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I was just watching my local news out of Oklahoma City and they had a story on the top 3 causes of pelvic pain in women. IC was not only on the list but it was designated as the most painful of all. They also gave the IC-network website to go to for support and information. It was a good report and very validating for all of us who have it. The other 2 causes were pelvic floor dysfunction and endometriosis. They did a previous story on pudendal neuralgia that actually led to this story. So proud that slowly we are all getting the word out there! Hopefully it helped someone out there!
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Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
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DX: IC - November 2002 after hysterectomy
Interstim implanted March 2006 - died May 2011
Interstim replacement June 2011
Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
Docs: Pain management doc, urologist, family practice -
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We need a like button on here like FB!Link to the patient information, everything from What is IC? to Disability
http://www.ic-network.com/patientlinks.html
American Urological Association Clinical Guideline
Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
http://www.auanet.org/content/guidel...ent_ic-bps.pdf -
That is so very exciting! And you are right, maybe someone watching it and undiagnosed may say "holy moley, that is me! I need to talk with my doctor about it" and get the help they need.
What is the TV station, call letters, etc. Maybe we can get it online, or ask them to put it there. That is a big WOW, would love to see it, and maybe e a copy to OUR local TV station in Maine. Thank you so much.
Jill, wife of Bob
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