Announcement

Collapse
No announcement yet.

Neurontin

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Neurontin

    Has anyone taken Neurontin for their IC (It helps with nerve pain)? My new doc put me on it, and I read about some possible side effects that sound pretty bad. I guess most prescriptions have risks though.

  • #2
    I was on it prior to pregnancy I loved it.. I will go back on it when I have my son! it truly does help with some of the pain.. not all of it... neuropathic pain is what happens to us when we havent gotten proper treatment for the pain we are in.. it sucks alot... I hate it.. knowing that my body will likely not be the same ever again sucks!


    I'm Jenna!
    Diagnosed with IC Late 2009.
    Suspected Fibromyalgia/IBS
    Diagnosed with Severe Anxiety/PTSD 2008

    Pregnant with #1 ((Aidan)) Due September 18th, 2011
    2 furbabies Olly , and Pretty

    Pregnancy Meds:
    Prelief (as often as needed)
    Elmiron 100mg 3x a day
    Pyridium
    Vistiril 25-50 mgs at night
    Celexa 10mg in the AM
    Tylenol 625mgs as needed
    Percocet (when they let me have it)
    Ice packs, Heat packs
    Sitz baths
    IC diet

    Don't work:
    Ditropan, Detrol LA, Instills, Biofeedback.

    Praying for a cure

    Comment


    • #3
      I am on it again, along with cymbalta. Between the 2 medications I am pretty much pain free. Yes, all medications have to lists their risks but that is not to say you will get all of them- they just have to lists them. Hope that makes sense?

      Comment


      • #4
        How long have you ladies been on neurontin? Have you noticed any differences in your mental or physical health?
        Thank you for the responses! I already fell better about taking it.

        Comment


        • #5
          I started with one pill on Sunday night and another pill on Monday night. It worked so well, I felt like I had died and gone to heaven. No pain, and no peeing every single minute. Unfortunately, I felt like I was losing my mind, and probably could not tell you my name, address, or phone number if asked. A very scary feeling, I had to stop it.

          Comment


          • #6
            Vanilla~ How many mgs were you taking, and what time of the day were you taking it?

            Comment


            • #7
              neurontin

              Originally posted by vanilla View Post
              I started with one pill on Sunday night and another pill on Monday night. It worked so well, I felt like I had died and gone to heaven. No pain, and no peeing every single minute. Unfortunately, I felt like I was losing my mind, and probably could not tell you my name, address, or phone number if asked. A very scary feeling, I had to stop it.

              Vanilla,
              Maybe you could speak to your doctor about cutting the dose.
              Not to compare you to our dog, but he takes Neurontin in a tiny dog dose and tolerates it fairly well,(it does make him sleepy). Of course, he couldn't tell me his name before he started the medicine, so it's hard to tell how much it's actually affecting him!

              Comment


              • #8
                Each pill had 300 mg. It does seem excessive, as I noticed in most signatures on this forum the daily dose is 300, whereas this doctor wanted me to start one pill once a week and then 2 pills for the second week and 3 pills by the third week, with a grand total of 900 mg of Neurontin daily. He told me some of his patients take 4000 mg a day. I couldn't imagine taking that much. I wouldn't be able to find my way out of paper bag. Seriously! I told my GP, and he said, well it's not like you're popping tic tacs.

                Bubble thanks for the suggestion but I don't think Neurontin is for me.

                Comment


                • #9
                  I was taking the pill around 7 pm.

                  Comment


                  • #10
                    Vanilla~
                    I can definitely see why that would make you so out of it. Eveything negative I read about it was from people who were taking really high doses (ie 1000mg-4,000mg/day). Fortunately, I'm only on 200mg /day, and was directed to take it a bed time, so I haven't had anything like that happen....yet. I appreciate your feedback! Take care.

                    Comment


                    • #11
                      For Neurontin I am taking 900mg daily. When I was taking it awhile back it was 1800mg. The doctor wants me to go back up there to that amount as yes he told me some patients take quite a bit of it. But with Cymbalta there is no way that I can do more than the 900 as I get loopy; and with the hot weather we are having by the time I get home I am so tired that I fall asleep before 7:00

                      Comment


                      • #12
                        Yeah I think I might need to up the dosage because I haven't had any pain relief since I started taking it. I have noticed that I don't have to go to the bathroom near as much, but I would rather not be feeling pain! I'm also taking Uribel. It helps some with pain, but not completely. The only thing that takes away the pain is lortab, and I hate having to take those everyday.

                        Comment


                        • #13
                          Neurontin

                          This drug allowed me to sit where I couldn't for months. I'm on the max dose of 3600 & I'm fine with it.

                          Comment


                          • #14
                            Neurontin .....

                            I was advised by my IC specialist to be placed on Neurontin and I have been on the medication for one week. So far sooooo good ! I do not have any side effects and I am feeling great. Just remember, not all medications work for everyone so be patient as I have learned
                            Belle
                            Readers Digest Version of my Urinary History:Urinary Tract Infections since age 19
                            VCG x 2
                            IVP x 1
                            Ultrasound of kidneys x 3 (currently have kidney stone)
                            Dilation of Uretha x 2
                            Diagnosed with IC 2008 age 48
                            Cystoscopy with Overdistension of Bladder x 4
                            2008, 2009, 2010 and 2011
                            First Overdistension of Bladder had great results, last one I had pain >10 for 30 days
                            ...............................................................
                            Current Medications
                            Elmiron, Elavil, Lyrica, Klonopin, Tagamet,
                            Macrobid (PRN) for infections, Glucosamine with Chondroitin, Fish Oil, Calcium with D, Acidophillus,
                            Baking soda 1 tsp w/water PRN, Prelief, Estrace Cream, Combipatch, Fiber tabs, Diastat (for flares)
                            .................................................................
                            Did Not Work for Me
                            Detrol, Vesicare, Toviaz, Goldenseal, D-Mannose, Quercitin

                            Comment


                            • #15
                              Belle- I hope it works for you!!!
                              I tried it, and like Vanilla, I started losing my mind....literally. Couldn't remember anything. Plus it made me feel like I had a hangover everyday. Hopefully you don't get any negative side effects!!!!

                              Comment

                              Working...
                              X