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The Year In Review - The Top Ten IC Stories of 2010

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  • The Year In Review - The Top Ten IC Stories of 2010

    Here's my list of the top ten IC related stories for 2010?? Do you agree?? Disagree?? Did I miss something??? Let me know!

    10. Generic, Affordable Elmiron? - The patent for Elmiron expired in early January 2010, thus opening up the opportunity for it to be produced in a lower cost, generic form. Stay tuned in 2011 for some exciting news! - http://www.ic-network.com/forum/showthread.php?t=62226

    9. Dietitians Get Educated - Interstitial Cystitis: A Guide For Nutrition Educators was released last March. Written by prolific IC author and registered dietitian Julie Beyer, this marks the first time that comprehensive information on IC and how diet impacts our bladder symptoms was released to nutrition professionals around the country. Throughout 2010, Julie visited conferences and events around the USA to share this vital news for IC patients. We applaud her efforts! - http://www.nutraconsults.com/press%20release.html

    8. Colloidal Silver Named Most Dangerous Supplement - In the past twenty years, colloidal silver has been heavily promoted to IC patients seeking alternative therapies without a single study showing effectivenes in the treatment of IC.. In 2010, it was named one of the most dangerous supplements by Consumer Reports with possible life threatening side effects. Beware false cures!- http://www.consumerreports.org/healt...ents/index.htm

    7. Clinical Trials Halted - Two key IC clinical trials were halted this year. The Uracyst pilot trial had hoped to develop data to support FDA approval. Sadly, the results were not ideal. http://www.ic-network.com/forum/showthread.php?t=67377 Pfizer had great hopes for the medication Tanezumab in treating pain conditions. Unfortunately, some patients participating in chronic low back pain and diabetic neuropathy trials apparently developed severe osteoarthritis requiring joint replacement. The newly launched IC trial was suspended at the same time. http://pfizer.mediaroom.com/index.php?s=5149&item=11206

    6. Medical Marijuana Debate Progresses - If we can take out the component of marijuana that makes people "high" and isolate the pain fighting ingredients would that be a legitimate use for medical marijuana? This was our debate point in the Summer/Fall issue of the IC Optimist magazine, revealing several new and promising studies including a synthetic cannabinoid MDA19 that may provide effective pain relief WITHOUT the mental and physical side effects of cannabis as well as a possible new bladder treatment derived from a marijuana derivative that is currently under development. - http://www.ic-network.com/forum/showthread.php?t=65566

    5. The Status Quo Is Not Good Enough - "You should not tell a man with pain between his nipples and knees that he has prostatitis without doing a proper history and physical examination" is just one of the twenty three points that Urologist Dan Shoskes makes in one of the best essays of the year. Yes, he's talking about prostatitis but many of his points apply to IC as well! http://www.ic-network.com/forum/showthread.php?t=65007

    4. Vitamin D May Help Prevent Pelvic Floor Dysfunction - A study released in June 2010 found that women struggling with pelvic floor disorders had significantly lower Vitamin D levels, as well as higher incontinence levels. The authors concluded that higher Vitamin D levels are associated with a decreased risk of PFD. - http://www.ic-network.com/forum/showthread.php?t=65142

    3. Physical Therapy Found To Be Successful In National Study - At May's AUA 2010 conference, Dr. Christopher Payne announced the results of a multi center randomized trial of physical therapy in the treatment of IC which represents the first true success of a federally funded IC treatment study. It proved that physical therapy can and will improve the symptoms of some patients. - http://www.ic-network.com/forum/showthread.php?t=64940

    2. IC Awareness Month - The first month long awareness campaign dedicated to IC set the stage for years to come with new media stories, social networking awareness projects, videos and a proclamation campaign that had city mayors and state governors dedicating a day to IC awareness. - http://www.icawareness.org

    1. AUA Clinical Guidelines Released for IC - The highlight of the year was the release of the new American guidelines on interstitial cystitis that offers a new five step protocol for treatment. Read more at: http://www.ic-network.com/newsletters/ezine0610.html
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  • #2
    Great list Jill and I agree they were all very important to us in 2010! I am looking forward to a great 2011 for us with IC!
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

    Comment


    • #3
      year in review

      Thanks, Jill. This is a great list, very informative and hopeful.
      Laurie

      Comment


      • #4
        Thank you for the reminders. Maybe next year we can add that a cause and cure have been found.

        Warm hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Ummm.... I can't believe everyone missed the big HINT in #10!!!

          Jill
          Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

          Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

          Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






          Comment


          • #6
            #10 .... that will be great news! I am allergic to it and can't use it but it will be great for those who can.
            Jolene

            "Life is what happens when you are making other plans" John Lennon

            IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

            Information for Patients can be found here.
            http://www.ic-network.com/patientlinks.html


            Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




            Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

            "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

            Comment


            • #7
              Hi,
              So we can expect a generic Elmiron to be on the market soon????

              Jill:-)
              "Where there is hope there can be faith. Where there is faith, miracles can occur."

              Comment

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