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IC'er makes $225 participating in a research study

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  • IC'er makes $225 participating in a research study

    I just received this email from an ICN forum member! She reminded me and hopefully you that you can help advance the IC research movement and make a little $$ on the side by participating in some very easy studies. In some cases, it's an interview or survey or, as in the Stanford Pelvic Pain Study, it may take a but more! But, in any case, the IC movement is strengthened by the patients who participate and, to them, I say ((((Thank you!)))) - Jill


    (From ICN Member Nyema) Stanford is part of the Multidisciplinary Approach to Pelvic Pain (MAPP) study. They are looking for more patients and they pay well.

    It involves long onsite interviews, questionaires, MRI, and at home surveys. It is a year long study. After spending the day at Stanford, i went home with $225. Since i am unable to work because of my IC, this money really helped.

    Here is their contact info:
    [email protected]
    http://snapl.stanford.edu/pelvicpain/
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  • #2
    Do you have to live in that area?
    was finally diagnosed on 3-19-09 after 7.5 years of misery.

    Diagnoses
    IC
    PFD
    IBS
    Depression/Anxiety
    Lumbar Lordosis
    Now getting tested for MS on Jan. 27th. day before my 30th bday!

    Meds I'm on
    Ditropan ER
    Elavil 25mg -just stopped this one it wasnt helping
    glucosamine vitamin (for joints, my knee)
    Prelief, when needed
    Vistaril 25mg
    Valium
    Zoloft 100 mg
    Pyridium-makes your pee bright orange!
    Birth Control
    OTC Allergy meds
    Fentanyl Patch for pain, 50mg
    Oxycodone for breakthrough pain 5mg right now but need to go up!
    Had to stop my PT due to insurance
    TENS unit

    Im really considering the Interstim but doctor isnt on board yet with it. Im also in process of filing for disability. *update is I had the Interstim trial and it worked well for me. The perm. surgery was scheduled but before I could get it my Urologist stopped being my doctor for unknown reasons! It really makes me angry. So I am still searching for a doctor to do the Interstim on me. I am in the appeal process with disability!*


    Meds I've tried since being diagnosed (there have been so many over the years though)
    Sanctura, had to stop taking after 2 days, horrible retention
    Enablex, just very expensive
    Librax, its expensive and wasnt sure it was helping me
    MS Contin, made my joints very stiff!!
    Did 4 weeks of Elimron instills, didnt help at all!
    Elmiron, took it for 2 months and I was losing way to much hair so we stopped.

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    • #3
      The MAPP study is being conducted at research centers around the USA, each with different interests or project goals. I do believe that this one is ONLY in Nor Cal.
      Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

      Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

      Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






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