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  • Well, it happened.

    I got my denial letter today. Now I know that most people are denied on their first try and not to take it personally but I still feel upset about it. I have already talked to my attorney who has been ready to file my appeal as soon as the denial came through but I had just hoped that they would see this crappy disease and all of it's accompanying diseases for the horror that they are and validate me for once. They took each of my diagnoses and excluded each one individually. Well maybe that would work (although I don't think I could work if I only had IC) but when you put all of the diseases together...THAT is why I can no longer work. The letter said I should be able to do the same work I did before - well then why was I FIRED for too much time away from my desk and too many sick days when I tried to go back to the same kind of work?

    Anyway, just venting really but it's hard not to get discouraged. Afterall, it's my money that I paid in all those years that I was a hard working citizen and I need it now more than I will at 62 so why is it so hard?

    I filed based on my IC, Fibro, severe untreatable central sleep apnea, IBS, chronic fatigue syndrome, and menier's disease. Dumb to think I could be a productive person at home let alone work for someone else!
    Last edited by momw/ic; 02-14-2011, 06:37 PM. Reason: typos
    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
    _____________________________

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    It's true they usually turn down almost everyone at first. So this was to be expected. Most ICers dont usually win until they get in front of the judge> So try not to let this get you down> I know that is easier said than done though> You did do the right thing in getting an atty> that will help alot! hope things go well for you and you win soon!
    I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

    D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

    Meds: Estrogel (due to total Hyster)
    The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)


    (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


    John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

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    • #3
      At least you were expecting the denial. I think it's great that you have an attorney ready to go to bat for you.

      Hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        I applied myself a few years back & got denied also. Y eah it def. sucks. However, I finally decided I had enough & applied June 2010 with a lawyer..I was approved by Oct 2010 FIRST time:-)

        Please dont give up hope...keep on trying..it does happen!
        Karen
        Currently Taking:
        20 mg Celexa
        fentanyl patch 12.5 mcg chgd every 3 days
        morphine IR 15 MG, up to 3x daily
        Xanax 1mg as needed (not taken daily)
        900 MG Oxycarbizine (mood disorder)
        300 MG Welbutrin
        Tizanidine 4 mg up to 20 mg daily as need
        Prevacid 30 mg
        Ambien as needed

        my heating pad is my best friend, use daily on my lower back & pelvic area
        blessed to be able to receive massage & Amma , along with Avazzia therapy 3x weekly

        Been diagnosed for 10 years now, consider myself pretty well versed in this disease & would love to help out with new IC sisters or brothers, feel free to message me.

        Comment


        • #5
          I applied for ssd a month ago I will expect them to deny me they do everyone but; I will retain a lawyer and it will take 2 or 3 years.
          <center>
          <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
          </center>

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          • #6
            Good luck, I can't work either and am considering doing something like this soon if I can't find relief. Keep on trying, you'll get there!

            Comment


            • #7
              Congratulations, FloridaMom! I know that is definately a huge relief! Obviously, you made the right decision to hire an atty.

              Momw/ic and Linda May,
              I initially applied on my own and filed the initial appeal on my own but after being turned down for both, I hired a lawyer for the hearing before the Administrative Law Judge. He approved me that day and backdated my case for 4 years. (If they backdate it at least 2 years, you can start getting Medicare immediately. Otherwise there is a waiting period of (I think) 2 years. So, it is really critical how far they backdate your case. Also, your atty gets a certain percentage of your backpay. (Most attys only get paid if you win. But then they get a substantial part of the backpay but they are limited to a certain amount. If I remember right, I think mine got something like $5200 or $5400...whichever it was, it was the maximum they could get.) However, it's still worth it. I figure if I didnt have an atty, I might have lost and not gotten anything! So, definately, having an atty is a good idea!

              I was approved 3 years ago, but I just got my first letter for routine review. It makes me nervous. I have heard it is much harder to take someone off of disability than it is to get approved, but, it isnt unheard of either. So, it makes me very nervous. I am creating a new thread describing the questions, in case anyone else is up for reveiw soon and is wondering what they want to know.

              Anyway just wanted to wish you luck and let you know I am pulling for both of you!
              I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

              D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

              Meds: Estrogel (due to total Hyster)
              The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)


              (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


              John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

              Comment

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