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Headache In The Pelvis Seminars - 2004!

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  • Headache In The Pelvis Seminars - 2004!

    Six day Comprehensive Pelvic Pain Intensive Clinics for the Stanford Treatment Protocol

    Chronic pelvic pain syndromes have been a puzzle to the best medical minds for a century. Antibiotics, anti-inflammatories, prostate massage, and surgical procedures, which form the backbone of traditional treatments, have been of little use in dealing with these debilitating afflictions. In A Headache in the Pelvis, we describe a new treatment protocol developed at Stanford University’s Department of Urology that has stepped out of the box of conventional medical treatment. It involves a combined medical, behavioral, and physical intervention that has been successful in substantially reducing or abating the symptoms of pain and dysfunction in a select group of patients with chronic pelvic pain syndromes. This protocol is based on a new understanding that chronic pelvic pain syndromes are not caused by prostate or organ pathology but instead a chronically contracted pelvic floor that has made an inhospitable environment for the organs and tissues found within it.

    This protocol is unusual because it requires the coordination of a physician, psychologist, and physical therapist. Furthermore, the responsibility for treatment is ultimately given to the patient. Successful results are dependent upon the willingness of the patient to do the regimen described in A Headache in the Pelvis for an extended period of time. This is in contrast to the conventional form of medical treatment which looks to a quick solution by drugs or surgery with minimal participation of the patient. The solution to this vexing condition is neither quick nor easy and requires a very large expenditure of effort. Our patients are typically people who have had pain and dysfunction for years, have seen numerous doctors, and have unsuccessfully used the conventional treatments.

    While we have reached out to the medical community to educate them and to train them to use our approach, at present there are very few who can competently offer our protocol. It is for this reason that we have established these monthly clinics. They are designed to offer the most effective and comprehensive form of the treatment available described in A Headache in the Pelvis.

    Perhaps the greatest suffering for patients with pelvic pain syndromes is the sense of helplessness that patients feel in the presence of their pelvic pain and dysfunction. When we are successful in helping people with this problem, we are able to give them tools that empower them to reduce or abate their symptoms. People who do well with our treatment tend no longer to feel victimized by their condition. The clinics are aimed at assisting this empowerment. The clinic hopes to provide the first step in a life long shift in the way one manages the stress and other factors related to chronic pelvic pain. When the treatment is successful and participants comply with the home practice portion of the protocol, some clear reduction of symptoms is usually seen within a period of three to four months. Stable reduction or abatement of symptoms can take up to two years. The tools of the protocol need to be used on an ongoing basis to maintain the reduction or abatement of symptoms.

    These clinics train participants to continue self-treatment at home. They are done in small groups and consist of approximately 20 hours of treatment over the period of 6 days. The content of the workshops consists of:

    Individual medical evaluations are done in the department of Urology at Stanford University prior to the intensive program, at which time the nature of the condition of the participants will be evaluated and the appropriateness of the treatment protocol determined.

    ** Most insurance plans may cover some part of the Stanford evaluation and the extent of such coverage can be determined by the staff in the department of Urology at Stanford prior to the medical appointment at Stanford.

    Training in Paradoxical Relaxation is done over a period of 5 days. The yearlong 32 lesson audio course in Paradoxical Relaxation is included in the cost of the clinic and instruction is geared to instruction in successfully using the taped, year long course at home. Cognitive strategies for reducing the impact of frequent negative/catastrophic thinking that accompanies chronic pelvic pain syndromes are part of the curriculum.

    Participants undergo physical therapy consisting of pelvic floor related Myofascial/Trigger Point Release on a daily basis. When a partner is available and willing, the partner receives instruction in the Myofascial/Trigger Point Release geared to the treatment requirements of the participant. Partners who come for training in Myofascial/Trigger Point Release may attend at no extra charge. The intention of this training is to enable the partner to do this component of the protocol at home on a regular basis. Patients receive a map of their trigger points and areas of restriction. This allows the patient to give their personal pelvic trigger point map to a physical therapist in their home area that they continue to work with and/or to assist the participant’s partner do the home Myofascial/Trigger Point Release.

    Participants receive information and recommendations on different aspects of treatment of pelvic pain. This information includes relevant educational material describing the physiology, anatomy, and psychology accompanying chronic pelvic pain syndromes. It includes specific stretches, referred to as pelvic floor yoga, recommendations about diet, exercise, and sexual activity. Instruction in appropriate self-administered Myofascial/Trigger Point Therapy is an important part of the curriculum.

    Medical evaluation is done by Rodney Anderson, M.D. at Stanford University. The Paradoxical Relaxation training is conducted by David Wise, Ph.D. and the Myofascial/Trigger Point Release is conducted by senior physical therapists trained in the Stanford protocol at a site an hour north of San Francisco.

    ** In the event the treatment protocol is not deemed to be appropriate, other treatment options will be discussed, and the participant will only be charged for the cost of the Stanford medical visit. Both the relaxation training and physical therapy are done on site in Sebastopol California and have no medical/financial relationship with Stanford as participants come to Stanford for the urologic evaluation alone.

    Six Day Intensive Pelvic Pain Clinics Northern California 2004

    Comprehensive pelvic pain intensive clinic for the Stanford protocol described in A Headache in the Pelvis

    March 19 – 24
    April 16 – 21
    May 21 – 26
    June 11 - 6
    July 23 – 28
    August 20 – 25
    October 1 - 6
    November 12 – 17
    December 10 - 15

    Contact information

    phone: 707 874 2225
    email: [email protected]
    mail: National Center for Pelvic Pain
    Box 54
    Occidental CA 95465
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality.

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    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.

  • #2
    This sounds like a worthwhile treatment option.

    Thank you for sharing.

    Stay safe

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool


    • #3
      I really wish i could do this it does sound like it will be useful. thank you jill for the information.
      Medicine taken daily or as needed:
      1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
      2. MS.Cotin 100mg 3x daily
      3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
      4. Fentanyl 100 mg Change every 48hrs.
      5. Gentamicin 80mg install after each rescue treatment
      5 Leviquin 500mg self start as needed.
      6. Klonopin 1 or 2 daily as needed.
      7. Prosed/DS as 1 every 6hrs as needed.

      I have IC, but IC doesn't have me anymore!


      • #4
        It is inspiring to see conventional medicine step "out of the box" while considering treatment.

        Knowing how much simple PT has helped me, I cant imagine how wonderful I would feel after this program.....I might inquire!!

        Thanks so much for the information,
        @[email protected]
        "Well the Secret O'Life is enjoying the passage of time." ~James Taylor


        • #5
          Jill,Thanks so much,this sounds interesting.
          Take care.
          Love always, Zookeeper Kim
          Animals are very comforting when
          pain & life gets you down...

          Keep your head held high and don't let any thing bring you down.