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  • Religious debates, accusations are NOT acceptable on the ICN

    (I would like to take a moment to thank Amy, Ihurttoo, for making such a valiant attempt to moderate this very controversial discussion area of the ICN message boards. My decision to close this board has nothing to do with Amy nor do I want anyone to assume that her actions led to this decision. Religious debates have always been difficult, always challenging and I finally decided that it was creating too much antipathy for all concerned. Thank you Amy for doing such a great job in such a difficult area. You offered hope and comfort to many many patients and your efforts will be missed. - Jill )

    A little history. The ICN was the first support organization to offer small support groups for patients to gather with others of their same faith. Thus, many years ago, we had a christian IC support group, jewish, etc. etc. We learned, however, that religious discussions almost always became heated and created conflict. After 9/11, we had to suspend all religious boards because of the acrimony that occurred. We did create, however, a religious neutral board... our spirituality board. Unfortunately, that doesn't appear to be working now.

    I need to remind everyone that the ICN is not a religious support group. We are an IC support group that welcomes ALL religions and faiths. Whether a patient is christian, buddhist, jewish, agnostic, atheist or muslim, the ICN welcomes all patients in need.

    I am heartbroken to learn that a few patients on this board have communicated to other patients that "if they didn't convert to their religion" they would go to hell.. or that they would be better if they accepted "jesus." This is absolutely unacceptable. Worse, some have said that if they weren't of a specific faith, they weren't welcome on the ICN. THAT IS NOT TRUE!!! I founded the ICN. I determine who is welcome here.

    Thus.... I remind each one of you again... that we are SISTERS and BROTHERS in IC. We are here to support our struggles with this humbling condition. We are NOT here to judge others based upon their faith.

    If you receive any communication that criticizes or condemns you based upon your religious faith, I want you to forward that to me immediately via PM. This is NOT acceptable for our community and I am putting a stop to it today.

    If you have any comments, ideas or suggestions, please PM me. I need your ideas!

    Jill
    Last edited by icnmgrjill; 06-11-2007, 10:49 AM. Reason: spelling of agnostic. Sheesh!
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  • #2
    'The will of God will never take you where the Grace of God will not protect you.'

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    • #3
      It's horrible that this is happening. We are all here for support and should be supporting eachother not tearing eachother down.

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      • #4
        Jill I have never been told anything of the kind here. I find it very shocking that someone has , thanks again for all your hard work!
        Hugs Sandra: cat:
        "Never Give Up."

        To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

        My Photobucket Link:
        http://s237.photobucket.com/albums/f...ramack_photos/

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        • #5
          Jill,
          This is sickening to read that someone would be so nasty. I think we all need to respect each other no matter what. We are all in this together.

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          • #6
            This is Terrible. You are right Jill, IC is not about religion, it is about a terrible disease that is afflicting each of us, and this group is about supporting one another regardless of what religion we are. I am suprised to hear this is going on though. I think the ICnetwork is wonderful and has helped me immensely.
            Jen

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            • #7
              Jill, I don't know what to say except thank you for not given up on this website even when things goes wrong. Thank you for continuing this website and for letting us have this freedom to talk to one another about this awful disease and through it gettting the help we need deeply. I know it might sound small to say thank you but I truly thank you for all that you do.

              Sending many hugs, Trishann

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              • #8
                I agree with you girls, I just was at a lost for words.
                'The will of God will never take you where the Grace of God will not protect you.'

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                • #9
                  That is soooooooooooooooooo horrible. I really hope that whoever was doing that was banned.
                  current meds:
                  cytotec 200mcg twice daily
                  toprol
                  allegra

                  ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

                  dx: hashimoto's thyroiditis 1998
                  dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
                  dx: endometriosis 2003
                  dx: innapropriate sinus tacchicardia 2005

                  meds tried but failed:
                  elavil (6months)- severe tachycardia
                  elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
                  a bunch of others



                  Me and my best friend's baby (also my Godson!)

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                  • #10
                    I've never felt anything but warmth on this board but then I don't everyone. I myself, being an atheist, realize many people are religious. None of the people on the board have said boo about it......sometimes people have said things that l have felt a wee uncomfortable about but they don't know my spiritual place. I would never begrudge anyone their spirtitual path, as long as they don't get grumpy with me about mine. (my daughter's BF asked once where we worshippd satan!!!(SATAN...for petes sake..oh yeah...that little garden in the back in the shape of a pentagram...had to get reallly dark purple begonias to make it real)

                    I gotta go...took me an hour....my migraindz are making a fog of my brain. and I have spots floating infront of mh eyes. I predict a doozy of migrain. crap.
                    T
                    Last edited by MakinIT; 05-22-2007, 02:37 PM. Reason: add words
                    I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                    Medications I CURRENTLY take:
                    90 mgs Ms contin (45 mgs Am/PM)
                    Percocet as needed
                    Topomax 100mg day
                    Ambien 10 mg bed
                    desipramine 25 mgs




                    If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                    Albert Einstein

                    Comment


                    • #11
                      I read this when I was at work and didn't have time to reply. I agree with Tracey though I have never felt anything but support and caring here. I am not really religious myself but I understand that people are and respect that. I had no idea that these types of things were going on and am totally shocked. I hope that there won't be any more problems.
                      Christine



                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                      I have tried every oral medication as well as rescue instills and DMSO.

                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                      Also proud mom to the best Bullmastiff on earth, Claus

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                      • #12
                        although I am a Christian I would never push my beliefs on anyone. I always sign off blessings and Hugs because that is what I wish for each one of us. I learned early on with my best friend (she is of a different belief than me) that you cannot push your beliefs onto others. Those who do need to stop right now! as Jill said we are all brothers and sisters in this nasty horrible disease. Prejudice has no place here!
                        Blessings & Hugs,
                        Eva

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                        • #13
                          I was at work when I read this, and was totally shocked that this is going on, like some of the others, I didn't know it was. I am religious, but not as much as I really should be (does that make any sense??) I don't push it on any one.
                          We are all here for one reason only and that is to help and support each other with this illness. Thank you Jill and Donna and the others too numberous(?) to name who has held this support board together though the years. I feel you will be truly blessed in the long run.

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                          • #14
                            Re: My post (#10, I think) I was so out of it when I wrote it...I'm in such pain from my mgraines...but my first sentence was suppossed to say "i don't know everyone on the board". I missed an important word back there. I have to wake up my muchaca (better to be called that that than monster!!!) So I'll be back in abit!!

                            Tracey
                            I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                            Medications I CURRENTLY take:
                            90 mgs Ms contin (45 mgs Am/PM)
                            Percocet as needed
                            Topomax 100mg day
                            Ambien 10 mg bed
                            desipramine 25 mgs




                            If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                            Albert Einstein

                            Comment


                            • #15
                              It sickens me to believe that people are doing this on this support board!! I've had this happen to me my whole life and dont not wish this to happen to anyone here on this board. It's ok to have your own beliefs but NEVER force them upon anyone else. It's not right. This board is about supporting each other during the good and bad times. Please stop this religious debating!!!!
                              ***Rachel***

                              Dance like no one is watching
                              Love like you've never been hurt
                              Live today like it's your last

                              Dxd with IC in June '06

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