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Got it!! Review in a few months?!?
Can't believe it!! The "project" I've worked on from August 2000 through February 2001 with all the paperwork, etc. paid off!
Application submitted Feb. 7, 2001 with their forms, doctor letters as required by SS, my letter about how IC pain caused me to quit my job and all the meds and things I tried to keep teaching, being a wife, Mom, etc.
Letter of benefits starting July 2000 (had been out of work since Jan. 2000) recieved on May 3rd!! That's less than 90 days!! They have a new way of approval now, but I was soooo pleased with the quick turnaround.
Wanted to find out just what they gave me disability on before I shared here...they didn't say in my letter..a phone call to a very nice man gave me the information....I got it for "other disorders of the urinary tract"...that's IC, I think! I'm so happy, I can't even tell you.
It's not that the $$'s are so much, no one could really live on it, I'm sure...put a roof over your head, have a car, and eat, etc. But it does help, so hubby and I won't go backwards. He had to go back to work after retiring early so we would not lose his retirement and to help pay for meds! Oh the GUILT I feel sometimes, though he tells me not to feel badly....he loves his new job.
Through this whole thing, I kept thinking about single parents with kids who are living with this incredible pain, yet still having to work to support a family...my heart could break.
One question...my papers say my benefits are in the category "expected to improve". I don't believe IT! My uro letters said there will be no improvement expected unless there is a cure for IC. Anyway, I'm up for review in July 2001....after all of this, that's hard to believe.
Anyone else had a review so soon? What should I expect in the review process....hope NO more paperwork!!
Thanks for your help with all of this...especially Teri, who suggested a letter to my docs to tell how IC affected my life...I know that really helped.
Here's hoping for a cure so we all can get back to some of our old lives,
Gentle hugs and positive thoughts to all,
SusanC
[This message has been edited by SusanC (edited 05-10-2001).]
[This message has been edited by SusanC (edited 05-10-2001).]
Application submitted Feb. 7, 2001 with their forms, doctor letters as required by SS, my letter about how IC pain caused me to quit my job and all the meds and things I tried to keep teaching, being a wife, Mom, etc.
Letter of benefits starting July 2000 (had been out of work since Jan. 2000) recieved on May 3rd!! That's less than 90 days!! They have a new way of approval now, but I was soooo pleased with the quick turnaround.
Wanted to find out just what they gave me disability on before I shared here...they didn't say in my letter..a phone call to a very nice man gave me the information....I got it for "other disorders of the urinary tract"...that's IC, I think! I'm so happy, I can't even tell you.
It's not that the $$'s are so much, no one could really live on it, I'm sure...put a roof over your head, have a car, and eat, etc. But it does help, so hubby and I won't go backwards. He had to go back to work after retiring early so we would not lose his retirement and to help pay for meds! Oh the GUILT I feel sometimes, though he tells me not to feel badly....he loves his new job.
Through this whole thing, I kept thinking about single parents with kids who are living with this incredible pain, yet still having to work to support a family...my heart could break.
One question...my papers say my benefits are in the category "expected to improve". I don't believe IT! My uro letters said there will be no improvement expected unless there is a cure for IC. Anyway, I'm up for review in July 2001....after all of this, that's hard to believe.
Anyone else had a review so soon? What should I expect in the review process....hope NO more paperwork!!
Thanks for your help with all of this...especially Teri, who suggested a letter to my docs to tell how IC affected my life...I know that really helped.
Here's hoping for a cure so we all can get back to some of our old lives,
Gentle hugs and positive thoughts to all,
SusanC
[This message has been edited by SusanC (edited 05-10-2001).]
[This message has been edited by SusanC (edited 05-10-2001).]
Isn't it just the greatest when all of that stinkin' paperwork is DONE 
I don't know about your forms but I know that on mine they would ask the same question 12 different ways and I got so ticked off in the end that I was writting 'see answer to #3' instead of rewritting again and again.
We are putting the money aside to pay for my meds once we can no longer afford our Blue Cross.
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