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  • IC Disability Packet

    I thought I might better start a thread for this; for anyone who's not aware it exists.

    The IC Association has a packet you can purchase through their store that you then SEND TO DISABILITY for Judges, state appointed Doctors, etc. to educate them on what IC is exactly and how it impacts a patient's life. I was told to send it in, addressing it to the Judge (if you know the name), as soon as I possibly could, during the application process. I'm now in appeals again and have just ordered the updated version to send again. Personally, I think it's imperative to send, since so few medical personnel actually know what IC truly is (many seem to think it just makes you urinate alot, when it's SO much more!).

    https://www.ichelp.org/Page.aspx?pid...sct=Disability
    Diagnosed IC: Oct. 2005
    Other conditions: Fibromyalgia, Migraines,BiPolar Disorder, degenerated disc in back & Scoliosis


    MEDS FOR IC ONLY

    Oxycontin, 40 mg 3 x's daily
    Nerontin 1600 mg daily
    Cysta-Q
    Prelief

    MEDS: COEXISTING CONDITIONS
    Lithium
    Depakote
    Clonopin/Xanax
    Ambien
    Phenergan
    Butorphanol Nosespray

  • #2
    Re: IC Disability Packet

    I just ordered this, how long does it take to get mailed to me?
    Anyone?

    Thanks,
    Samantha

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    • #3
      Re: IC Disability Packet

      Can anyone chime in?

      Comment


      • #4
        Re: IC Disability Packet

        Originally posted by Samathagirl View Post
        I just ordered this, how long does it take to get mailed to me?
        Anyone?

        Thanks,
        Samantha
        This is not the ichelp site so I don't know what their turnaround time is.


        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          Re: IC Disability Packet

          Donna,

          Thank you so much! I didn't realize that it was from a separate organization.
          I will research it and see what I can find. I guess I was just wondering if anyone else had gotten one, and if so how long did it take them to get it ☺

          Thank you so much for your reply, I was feeling a little alone,
          Sa

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