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  • research

    I am not new to IC, but I am new to not having a quick cure for the symtoms. I was diagnosed about 10 years ago, but suspect I have had it for years and years. During that time to now DMS has knocked it out for a year at a time with some diet caution in between.

    Now I have decided to educate myself about it and have just about read everything at this site. At first I was ready to crawl under the cover and never come out, but have been pleased to find that there are treatments and most of all some decent research.

    I am wondering if they are not looking at it in some ways like a blind man describing an elephant. I think that since this is so much like many other syndroms that from some place or another they will get down to the basic cause and then will be able to cure it. I first got this idea from realizing that it is so like stomach ulcers and like problems. In reaearch I find similarities to various syndroms that are as yet mystery diseases.

    I wonder how others that are much more educated than I am, either by training or just by living with it, think about any of this.

  • #2
    personal i hope your right and i do think that is a good point! i have only had ic for three years! and i pray there will soon be a cure!

    Welcome to the icn website! grouphug
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.

    I have IC, but IC doesn't have me anymore!


    • #3

      I think knowledge is a wonderful can never learn too much. I believe in my heart that there will be a cure--maybe not in the near future, but someday. And if it's not in my lifetime, and if I have done something to contribute to the education, then I don't mind. Just as long as someday, a newly diagnosed person doesn't have to be scared and feel horrible and think that their future is bleak because of IC.

      Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!