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  • California Stem Cell Treatment Center Study Seeks Participants

    Editors Note - January 9, 2012 - Sixty Minutes did an expose last night on Stem Cell charlatans that are currently promising cures for incurable conditions through their offshore clinics located in Mexico, Ecuador and elsewhere. The Sixty Minutes story was superb, revealing just how vulnerable patients facing a serious diagnosis can feel. Specifically, they covered a physician who had lost his license in the USA for, apparently, pedophilia. He relocated to Ecuador where he started marketing stem cells treatments and "cures" for many conditions including cerebral palsy and Lou Gehrig's disease. It was patently obvious that the guy is a crook profiting off of desperate patients and apparently breaking US law by exporting stem cells into the USA through a website.

    This story did NOT refer to any US based stem cell research center nor did it implicate any US based stem cell researchers, such as Dr. Eliot Lander at the California Stem Cell Treatment Center. Dr. Lander is, in fact, attempting to study the effect of stem cells on IC and several other conditions. We all CLEARLY UNDERSTAND that no health claims have been made regarding the effectiveness of stem cell treatments and IC. However, as the researchers at Duke University said in the story, research is in progress and we hope and pray that they will show effectiveness. - Jill


    - - - - - - - -

    Editors Note (09/26/11) - One of the key missions of the IC Network is to present the latest information about potential therapies so that you, our readers, know what's coming down the research pipeline. In the past year, stem cell therapy has been a hot topic in support groups and the web. Patients are asking a lot of questions for which we have few answers. There are NO published research studies proving that stem cell treatment can be effective for the treatment of IC, nor are stem cells approved by the FDA for the treatment of any medical condition. Board certified urologist Dr. Eliot Lander of the California Stem Cell Treatment Center hopes to answer some of those questions by conducting a pilot study on the use stem cells in the treatment of IC. One significant barrier, however, is the cost as there is no large pharmaceutical company underwriting the study. This is a new line of research that is potentially exciting but it should be approached carefully and cautiously. We encourage you to visit their website to read more about it, explore the potential pros and cons (i.e. potential safety, cost, etc.) and talk with your physician about it. - Jill

    - - - - - - - -

    The California Stem Cell Treatment Center is currently looking for 20 to 30 patients with IC for their first pilot study to derive useful information about side effects and possible effectiveness.

    How does stem cell therapy work?*

    We are using stem cells to regenerate damaged human tissues. After giving our patients an IRB compliant consent, we harvest their own stem cells in a 20 minute liposuction under local anesthesia. We then isolate extremely high numbers of viable stem cells and then deploy them through various methods including, intravenous, intra-arterial, and intravesical (into the bladder). These cells can repair or replace damaged cells and also can effect repair in damaged cells by secreting chemical messengers that send signals for tissue regeneration. We do not use stem cells derived from human embryos.

    What specifically do you believe this therapy is doing for an IC bladder wall??

    Stem cell regeneration is uniquely suited for a disease like interstitial cystitis. Although the exact cause of IC remains elusive, we know that there can be urothelial and smooth muscle damage. We know that stem cells will incorporate into bladder smooth muscle and we know that stem cells have systemic immune-modulatory and anti- inflammatory effects that are important to consider in a disease like IC that has profound systemic effects. I have been a urologist for 24 years and have diagnosed and treated numerous patients with IC. I have a special understanding of the needs of the IC patients and the feelings of desperation this disease can cause. There is some solid basic science (see our website www.stemcellrevolution.com) to back up what we are doing and of course a lot of hope riding on this project.

    What's the status of your research to date?

    We have been seeing excellent early results on our orthopedics program treating hips, knees, shoulders, and chronic back pain. We are currently targeting a number of other degenerative conditions, and in urology this includes erectile dysfunction, Peyronies disease and of course, interstitial cystitis. We are just starting to accumulate data and we hope to have some preliminary answers within the next 12 to 24 months. If we see no adverse reactions and some hopefully some efficacy, we plan to submit our data to the FDA and then conduct double blind trials to confirm our findings. In the meantime, we continue to see patients and accumulate information and hone our deployment methods. We are using many innovative and advanced interventional radiographic deployment methods in addition to traditional cell delivery methods.

    What is patient funded research?

    We are financially, politically, and intellectually completely independent of government or industry sources of funding. This is a luxury but also a privilege. We are charging our patients for stem cell deployments but we have kept costs at least one tenth those seen in stem cell treatment centers in Europe and around the world in an effort to lower the threshold for enrollment. For most diseases we charge under $9,000 but for IC we are charging a consult fee and $4500 (as a courtesy to the ICN for our initial patients).

    How should patients contact you?*

    They can visit our website http://www.stemcellrevolution.com or call 800-231-0407.

    We have an excellent FAQS section on the site where patients and physicians can learn about this new technology.
    Last edited by icnmgrjill; 01-09-2012, 10:42 AM.
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  • #2
    Stem Cell Therapy

    I have just applied as a candidate. I don't know if I will be accepted under the current medical state of my bladder. I will update this post when I find out more information.
    cwood

    Comment


    • #3
      California Stem Cell

      They have records that this works in mice after 3 months. Mice life is shorter than human life, thus it could take longer in humans.
      It costs 250.00 to talk to the doctor (Dr. Lander) as long as you want to talk. This is put tword the 4500 total fee. I paid this. He is a very nice man.
      At the end of November they had done 4 people. The longest is approx 2.5 months at that time w/a Canadian woman. A Florida Dr. also did it on Oct 17th. I am in contact with both. I have not been able to get ahold of the woman in Japan as she travels alot, and we are not sure the email address is correct. She is the 2nd patient they worked on 2 weeks after the woman from Canada. A woman fom Mexico has also done it recently. Both of the people I have contacted sounded to me like they have had some limited positive results, but it's too soon to tell much, as follow up is officially at the 3 and 6 month points. This is not a quick fix. It takes time to heal the bladder.
      I may try it, as I am very frustrated at this time. I have tried everything... I sit typing this in pain. I would have been there by now, but my husband is reluctant.
      email me if you want at [email protected]
      Fibro 15 yrs.
      IBS 19 yrs, but removed Gluten and now almost normal gut/colon. Still have distended belly.
      IC since 2005, with one remission.
      Huge amts of chocolate, is what I believe caused IC.

      Currently on:
      Fem Dopilis (helpful during extreme pain, when I mess up on the diet)
      Coconut Oil (1 to 3 TSP/day) Very helpful
      Couchgrass Tea (great for Flairs)
      Lots of suppliments/vitamins that are IC friendly

      No Sugar, Gluten, Dairy diet as well as IC diet and low salt diet.
      Rarely in pain if I follow the diet strictly. Trouble is I tend to cheat in one way or another too much. Like white wine!

      Comment


      • #4
        LisaDeb,

        It was so kind of you to post this!

        Natasha
        Frequency/Urgency, Mild Pain, Spasms, Pressure

        I have tried:
        Bladder Spasm medications and antidepressants - all cause mydriasis
        Antihistimine - Mydriasis
        Cyclosporine - side effects
        Elmiron - side effects
        Interstim
        Botox - can't pee but need to all the time
        Mild Hyrdo
        My 11 year old german shepherd taken away because I am no longer able to care for him. Feeling yet another failure.

        I am trying:
        Omega 3
        IC and anti oxalate diet but staying on Cystoprotek
        Acacia Fiber (helping some)
        Hugs and Kisses from my German Shepherd

        Comment


        • #5
          There is a doctor in California doing a study on whether Humira is effective for treating IC. He said he has had positive results with this drug. His name is Philip Bosch, MD. Just another option to investigate. I am interested in seeing results of the stem cell procedures myself.

          Comment


          • #6
            LisaDeb

            I have sent you a private message
            Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

            I have moderate-severe IC

            Currently stopped taking all medications due to pregnancy

            Comment


            • #7
              Be careful

              60 Minutes did an expose last night (01-08-12) of stem cell research and the massive fraud out there where charlatains are taking advantage of desperate people like those who have IC. Do your research please.

              They interviewed a doctor (a stem cell researcher) at Duke University who said there is currently no condition that stem cells have worked on. She predicts that it will be 10 years before we have any substantial results.

              You might be able to replay the 60 Minutes broadcast by going to CBS' web site.

              Sorry to take away anyone's hope for an immediate cure, but that's not as bad as someone taking your hope and your money. I want and need the cure just like anyone else with IC.

              Comment


              • #8
                thanks for your concern but I dont the the ICN would post information on the California Stem Cells research center or thier physicians and treatments if something seemed fraudulent about it. It would risk the reputation of the site. The California Stem Cell Treatment Center dont make any promises to cure anyone and the clinical studies they have done are on mice and they have done some on people already. They were very honest with me as to what to expect and not expect when I spoke to them. So I think the ones that CBS are talking about are likely isolated incidences. Just my thoughts
                Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

                I have moderate-severe IC

                Currently stopped taking all medications due to pregnancy

                Comment


                • #9
                  I added this to the top of the story.. but I am also placing it here!

                  Editors Note - January 9, 2012 - Sixty Minutes did an expose last night on Stem Cell charlatans that are currently promising cures for incurable conditions through their of shore clinics located in Mexico, Ecuador and elsewhere. The Sixty Minutes story was superb, revealing just how vulnerable patients facing a serious diagnosis can feel. Specifically, they covered a physician who had lost his license in the USA for, apparently, pedophilia. He relocated to Ecuador where he started marketing stem cells treatments and "cures" for many conditions including cerebral palsy and Lou Gehrig's disease. It was patently obvious that the guy is a crook profiting off of desperate patients and apparently breaking US law by exporting stem cells into the USA through a website.

                  This story did NOT refer to any US based stem cell research center nor did it implicate any US based stem cell researchers, such as Dr. Eliot Lander at the California Stem Cell Treatment Center. Dr. Lander is, in fact, attempting to study the effect of stem cells on IC and several other conditions. We all CLEARLY UNDERSTAND that no health claims have been made regarding the effectiveness of stem cell treatments and IC. However, as the researchers at Duke University said in the story, research is in progress and we hope and pray that they will show effectiveness. - Jill
                  Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

                  Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

                  Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






                  Comment


                  • #10
                    Stem Cell Research

                    My brother's partner is a plastic surgeon. Voted best in Florida, Dr Sassini has done stem cells on my brother and mother. See takeshape.info. Look at men's photos before and after with stem cells (only one is on thier website). Dr Sassini says many plastic surgeons are doing this to themselves by going to other plastic surgens friends of theirs to have it done to them. Older faces get plumper skin. This is going to be big in plastic surgury. My mom did her whole face.
                    Fibro 15 yrs.
                    IBS 19 yrs, but removed Gluten and now almost normal gut/colon. Still have distended belly.
                    IC since 2005, with one remission.
                    Huge amts of chocolate, is what I believe caused IC.

                    Currently on:
                    Fem Dopilis (helpful during extreme pain, when I mess up on the diet)
                    Coconut Oil (1 to 3 TSP/day) Very helpful
                    Couchgrass Tea (great for Flairs)
                    Lots of suppliments/vitamins that are IC friendly

                    No Sugar, Gluten, Dairy diet as well as IC diet and low salt diet.
                    Rarely in pain if I follow the diet strictly. Trouble is I tend to cheat in one way or another too much. Like white wine!

                    Comment


                    • #11
                      Hmm. I wonder what the doctor on the 60 Minutes report meant when she said there aren't any instances where stem cells have been used successfully.

                      Comment


                      • #12
                        I know this is old but this place and Doctor Lander are legit. I just did a study for him with Elmiron and Liposomes, it helped some but we'll go from here. Stem Cells have helped but they are washing out, I don't know if they are healing the lining or not but I really think they would IF they didn't wash out, so right now He's working on figuring out how to get the Stem Cells to soak into the bladder wall to do the trick. I verified Dr. Lander by this site and the interview icnmngrjill did. Thank you INCMNGRJILL. I feel like I'm in with a doctor who really wants to cure this not just treat it. Seriously check him out he really wants to help, I talk about the guy a lot but I refuse to accept this a condition that cannot be cured we have too much technology and we know too much about the human body and it's ability to repair itself. Not to mention Tengion and Wake Forest built bladders out of stem cells, lining and all. Sorry Ramble...

                        Comment


                        • #13
                          Thanks WLK. Yeah, he's a really nice man and he truly cares. He told me about that new research about two months ago and it's very exciting. A liposome would be an excellent way to bring elmiron deeper into the bladder wall. I know he's looking for some research money to help fund a larger study! He's willing to think outside the box and that's what the IC research movement needs! - Jill
                          Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

                          Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

                          Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






                          Comment


                          • #14
                            I am doing the stem cell treatment at the California Stem Cell Treatment Center next month. I believe he has worked on 11 people so far and has had anywhere from 30% to 100% improvement in the 11 people. I have severe IC and suffer greatly so this is an option I am willing to try. Even if I only get 30% better it is still better then where I am today.

                            I will keep you posted after I get the treatment. Praying that this is the answer for me.

                            Comment


                            • #15
                              Obviously, please let us know how you do. I'll add you to my prayer list. God bless. We'll be waiting to hear the results.

                              Comment

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