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TIRED of the games people play...

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  • TIRED of the games people play...

    I am SO incredibly sick of apathetic beaurocracy (however you spell it)! I have been working on filing a disability claim. When I got it, a friend with IC who had applied asked me if I had filled out the "green form" yet. I had gotten no green form. So, I said, no. It must be coming in the next package. How naive! I sent on all the paperwork I had received...completed. Well, I just received a letter from the Field Office Manager. Included in the package was this elusive "green form." The letter stated that they were waiting for this green form, which they had requested from me twice. TOTAL LIE. They never contacted me at all, let alone regarding this form. In this letter she stated that I had seven days to get this form back to them, or my claim will be denied.

    I am so furious! I have been trying to reach my contact there, and keep getting voice mail. You better believe that if I don't reach her by Monday afternoon, I will be there in person first thing Tuesday morning. I am so angry. I can barely leave my house, in fact haven't gone more than five miles from my house in months, and I have to find a way to get there. They didn't even give me a chance. If they want to deny my after I get my claim in, fine. I know they will, and I will fight it. But to do this underhanded bull**** is just too, too much. I know this is the game they play, but they are playing with my LIFE! My husband and I are on the verge of losing everything, including the roof over our heads, because I am too sick to work. And now we have to deal with this crap. How do those people sleep at night?

    Well, I just needed to write about this, because it really angered him. Well, they ****** me off now. If they want a fight, they have surely picked the right woman. It is ON now. I will do whatever I have to do, hire an attorney, etc. Well, that's it. I'm calmer now wink

    I so appreciate you all listening. God Bless...

    "It's not brave if you're not scared..."

  • #2
    Beurocracy is spelled R-E-D T-A-P-E!!!!!


    • #3
      ~Or the short version........... B.S. ~
      Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".


      • #4
        I would document everything, find out who the head supervisor is and send it all to her so they know you are creating a papertrail. Hell, "Cc" it to your Attorney General - even if you don't really send it to him. They'll think you did. wink

        Diagnosed August 2001

        Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

        Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

        I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


        “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

        “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


        • #5
          I have heard of people who finally hire an attorney to get the job done. I don't know if it's any quicker though. If you do go that route, make sure they don't get paid till you do! wink
          Take care. I hope it all works out...Jaime
          Tons of support,

          IC angel helping families in need for the holidays. [email protected]


          • #6
            My sister has a 9 year old with cystic fibrosis. It took her a couple of years to fight it. She did end up having to hire an attorney but she was emotionally zapped from dealing with his illness AND worrying about the SS so sometimes it's worth having to pay an attorney.
            Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".


            • #7
              hey cristina,
              this is your la. ic sister! i am just now catching up on all the post, and low and behold i run across you in the same boat as me once again.
              if you remember correctly i too just filed for ssd on dec 12th. believe it or not, i just recieved the infimous green packet too. mine stated also that "we are waiting for your reply so we can follow up on your claim" it also said i had seven days to reply. if i went by the date on the letter that would have given me 24hrs to reply if i went by the date that was post marked on the front envelope. i also paniced because this packet seemed to be 2days long just to read it, not to mention...fill it out. what ****** me off was, i provided all this info. along with pain and voiding logs, dr's letters, when disability began etc. etc. etc. i also spent two days on the phone trying to get intouch with them to let them know I DID NOT RECIEVE IN ADEQUATE TIME TO RETURN IT IN ADEQUETE TIME. i did finally talk to a person to let them know its on the way.
              of course they assured me it was ok. do i believe that? i am not so sure! as far as an attorney goes, none in my area will even consider taking your case unless you have already been turned down atleast once. so regardless........we are still looking at atleast a year! so what are we to do in the mean time? i am out of work too, with my only income being child support. then to top that off! i was turned down for food this is too much. this pays tribute to the fact that i filed for bancruptcy and now i don't have enough debt. go figure....we wonder why stress and ic go hand in hand lol hmmmmm could this have anything to do with it? well, my dear i still continue to pray! and pray, and pray,i still believe someday this will all be worth it! and we will walk away with the victory.
              may Gods blessings be upon you! today and everyday!
              your ic buddy,
              grouphug kissing
              Angel R. Miller
              YOU CAN COUNT ON ME!
              In times of need, if you are feeling sad, you can count on me. i will give you a wink , until you smile , give you a hug :GROUPHUG:, and stand by your side. i'll be there for you till the end, I'll always and forever, BE YOUR FRIEND!


              • #8
                Angel Baby...

                You and I are definately leading parallel lives, huh? We probably have the same damn ssd rep. Mine was awesome at first, and now she has turned suddenly into ****ina. Don't know what that is about, hopefully she was just PMSing last time I talked to her, because she was downright hateful. How are you? I am so sorry about all the financial **** going on for you. I can relate. And this illness is SO affected by stress. We can't win for losing, ya know? I am just so tired. I mean, so, so tired. I don't know that I have ever felt this physically and emotionally spent. And I feel useless because I can't contribute to our income. We are barely keeping a roof over our heads, let alone eating. It is all so frustrating. Sometimes I wish I could just go to sleep and not wake up for a long, long time.

                And then, we have to fight the government for money that is ours. I have been working hard and paying into Social Security for 22 years, and now, when I really need it, they pull all this ****. I guess we will have to wait for our denials (which I have NO doubt will be the case for me), and THEN hire an attorney. My doctor seems to be 100% convinced that with the severity of my case that I will get approved on appeal, but I don't have even a quarter of her confidence. I am at least glad that she is on my side.

                What I find ultra-frustrating is that I have actually met people that are collecting SSD who are perfectly healthy and capable of working. I met one guy who's doctor friend had given him a bogus diagnosis so he could collect. He was actually proud of it, while I was completely disgusted and appalled. He has been collecting for like ten years, and complains that he should get more. Ugh. Anyway...hang in there girlfriend, and I will talk to you soon.

                Cristina kissing
                "It's not brave if you're not scared..."


                • #9
                  Please~ either have your dr or his nurse write a letter stating your limitations. ALL of your dr's. And, make an appt to see them just to make sure that they have.

                  So many attorney's don't want the case until you have been turned down twice and that's because before then, there isn't much money in it for them.

                  If it's been going on for a year than yes, for the sake of stress turn it over to an attorney. I did get the booklet from the ICA and I think that helped TONS. I was turned down on my first application but approved on the one after that.

                  What ever you do, DON'T quit. That's exactly what they want you to do. This is what my sister's neighbor does for a living. When she found out I was applying she said "no way will she win"......guess I showed her, huh :p
                  Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".


                  • #10
                    Hi There,

                    Just wondering if this may help...does anyone remember the movie, I am Sam? It was a wonderful movie based on a story of a father who was mentally delayed and he was going to have his rights to paternity taken away from him...any way I remember in the story that the lawyer took his case...something about "pro bono or pro bona", which I think that a lawyer would take the case on humane grounds and do the case for free or next to nothing...perhaps if you could approach a lawyer on this basis??

                    Hope this Helps
                    Kim P