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  • Are you crying more??

    I just received an email from an IC'er who asked if crying was normal with IC. She said that she had never been a crier... that she was also a very calm, stable woman UNTIL she began experiencing IC. Here was my answer:
    Yes, crying is absolutely normal and it has to do with the type of pain IC produces. It's, for lack of a better term, "organ" (aka visceral) pain that goes to a different part of the spinal cord where it is delivered to a different part of the brain that, sadly, is right next to the limbic system.. the area which controls crying. So, you may not be crying because you are "sad" as much as you are crying because you're in pain and that part of your brain is being stimulation. I cried A LOT too my first year when my pain was very high.

    I do think that if you are finding yourself depressed and/or feeling as if you're fragile, it's always important to find someone that you can talk with, such as a counselor, psychologist or spiritual leader so that you can voice your concerns, ease your mind and spirit and just find some rest. My best friend doesn't have IC and works in psychology. She ends up hearing me rant about various things related to my health and I'm so grateful because she understands that I do need to voice it.

    I also love journaling especially when I'm feeling down in the dumps or anxious. Just starting the day by writing in my journal about what's going through my head is amazingly freeing and comforting. It's like I'm unloading my worries so that I can start the day fresh.

    Also, don't underestimate the role that perimenopause and menopause can play with your emotions and emotional health.

    And so I thought I'd ask you guys! Are you crying more?? If so, are you actually feeling sad or are you just in pain?? It's weird, eh? What are your thoughts on this??

    Jill
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  • #2
    I think so, yes, and I don't have the pain. Having to go to the bathroom this much just puts a black cloud of depression over my head, so anything is more likely to make me cry.
    ~Ashley

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    • #3
      oh Thank you SO much for posting this!! I was never a crier before IC. And sometimes I just cry and cry when I am in a lot of pain. I feel like I'm losing it! I am greatful to know that there is a link to the brain and this kind of pain. I know I have cried more since I was diagnosed with IC than I did my entire life before. I always try to see the silver lining and be positive but wow, sometimes especially when pain is intense I really do break down. Thanks Jill for sharing.

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      • #4
        yes,but i was a crier before ic so now i cry even more ic just isnt good for people who were already emotional people in the first place.
        Newly IC diagnosed as of February 2011.

        Medications I'm on that seem to work:
        Zoloft- one once a day
        Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

        Failed Meds:
        Elmiron-after 4 months,digestive side effects got to be too much
        tramadol-allergic
        DMSO treatments(5-6)
        probiotics

        THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
        AROMATHERAPY-candles,incense
        Village Naturals Aches and Pains Peppermint Bath Salts
        Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

        ACUPUNCTURE/HERBS
        Significant pain relief so far.

        MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

        Add me on facebook Angela Hasic

        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        Lord, make me an instrument of your peace;
        where there is hatred, let me sow love;
        when there is injury, pardon;
        where there is doubt, faith;
        where there is despair, hope;
        where there is darkness, light;
        and where there is sadness, joy.
        Grant that I may not so much seek
        to be consoled as to console;
        to be understood, as to understand,
        to be loved as to love;
        for it is in giving that we receive,
        it is in pardoning that we are pardoned,
        and it is in dying [to ourselves] that we are born to eternal life.

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        • #5
          I was always a crier too, but now I seem to cry about different things and more easily
          ~Ashley

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          • #6
            I've always been a crier. I think when I have the nagging pain it just reminds me my life has changed and it makes me sad, glad to know I'm not just being a baby.

            Diagnosed 7/10
            Elmiron 3 x's daily since
            Estradiol weekly
            Prelief
            xanax as needed
            zolpidem nightly

            vesacare, and some other like meds caused more pain
            elavil, caused allergic reactions
            Last edited by robinella; 03-29-2011, 03:47 PM.

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            • #7
              I was never a crier before IC, my husband had never seen me cry in the 20 years we've been married. I do cry sometimes when my pain is bad because I feel hopeless and mourn my past life, it only lasts a few minutes. I guess it is good for me.

              Suzanne

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              • #8
                Interesting. In general I'm not a crier. Never have been.

                But I'd have to say I cried most pre-diagnosis. I think that was mainly due to a combination of fear of the unknown thing that was happening to me and the utter feeling of helplessness to stop/change it. I hate feeling helpless!

                Vicki
                "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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                • #9
                  I have really tried hard to "hold it together" during this whole IC life I have been given. I tend to be very emotional but it is odd now that I hold it back more. I have tried so hard not to feel sorry for myself but sometimes I just lose it and cry like a baby. Afterwards I realize how much I really needed to cry and let it all out. Sometimes it can be very good therapy.

                  Organ pain is like no other pain I can say I have ever experienced or can explain, it frieghtens me when I hurt really bad. It is very interesting to know how and where the pain is processed in our brains.

                  Sandra
                  Link to the patient information, everything from What is IC? to Disability
                  http://www.ic-network.com/patientlinks.html

                  American Urological Association Clinical Guideline
                  Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
                  http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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                  • #10
                    I'm the town crier! It's embarrassing at times.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

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                    • #11
                      I cried a lot at first. Mainly first thing in the morning after an awful night of not sleeping and not really knowing what the heck was going on. Now I just feel kinda sad, as I'm still adjusting to the fact that I have this condition, and then the fear factor starts creeping in.

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                      • #12
                        crying

                        Yes, I cry a lot these days. I think it's partly the pain and partly that same feeling of helplessness that Vicki mentioned.
                        I think lack of sleep also contributes. When I'm tired, I'm weepy and I am very tired.
                        So, sorry Donna, but I think the "Town Crier" title goes to me. I believe my husband would concur!

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                        • #13
                          Yes, and it is because I have a sudden urge of feeling sad. Don't think it is because of the pain/peeing so much so but because the life I had is gone for good and I am stuck with this life that I hate. Guess a feeling also of hopelessness.

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                          • #14
                            How many of us make sure we cry when we are alone so others can't see? I do that. I have never once in the 12 years of the IC cried in front of family or friends. I have at the Uro's many times and at the hospital.

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                            • #15
                              I totally agree waterflow. I do cry in front of people though, I've never been able to hold it back.
                              ~Ashley

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