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Announcing our **NEW** ICN Blog - The IC UNDERGROUND A news service for IC patients!

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  • tbn
    replied
    This seems really exciting, but I have never used a blog before. I am not really sure what to do but I must say that I really like the banner at the top of the page. Hahaha I know thats sounds odd, but I think it is sleek and pretty...but relaxing.

    Leave a comment:


  • ICKIRSTI
    replied
    yeah

    haha... yeah, i was really excited too about it, and then I got my password and it wouldn't let me in either... After trying it a few times I figured it was just me, or an error in the creation of the page..I don't know much about computers and webpages, but if you need any help working through it, my boyfriend is a Computer Database Administrator, so I am sure he would be able to help on this one.. so just let me know.. if you'd like me to ask his advice.. thanks again for everything!!

    Leave a comment:


  • MakinIT
    replied
    Can you make one of your topics pain management....and how do get comments that we've replied to show up. (I replied today to the Detrol one a couple of times but it kept showing up that no comments were made) And if it's because of problems with the sight that's cool, I'm not a website guru by any means....ha!)

    Leave a comment:


  • MakinIT
    replied
    Ok....I saw every one else was successful and thought I was just being a goof somewhere. (and it was 12:30 am and I was in pain) I wasn't "hollering" at you...just frustrated because everthing is going upside down right now and NOW I can't even get a website to open...Grrr. Thanks much for your work on this!

    Leave a comment:


  • icnmgrjill
    replied
    There are issues with the blog software right now I think. I'm still figuring it out... so please be patient with me.

    Jill

    Leave a comment:


  • MakinIT
    replied
    This is terrific but I'm really about to put a hole in my wall...

    Umm...visions of struggling with high school chemistry and learning to respackel (sp?) wallboard after a 10 pound text book got hurled at it are coming back to me....I've been trying for three days to get into to this new "cyber place" and I'm either struggling with new pain meds or just plain stupid. I got the funky password (the temporary) and attempted at least 20 times to get in with that...finally it suddenly let me in...why? I dunno...?Maybe it felt sorry for me. So I filled in my profile and I got to where I could change my passcode and I did (b/c there is no way in heck I would remember that jumble of letters and numbers.) It kept bringing me back to the profile page with the passcode I choose erased, no rhyme or reason..it was just erased. so I finally ignored it and i went into the first page (after all, it did say HOWDY...) once there I tried every opportunity given to go to a webpage and it just kept telling me I didn't have adequate clearance...to even go look at my "web"page and see how I wanted to set it up or join in a blog. What am Idoing wrong...I would like to do this to distract me from all me other issues going on right now,,,,

    Thanks...\\

    Leave a comment:


  • ads
    replied
    I know blogs have become an extremely powerful movement in the USA, and could be great for the IC community. Will the information on the blog be totally different from what is put on the ICN website? I understand Jill's announcements will now be on the blog. The main reason I was asking because the ICN already provides a tremendous amount of high quality life changing informtion, so people shouldn't miss any of it. (It is hard for some of us to sit at the computer for any amount of time.) Until the blog is merge with the message board, how will the newsletter and this differ?

    What does the title "Underground" mean? I thought perhaps it was suppose to be a secret board, but everything appears to be open without membership. Will things that wouldn't be appropriate to discuss with ones doctor or the medical community be on this blog?

    I am sure it will be great and help patients. It will be an exciting to watch this concept develop for IC.

    ads

    Leave a comment:


  • dyno
    replied
    I really like it Jill, keep up the great work.

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  • Trishann
    replied
    Jill, this is really great. I noticed the report on Detrol. Oh I know that medicine does do a number on me, but I don't really have a choice. I try to get off of it so many times and it just don't work. It's horrible when you have to make a choice in dealing with the side effects of medication or dealing with IC.

    But Jill it is good to know what we are dealing with so we can also try to make a way to handle it.

    Thank you so much, Trishann

    Leave a comment:


  • ICKIRSTI
    replied
    Yay!

    How exciting! Just when the support couldn't get any better... It does! I am about to open my email and get my password! I am so blessed to have found you all here, and can't thank all of the administrator's and moderator's enough for all that they have done, to better serve the community for the purpose of understanding the numerous and complex issues that we face today. None of us would be here if it wasn't for their hard work, and compassion, and soo... :woohoo: and and to you all!!! I also look back, and realize just how much harder it must have been to find a diagnosis, the years prior to the millenium. Hence, all the respect in the world, and grateful thanks, to all whom have made I.C. the medically accepted condition that it is this day.. we are eternally grateful, and in fact, facing the possibility of remission only with thanks to such dedicated, heartfelt, determined individual's!!

    Leave a comment:


  • sandramac
    replied
    Look's great Jill. As usual you & your team do a outstanding job.
    Thanks Sandra :woohoo:

    Leave a comment:


  • Sarojini
    replied
    Lookin' good, Jill

    Vicki, blogging is like keeping an online journal; you just write down what comes to mind. You can have a main topic (like IC) or you can just talk about whatever's on your mind.

    Many sites have the capacity to allow you to create a free blog. MySpace.com, Diaryland.com, etc are good ones to start a basic blog, and it is SO easy. The sites guide you through every step.

    I blog at MySpace sometimes, although I've been a bit lax about it, and I blog about IC in particular at the RevolutionHealth site.

    Leave a comment:


  • Vicki
    replied
    This is exciting. I have never blogged. Lately, I have been hearing a lot about it. I am not sure what it is or how you do it. -Vicki

    Leave a comment:


  • Announcing our **NEW** ICN Blog - The IC UNDERGROUND A news service for IC patients!

    Well, I finally did it. I decided that we needed a blog to store our new "daily" news stories, etc. etc. because it's cool... but it will also help with our search engine ratings.

    I'm calling it the IC Underground because I want it to reflect "more" than just the status quo and/or official announcements that we usually see. I'm going to be putting any new Jill's Journal articles in there... and I'm going to use it to reflect the more liberal tone of the IC Network. I rather despite the "conservative" IC movement because it's so constrained that they forget that there are real patients involved. Imagine going to a conference where patient care is rarely discussed. It's as if we're an afterthought. So, this blog will be more patient focused. Atleast I hope so!

    So, you can check it out at: http://www.ic-network.com/blog/

    All comments, questions and feedback welcome! I would have combined it with this forum but this current software doesn't yet allow that to occur. It should be coming soon though!

    Jill
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