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  • #1

    A Sad Announcement - ShelleyNZ

    It is with a heavy heart that I share that ICN Member ShelleyNZ, who was very active on this board last year, has passed away suddenly. Last week, she simply fell asleep and did not wake up. She was in her early 50's. Please say a prayer for her and her family.

    Hugs,

    Jill
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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  • #2


    Thank you, Jill, for letting us know.
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      So young, may she rest in peace ...

      Comment

      • #4
        OMG, So young indeed!
        MARY


        Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....

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        • #5
          Prayers for her and her family
          Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

          11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
          8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
          8/2010 Surg gallbladder
          TREATMENTS (updated 4/15)
          IC Diet since 8/2009 (Able to vary 4/15)
          Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
          Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
          Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
          *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
          Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
          PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

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          • #6
            Very sad to get this news. Thanks for letting us know, Jill.

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            • #7
              SueC
              [email protected]

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              • #8
                sad news

                Very sad news.

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                • #9


                  may she rest in peace. Thank you Jill for passing that along.
                  Minds are like parachutes-they ony function when they are open.
                  -Thomas DeWar-


                  ICN Newbie Volunteer


                  *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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                  • #10
                    She was a super-nice lady; we were pen pals for a while a few years back. She would write long, personal, newsy letters that made you feel like you went way back together. It's so sad.

                    Comment

                    • #11
                      So very sorry to hear this.
                      Jolene

                      "Life is what happens when you are making other plans" John Lennon

                      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                      Information for Patients can be found here.
                      http://www.ic-network.com/patientlinks.html


                      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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                      • #12
                        I didn't have the pleasure of talking with her as I joined just a few days ago but my prayers & sympathy go out to all who's lives she touched. May her soul be at rest and her heart delight in the presence of the Lord!
                        XOXOXO, Kathryn

                        PERSONAL:
                        Anxiety/panic disorder, asthma, hypertension, interstitial cystitis, obsessive compulsive disorder, PMDD (premenstrual dysphoric disorder), post-cholecystectomy syndrome with irritable bowl syndrome- diarrhea
                        SYMPTOMS:
                        (IC): lower back & flank pain, lower (left) abdominal pain, urgency (I have perfected the "pee pee dance"), frequency (10-15x), night sweats
                        MEDICATIONS:
                        Lisinopril; Lamictal, Paxil; Ocella BCP; Colestid (PRN), Levsin SL (PRN), Zofran ODT (PRN); Allegra; Oxycodone/Acetominophen

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                        • #13
                          Its always sad to hear of someone leaving us so early in life, my heart goes out to this young lady,s family. best wishes from myself and my family. Helen x

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                          • #14
                            This is so sad to hear.
                            I just started a IC diet/low-oxalate diet blog! http://jennysicparty.blogspot.com/

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                            • #15
                              This is so sad. Prayers going out to her family. May she rest in peace and feel no more pain in heaven with Him.
                              Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

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