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Woman's Day Magazine Features Article on IC

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  • #16
    My last few trips to the ER, the doctors & nurses all knew about IC.
    Most said upfront that they don't have a lot of knowledge, but they do know it is very painful. Progress.

    Better than 4 years ago when I first got IC, didn't know what I had, horrible pain & bladder spasms, went to the ER in the middle of the night, negative urine test at the hospital ER, negative culture, sent home with antibiotics anyhow, then spent several months battling the insurance bill for the "non-emergency" visit.
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

    Comment

    • #17
      Hey,

      Thats the wrong April issue. The IC article is in the issue dated April 1st. Women's Day sometimes has more than one issue a month. I hope that helps.

      Originally posted by bladder View Post
      I picked up the April issue of Woman's Day and could not find the article. Maybe because I have a Canadian issue? My copy says April 17, 2007 and has colorful Easter eggs on the front.

      Comment

      • #18
        ok thanks
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #19
          article in WD

          Thanks for the note about the April 1 issue. I will have to try and locate a copy.
          Interstitial Cystitis: Elmiron and Hydroxyzine
          Depression/Anxiety: Remeron, Cipralex and Clonazepam

          *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
          * 2 hydrodistentions :

          * currently on "Nabilone" for pain management

          Taken the following:
          Gabapentin no relief but could tolerate it
          Lyricano relief but could tolerate it
          Cymbalta severe depression/anxiety etc.
          Topamax severe nausea and weight loss
          Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

          What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

          Other conditions...
          Vulvadynia (amytriptaline cream - no longer using to to irritation)
          Severe IBS
          Chronic Sinus pain (nasal rinse as need)
          Migraines
          Lower back and sacroiliac joint disfunction

          Allergies: Erythromycin, scents and detergents

          Comment

          • #20
            Couldn't find it..

            ...what is on the U.S. cover? I know Jill said it's the April issue....I'll keep looking. If they happen to put it on their website...it would be nice so I can email it to friends and family.

            Thanks,

            Dani
            Dani


            -Bladder surgery to correct reflux-'68
            -Terribly painful periods, [email protected] 13 (most likely due to endometriosis, no dx then)
            -4 gyn surgeries since 2003 to remove cysts, ovaries, endometriosis and uterus
            -DX'd w/I.C. before 3rd gyn surgery, but sure I've had it since childhood
            -Gastrointestinal allergies to nuts and shellfish - {I would like to know if there is some connection of gastro allergies to I.C.?}
            PTSD (sexual abuse by teenage boy when I was 4 and s. abuse by adult male who was friend of my Dad's - my parents still don't know)
            -DX'd with IBS in 2000
            -Rhabdomyolysis in 2001 (has not returned)
            -DX'd with Eosinophilic Esophagitis (Asthma of the Esophagus) 3/07
            -DX'd with TMJ in 2000-wear splint
            -Hydrodistention and Cystoscopy w/ biopsy of tissue in bladder-2003
            -DX'd with Epilepsy -2000
            -SSS (Selective Sound Sensitivity)-wear earplugs most of the time to screen out certain noises
            -DX'd with Fibromyalgia (2006)

            Medications:MS [email protected],Hydrocodone-10/650:up to 4day,Levothyroxine,Soma,Clonazepam,Vesicare,Keppra (anti-seizure),Flovent FHA 220mcg (swallowed for E.E.),Elmiron,Instillations-5+per week for flares,Lidocaine,Cysta-Q,Prelief, Dulcolax,Baby Aspirin(for FM),God blessed me w/2 boys: Devin-14 and Logan-9, Jim, my husband of 18+ years who sort of understands what I.C. is...still working on educating him!, my springer spaniel "Wookie" ('cause he makes sounds like 'Chewbacca' from "Star Wars" when my son plays with him) and the most important 'medicine' of all...PRAYER...because ONLY God knows the answer to why we are all going through this awful I.C.!

            Comment

            • #21
              Keep mailing 'Oprah'

              Saronjini (Jen) has mentioned doing this somewhere below her signature. I think it's a wonderful idea. I emailed the Oprah show a few days ago and some other people did the same. I just keep thinking...people watch Oprah. There needs to be someone 'high-profile' to bring IC to the public. She is very good at educating and making the public aware of womens' cries for help! We need a loud voice calling out in this wilderness (referring to the general public and some of the medical community who either don't know about IC or don't really care!)

              Dani
              Dani


              -Bladder surgery to correct reflux-'68
              -Terribly painful periods, [email protected] 13 (most likely due to endometriosis, no dx then)
              -4 gyn surgeries since 2003 to remove cysts, ovaries, endometriosis and uterus
              -DX'd w/I.C. before 3rd gyn surgery, but sure I've had it since childhood
              -Gastrointestinal allergies to nuts and shellfish - {I would like to know if there is some connection of gastro allergies to I.C.?}
              PTSD (sexual abuse by teenage boy when I was 4 and s. abuse by adult male who was friend of my Dad's - my parents still don't know)
              -DX'd with IBS in 2000
              -Rhabdomyolysis in 2001 (has not returned)
              -DX'd with Eosinophilic Esophagitis (Asthma of the Esophagus) 3/07
              -DX'd with TMJ in 2000-wear splint
              -Hydrodistention and Cystoscopy w/ biopsy of tissue in bladder-2003
              -DX'd with Epilepsy -2000
              -SSS (Selective Sound Sensitivity)-wear earplugs most of the time to screen out certain noises
              -DX'd with Fibromyalgia (2006)

              Medications:MS [email protected],Hydrocodone-10/650:up to 4day,Levothyroxine,Soma,Clonazepam,Vesicare,Keppra (anti-seizure),Flovent FHA 220mcg (swallowed for E.E.),Elmiron,Instillations-5+per week for flares,Lidocaine,Cysta-Q,Prelief, Dulcolax,Baby Aspirin(for FM),God blessed me w/2 boys: Devin-14 and Logan-9, Jim, my husband of 18+ years who sort of understands what I.C. is...still working on educating him!, my springer spaniel "Wookie" ('cause he makes sounds like 'Chewbacca' from "Star Wars" when my son plays with him) and the most important 'medicine' of all...PRAYER...because ONLY God knows the answer to why we are all going through this awful I.C.!

              Comment

              • #22
                Oprah

                I emailed Oprah, too! Cross our fingers
                Interstitial Cystitis: Elmiron and Hydroxyzine
                Depression/Anxiety: Remeron, Cipralex and Clonazepam

                *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
                * 2 hydrodistentions :

                * currently on "Nabilone" for pain management

                Taken the following:
                Gabapentin no relief but could tolerate it
                Lyricano relief but could tolerate it
                Cymbalta severe depression/anxiety etc.
                Topamax severe nausea and weight loss
                Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

                What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

                Other conditions...
                Vulvadynia (amytriptaline cream - no longer using to to irritation)
                Severe IBS
                Chronic Sinus pain (nasal rinse as need)
                Migraines
                Lower back and sacroiliac joint disfunction

                Allergies: Erythromycin, scents and detergents

                Comment

                • #23
                  The issue that the article is in has chocolate on the cover.

                  Comment

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