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New Pelvic Pain Retreat - Fabulous opportunity to work with leading experts in IC

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  • New Pelvic Pain Retreat - Fabulous opportunity to work with leading experts in IC

    This is fabulous news. This November, the awesome urology and pelvic pain team at Beaumont Hospitals Women's Urology Center (Royal Oak, MI) are offering a new five day pelvic pain retreat. If you would like a second opinion, would like to work with experienced physical therapists and medical care providers, receive daily support, or if you do not have an IC or pelvic pain specialist near you, this could be the perfect setting for you. It is open to international patients but translators are not available. You must speak english to attend. Yes, it does have a fee attached to it which may be unaffordable to many patients but if this is successful, they may do more and create yet more services. Think about it and spread the word! - Jill

    A Comprehensive Five-day Pelvic Pain Retreat

    An individualized program for pelvic pain management

    If you are living with any of the symptoms listed below and have not found adequate relief, we invite you to join us for a five-day intensive retreat created just for women like you.

    We have found that a comprehensive approach is most effective in alleviating chronic pelvic pain symptoms. You will have a one-on-one clinical evaluation with experts in chronic pelvic pain, an individualized treatment plan created just for you, and several daily interventions to help ease your symptoms. You will be given the information you need to continue this plan of care after this retreat week. We invite you to take this special time for yourself... to care for yourself... and improve the quality of your life.

    WHEN: November 7-11, 2011
    WHERE: Women's Urology Center, Beaumont Hospital Royal OAK MI

    This unique treatment program is designed for women over 18 years of age with any of the following issues:

    • pelvic pain not associated with periods
    • pelvic pain for more than three months
    • pain related to pelvic floor dysfunction (tightness of the muscles)
    • pelvic pain that may be accompanied by urinary urge or frequency
    • pelvic pain that may be accompanied by vulvar pain/burning

    This retreat program includes:
    • a history and physical examination by specialists in pelvic pain
    • development of an individualized plan of care
    • pelvic floor physical therapy
    • medical treatments if indicated
    • psychological tools and support
    • integrative medicine therapies, including clinical massage, guided imagery, Reiki, yoga and stress reduction strategies
    • resource gift bag
    • continental breakfast each day

    Retreat Staff:
    Kenneth Peters MD
    Jason P. Gilleran MD
    Donna Carrico WHNP, MS
    Michaelle Schaffrach RN MSN
    Gail Elliot Evo
    Jan Tomakowsky PhD MPH
    Kristen Maike PT
    Andrea Sanfield PT
    Lisa Obadachian PT
    Catherine Veeser PT

    Registration information:
    Registration fee: $750
    Payable by check, money order or credit card (Visa, MasterCard, American Express, Discover).

    Registration forms and payment are due by Oct. 1, 2011.
    Fees are non-refundable after Oct. 14, 2011.

    Clinical services will be billed to your insurance; you will be responsible for clinical services/co-pays not covered by insurance. Optional supplemental materials/resources for home use will be available for purchase. Upon inquiry, a packet of information will be sent, with accommodation recommendations, directions and registration forms.

    Your registration includes:
    • daily integrative medicine therapies (massage, Reiki, guided imagery, yoga)
    • daily educational sessions related to your pain and treatment
    • psychological tools and support
    • resource gift bag
    • continental breakfast each day

    Additional Information & Registration Form:

    Download the brochure at:

    or contact them directly at:

    Women’s Urology Center
    Beaumont Hospital, Royal Oak
    3601 West 13 Mile Road
    Royal Oak, MI 48073
    Phone: 248-898-0898
    Fax: 248-898-1661
    Last edited by icnmgrjill; 08-16-2011, 12:39 PM.
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality.

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    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.

  • #2
    This sounds amazing Jill...thanks for sharing! Seriously thinking about going. My insurance will most likely start in November, but not sure I can get off work.


    • #3
      Sounds great ! I will pass this information to my lady friends who have pelvic floor problems. Wish I could find something like this for males.(Male with bladder and pelvic floor problems).


      • #4
        Thanks for passing this info on to us! It really does sound amazing! I am also seriously considering going. But, it is about a 12 hour drive for me, so I would have to split it up over 2 days to drive it since my bladder would be hollering at me if I tried to drive that long. (I am too poor to fly.) But, I think it sounds really great and really am considering this. Cant wait to see who else is thinking about going!
        I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

        D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

        Meds: Estrogel (due to total Hyster)
        The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)

        (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)

        John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.


        • #5
          Pelvic Pain Retreat

          Did anyone from ICN go to this? How was it? Worth the money?
          Current Medications:
          Trileptal - MS
          Amantadine - MS fatigue
          Trazadone - sleep
          Elmiron -since March 2007
          Gabapentin - pain
          Citracal - osteopenia
          Vitamin D - deficient
          Valium vaginal - as needed
          Prelief - as needed
          Fish Oil