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Introducing IC Angels!

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  • Introducing IC Angels!

    In response to the tremendous outpouring of support and condolences in the memory of ICN Asst. Manager Diane Manhattan-Lopresti who was tragically taken from us on October 16, 2003, we are creating this new program to honor her memory. Diane was a true IC angel. She belived in angels and she believed in support. She inspired others to keep trying. When a patient was down, she lifted them up. When a patient was confused, she offered helpful information. When a patient was crying, she gladly shared her shoulders for anyone to lean on.

    An IC Angel is someone who cares. Someone who believes, in their very heart of hearts, that noone should suffer alone. Someone who is willing to lend a helping hand, a moment to talk, a a supportive email, a chat in our chat room or an orientation for a newly diagnosed patient. An IC Angel is also a role model, a patient who is active and involved in the IC movement. They may run a support group or perhaps just offer support by email. When an idea strikes, they share it with others to get them motivated and involved. They might write an article, create a new resource or share a helpful tip. An IC Angel believes that by working together we can make a difference.

    On the ICN, our IC Angels will honor Diane's memory by maintaining her legacy of action. These aren't daily jobs.. and they can be temporary or may just need one task done. But, these are the projects that Diane and I had talked about. Real needs for real IC patients of all ages. You might help by running a support group or by contributing a story that helps to explain IC to children. Disability rights, job hunting (or how to work from home), how to locate affordable medications.

    What's needed?? VOLUNTEERS!!!! Here are a few of the categories

    (1) Support Group Angels
    (2) Support Group Coordinator
    (3) Newbie Angels
    (4) Angels for the Children with IC
    (5) Teen Angel
    (6) Senior Angel
    (7) Angels Who Work At Home
    (8) IC Angels of the Airwaves
    (9) Angels for Low Income Patients
    (10) Angels for the Holidays

    Read more about it, and the angel descriptions, at the link below!

    http://www.ic-network.com/icangels/
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  • #2
    That is just a great idea!!! I signed up!
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

    Comment


    • #3
      A great way to remember a special lady, I also signed up. Iris
      Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

      Comment


      • #4
        Thanks idea for great idea i also signed up and hope i can help! wink
        Medicine taken daily or as needed:
        1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
        2. MS.Cotin 100mg 3x daily
        3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
        4. Fentanyl 100 mg Change every 48hrs.
        5. Gentamicin 80mg install after each rescue treatment
        5 Leviquin 500mg self start as needed.
        6. Klonopin 1 or 2 daily as needed.
        7. Prosed/DS as 1 every 6hrs as needed.





        I have IC, but IC doesn't have me anymore!

        Comment


        • #5
          That is a great idea. I just signed up too.
          Hang in there , There is hope.
          There is hope. Prayer works.

          Love, Debbie

          Comment


          • #6
            Me too. I'll help all areas that I can!
            Hugs!!
            Tons of support,
            Jaime

            IC angel helping families in need for the holidays. [email protected]

            Comment


            • #7
              Jill, I would be willing to help anyone who needs it. Please just let me know. I have submitted my form for ic angels. I have spoken to many people concerning ic around my hometown, when i was dx. Please just let me know. Christine
              christine.

              Newbie Angel- Giving support to those new to the boards with IC

              Angel over the airways- Lets get the word out on IC!

              Comment


              • #8
                I have been in a terrible IC flare for the last 6 weeks or so, but to give back to someone who was always there telling me my life wasn't over, and who always tried to pick me up when I fell, it would be an honor! TO DIANE!!!

                The whole world will hear us, and if they plug their ears, we'll use sign language!!


                Kelli
                IC Angel: Proudly supporting the Children and the Elderly with IC.


                E-Mail: [email protected]

                http://www.myspace.com/lilmiss200595


                Revelation 21:4
                "And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away."

                Comment


                • #9
                  I agree with Kelli.
                  It could help to keep a more possitive out look.
                  This is a great idea.
                  Take care, Zookeeper Kim
                  Animals are very comforting when
                  pain & life gets you down...

                  Keep your head held high and don't let any thing bring you down.

                  Comment


                  • #10
                    I would be honored to help in any way that I can. This site has given my life back to me by allowing me to finally have the knowledge to get a diagnosis and not be told it is all in my head. Thank God for all of you and especially Diane who is now watching over all of us. We are truly lucky to have each other.

                    I have signed up and look forward to doing my part.

                    Love and hugs to all of you.


                    bunny bunny
                    Marcie

                    Comment


                    • #11
                      (Here's a note from Diane's twin sister Elaine that she asked me to share with you about the IC Angels program and perhaps a new fund in Diane's name that we can use to honor her memory)

                      Dear Jill, Thank you for replying to my letter, like I wrote what ever I can do. I believe that a scholarship program would be wonderful, and I think the whole family would be grateful to meet with you, after all, she loved you like you were her own.

                      I woke up this morning and I said to God, thank you that you love us so much that you give us a second home after this one is finished. Diane remembers no more pain and she is never in the dark but surrounded by the light of Gods throne. Hallaluia. God has a room for her in his mansion as well as for you and me and one day of his choosing we will be in that same mansion that she is in know. Please keep in touch. Its very hard. I have to stop crying.

                      Also Diane NEVER talked about her involvement with IC we never knew how wonderful she
                      was toward this great effort. Diane never let the sunshine on her self, she only gave the sunshine.

                      PLEASE thank members who have sent the letters to Russ and the wonderful Emails, he is so comforted by them. He himself is in awe over the love
                      Diane had all over the world, as well as Andy, Kathy, Wendy, my mom and Dad, and of course me her twin sister.

                      Jill you may pass along this message on your website. God bless every one who has this disease and may a cure be found quickly.
                      Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

                      Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

                      Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






                      Comment


                      • #12
                        Oh that brought me to tears. Thanks for sharing. What a humble women. angel
                        Faith, Hope, and Love,
                        Katrina


                        I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

                        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        or find me on facebook http://www.facebook.com/kat671?ref=profile
                        Be the Miracle! & Pay it Forward!

                        [email protected] please contact me...I am here to help!

                        Comment


                        • #13
                          Jill thank you so much for posting that sweet and wonderful letter. What a wonderful person she was and I know she is watching over us and helping us each and every day. angel
                          Medicine taken daily or as needed:
                          1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                          2. MS.Cotin 100mg 3x daily
                          3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                          4. Fentanyl 100 mg Change every 48hrs.
                          5. Gentamicin 80mg install after each rescue treatment
                          5 Leviquin 500mg self start as needed.
                          6. Klonopin 1 or 2 daily as needed.
                          7. Prosed/DS as 1 every 6hrs as needed.





                          I have IC, but IC doesn't have me anymore!

                          Comment


                          • #14
                            grouphug grouphug grouphug grouphug Jill, thankyou so much for sharing that beautfiul letter. It touched my heart. I am in favor of a scholarship in Diane's name also. How are you doing?
                            Hang in there , There is hope.
                            There is hope. Prayer works.

                            Love, Debbie

                            Comment


                            • #15
                              That was a beautiful letter from Diane's sister, and I think a scholarship is a wonderful idea to honor her memory, and the work she did for everyone. Thank you so much for posting, take care and a hug Iris hi grouphug
                              Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

                              Comment

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