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    I'm setting up a hearing for my appeal, and I have the congressmen putting a flag in the case of congressional interest, the senator is writing on my behalf to the administrative law judge, and I have two uros so far writing letters that my IC is in a severe stage and I can't work because of the pain. Is this enough you think? Or should I take more steps? I need help. We are getting a lawyer also. I found out that none of my doctors were ever contacted for my case...is that normal?
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

  • #2
    It sounds like you're moving in the right direction. I'm glad you have consulted an attorney for help with this. Unfortunately, it seems it's up to the applicant to prove his case so don't expect much help from the SS folks.

    I'll keep my fingers crossed!

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I can't remember, did you get the packet from the ICA? I used that, and also my urologist wrote a seperate letter. I was approved on the first try, so I don't know about the appeal process. I sent a lot of articles on IC. I think the story Louise had in the newspaper would be a good one to send. GOOD LUCK!!
      carly

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      • #4
        Thanks Donna and Carly,

        I didn't get a packet from ICA--a little short on funds--well when I went in person to the SS office, they wouldn't allow me to send in anything on IC. Not a thing. So now that I'm gonna go through a lawyer and the hearing, I'm going to send in the letters, all sorts of things on IC, Interstim, Fibro, etc. and hopefully it will all make a difference. I don't understand the gov't.

        Thanks bunches!!

        Jess grouphug kissing
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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        • #5
          Jessica, you might give Jill a call and ask her for some advice. She's very helpful.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Hey Girlee

            I dont know if you have worked in a while, but if you have try to get some of your coworkers to write letters for you about your frequent restroom trips and how it affected your job preformance. I am pretty sure this helped my case. Good Luck and God Bless ya LisaK

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            • #7
              Thanks Lisa I haven't worked in awhile, and I don't think anyone wants to get involved, but I have found a fantastic lawyer! I am so excited to get the ball rolling!!
              Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

              Comment


              • #8
                Jess,
                I think your moving in the right direction let mr know what articals i emailed you about ic and ssd.. and make sure disnt miss any.
                if you need me you know where to find me
                brat
                'The will of God will never take you where the Grace of God will not protect you.'

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