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New IC Book - Please Understand: The IC Guide For Partners

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  • New IC Book - Please Understand: The IC Guide For Partners

    After months of delays, we finally have our advance copy of "Please Understand: The Interstitial Cystitis Guide For Partners" written by Gaye & Andy Sandler, Molly & Will Glidden. It's written for the spouses of IC patients so that they can understand more about what spouses struggle with but, more importantly, how they succeed in creating great, long lasting relationships.

    The book should be shipped to us within a day or so. As soon as it's shipped, we'll have it up in our store. It will cost $11.99 and is 65 pages long.

    I hope you're excited because we certainly are! This book was desperately needed and I think will help some couples cope better with their IC challenges and how to overcome them! - Jill

    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  • #2
    :woohoo: :woohoo: This is Great!! I cant wait to purchase mine
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      :woohoo: This is a much needed book! I know I am buying multiple copies and sticking them on every end table, coffee table, by the toilet in my husband's bathroom, on his nite stand, in the refrigerator, and anywhere else he might see them! Seriously, this is very needed and I cant wait to get one too!

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      • #4
        Thanks Jill can't wait to read it myself.

        Hey Amy don't forget to tape one on his steering wheel, in his undies drawer, to his razer, of yeah and his favorite outdoor sporting goods. Those seem to be the places that I get hubby's attention. LOL

        Comment


        • #5
          I purchased this book at my last IC group meeting. It is a very good book and I do reccommend it. I met two of the authors Gaye Grissom Sandler and her husband Andrew at my last group meeting. Very nice people and very smart. The book is for your partner or other people in your life to read in hopes to give them some understanding about this disease and how it affects our lives. I thought it was good.
          Jen

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          • #6
            That is just awesome...what a great idea for a helpful and needed book. I personally can not wait to order this book. While I try to be as understanding as I can be I am sure this book will still be very helpful and insightful...I know there are times when, without even realizing it, I am not as understanding as I should be...can not wait to order it!!!

            Comment


            • #7
              Oh how wonderful, Jill. What great news. Actually, just the title brought tears to my eyes. There is such a need for this. I am sure it will bring about more understanding and compassion from those who read it towards those who deal with the pain and complications IC brings into their lives. Thank you so much for making this available. (((Hugs)))
              Sharon

              Shopping??? Did someone mention shopping? I'll get my hat... ;-)

              Where I can be found most days.



              Link to the ICN Patient Handbook:
              http://www.ic-network.com/handbook/

              Link to the IC Diet:
              http://www.ic-network.com/diet/


              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Comment


              • #8
                It made me teary-eyed, too! What a great resource this is and how needed. I can't wait to get my copy!
                ~ Stacey

                Comment


                • #9
                  Wow... how cool Definitely going to purchase one or two copies!
                  ****
                  Jen

                  *Diagnosed with severe IC in 2004
                  *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                  *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                  *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                  **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment


                  • #10
                    Do you know when this will be available? It's a wonderful thing to help husbands and/or wives of IC patients understand. Please let us know as soon as it is available.

                    Thank you.
                    Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

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