for several conditions, the SSD doctors told him he should not be working but he was still denied. Same type letter. We spoke to a disability attorney and we sent in for reconsideration and the lawyer said that will most likely be denied and then we get the lawyer. It may or may not go to a hearing but he will probably on that 3rd try be approved. The lawyer gets 25% of the back pay. They do wnat to see how serious you are, its all a big game. Hnag in there if you can.

[Teri]

You have to remember......they DON'T WANT to give up back our money. That's their JOB [img]mad.gif[/img] [img]mad.gif[/img] They get a bunch of lay people around who don't know **** form shiola and these people (who I'm sure don't have ANY medical training) are the ones who decide who gets rejected and who gets denied.

PLEASE, don't give up <img src="graemlins/cussing.gif" border="0" alt="[cussing]" /> If this will be your 3rd appeal get a lawyer. BUT, before you hire one, asks if he knows about IC. If he says 'yes' than ask him to explain it to you....get my point????? You can't let them beat you, you just can't. This is a fight now only for you, but for the ICer who is filing after you......

I have also heard that once you are approved, it's THEIR job to prove you ARE able to return to work, and they only have something like $240 per client to work with so all's you gotta worry your pretty little head off about is what you are going to do when you get that huge check in the mail [img]biggrin.gif[/img]

Wishing you the very very best <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />

[caroleck]

I applied for SSD in November and I found out this week-end that I was denied. They wrote and told me I have a severe impairment but that I still could work in my previous position as a Pharmacy Clerk.

They just don't know what this disease is like and don't care.

Here I am a 60 years old woman and have pain every day and need to go the bathroom 20 times a day and they still think that I should work even with this disease.

I feel just stressed I know there is worse things in the world to have but only people with IC know what it is like.

carol frown

[vm]

When I worked with families with kids with disabilities we were often told that people often get denied on the first application. May be worth a second try.

[Teri]

Carol~people are almost ALWAYS denied the first time. SS expects this because they don't want to pay. Don't let them beat you. Play their game. Jump thru their hoops. Provide EVERYTHING you can find on IC and what life is like living with it. Get copies of all your medical records/hospital records and send them everything. Keep a copy for yourself so if they play the "It got lost in the mail" game, you will already have the paper work to send in again.

I know how hard it is emotionally to go thru this but you DESERVE this. You didn't ask for this disease and you've got to fight for what's yours. Please don't let them beat you, no matter what.

sending tons of gentle hugs~