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  • Woman's Day Magazine Features Article on IC

    Title: It was worse than childbirth

    It's rare to have an article that discusses IC, much less a family struggle with this puzzling condition. In the April 2007 issue of Woman's Day, sisters Michelle McDuffee & Mia Eddy share their courageous stories of life with interstitial cystitis, how their symptoms began and how they found care and relief. Great to share with family & friends. Available at newstands today! (pages 46-47)
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  • #2
    ....
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






    Comment


    • #3
      I just bought the magazine when we were at the grocery store yesterday. It's a short article but it's better than no article at all. I think I will keep it on hand to show to family and friends. I think I may even show my parents the ICN when they come next weekend.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment


      • #4
        Great that it's in such a popular magazine!
        Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

        "One hour at a time, this was NOT my American Dream but it has to work out somehow."

        I also have some journals of my journeys, past and some present at:
        http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

        Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

        Comment


        • #5
          this is great news.....i wish more magazines would do articles on IC
          Erika
          wife to Jeremy
          mom to Emma (3-8-05)
          and Natalie (7-23-07)


          Meds i'm currently taking:
          Lortab as needed for pain


          Meds that did not help:
          Detrol LA
          Lexapro (caused urgency)
          Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)



          Comment


          • #6
            My mom showed me that article Thursday. She read it while in the wating room at my PT place. Ironically I had severe urgency and was running to the bathroom when she showed me. Thought it was interesting.

            Medical "Issues":
            IC
            GERD
            Tachycardia(resting rate is 125-130 )
            Medicastions:
            Tramadol-as needed (IC)-50mg
            Elmiron 200mg twice a day
            Levsin .125mg 1-2 pills 4 times a day

            Comment


            • #7
              Jill: Great news - on my way out the door to get it.
              I just wish more magazines & TV programs would cover it, because even though I have 4 letters from doctors explaining why I'm on medications & what IC & PFD is, many still don't understand it & really don't want to even hear about it, and this has been going on for over 10 years now.Ugh. Thanks for the info,
              Weezer

              Comment


              • #8
                Hello
                I went and bought the magazine and was disappointed because it was such a short artical and really did not list the symptoms and how long IC patients really have to suffer before someone will believe them that there is really pain inside them. We need someone a movie star that has IC needs to be our spokes person to help us find a cure .
                Connie

                Comment


                • #9
                  Hi! I am so glad that some magazines are starting to talk about IC. Prevention magazine had an article about IC in Dec. 1998 or Jan. 1999(not sure of exact date). When I first started having symtoms of IC my husband was reading Prevention and handed me the article and said "I think this is what you have". It is time for them to do another article on it. My brother was in Med school at the time I was going from doctor to doctor trying to figure out what I had. He said that IC was just barely mentioned. Since then he said it is amazing how many people he has run into that have IC. Med Schools have got to start educating our doctors about IC. OK, I will get off my soap box now.

                  Janice

                  Comment


                  • #10
                    Originally posted by JanL View Post
                    Hi! I am so glad that some magazines are starting to talk about IC. Prevention magazine had an article about IC in Dec. 1998 or Jan. 1999(not sure of exact date). When I first started having symtoms of IC my husband was reading Prevention and handed me the article and said "I think this is what you have". It is time for them to do another article on it. My brother was in Med school at the time I was going from doctor to doctor trying to figure out what I had. He said that IC was just barely mentioned. Since then he said it is amazing how many people he has run into that have IC. Med Schools have got to start educating our doctors about IC. OK, I will get off my soap box now.

                    Janice

                    Actually, I think some med schools MUST be making more a big deal out of it. When I went in for my annual at my gyn's office, they gave me one of the physicians aids (basically a student gyn). When she was poking my stomach etc. before the exam she asked me about any conditions or medications I tentatively said (because I was expecting a cross examination over this...

                    "Well, I have interstitial cystitis...."
                    "I can tell, your bladder is a bit tough and very tender."

                    And that was IT!!! She was TOTALLY familiar with the condition, and made no fuss whatsoever. Every other gyn/ or other doctor I've had has either just recently read about it in a journal and therefore asks a lot of questions, or have never heard about it and asks a lot of questions. I was in shock..... So I think I'm going to start LOOKING for younger doctors if the need ever arises again.

                    Comment


                    • #11
                      :woohoo: The word is getting out. Bring it on!!!! The more who know, the better it is for all of us.
                      Sharon

                      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                      Where I can be found most days.



                      Link to the ICN Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Link to the IC Diet:
                      http://www.ic-network.com/diet/


                      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      Comment


                      • #12
                        heres what i found on their website:

                        http://www.womansday.com/health/1025...-pain.html?pl=
                        [SIZE="1"]
                        I've tried:
                        Ditropan
                        Detrol LA
                        Levbid
                        Prelief
                        Elmiron
                        Elavil
                        Vesicare
                        Cystoscopy/hydro
                        Sanctura
                        Enablex
                        dmso and heparin instills
                        Interstim

                        Comment


                        • #13
                          Wow thank you that was alot of good info, I also sent it on to my sister we think she might have IC also she is getting ready to go to my doctor to find out soon.
                          Thanks and God bless for getting back to me
                          connie

                          Comment


                          • #14
                            Which issue of Woman's Day?

                            I picked up the April issue of Woman's Day and could not find the article. Maybe because I have a Canadian issue? My copy says April 17, 2007 and has colorful Easter eggs on the front.
                            Interstitial Cystitis: Elmiron and Hydroxyzine
                            Depression/Anxiety: Remeron, Cipralex and Clonazepam

                            *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
                            * 2 hydrodistentions :

                            * currently on "Nabilone" for pain management

                            Taken the following:
                            Gabapentin no relief but could tolerate it
                            Lyricano relief but could tolerate it
                            Cymbalta severe depression/anxiety etc.
                            Topamax severe nausea and weight loss
                            Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

                            What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

                            Other conditions...
                            Vulvadynia (amytriptaline cream - no longer using to to irritation)
                            Severe IBS
                            Chronic Sinus pain (nasal rinse as need)
                            Migraines
                            Lower back and sacroiliac joint disfunction

                            Allergies: Erythromycin, scents and detergents

                            Comment


                            • #15
                              Kate ..
                              I had the same problem... Mine also had the easter eggs on the cover.. I am from Louisiana..Strange though..lol
                              Hugs
                              Ronda

                              ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                              Link to Patient Handbook:
                              http://www.ic-network.com/handbook/

                              Diet Reference Sheet:
                              http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                              Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                              Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                              Meds I have Tried:
                              Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                              Lexapro< Bad reaction to this med!
                              Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                              Dx With IC in Nov 2006 with Hydro/Cysto
                              Hydro/Cysto Caused Bladder to Rupture.

                              Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                              ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                              Comment

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