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Thanks to the Downington PA group!

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  • #1

    Thanks to the Downington PA group!

    I want to thank Jennifer Meyer and the Downington PA support group for having me speak, last week, via skype to their support group. I had a blast and it was very nice to be able to see the faces of the patients that I was talking with. What I love most, though, are the questions. This support group is VERY informed, VERY motivated and VERY together! Loved it! Loved it! Loved it!

    If you have a support group and would like to have a guest speaker, please think of me. I'm more than happy to do it!!! All you need is a laptop or PC with skype, and we can do full video and audio! Super fun!

    Jill O.
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






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  • #2
    We are in dire need of a support group here in my area. My dr. has been thinking of starting one because so many of her patients have been asking for it so if we get one going I will definitely keep it in mind to ask you to speak via skype. What a treat that would be!

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    • #3
      I'm so glad to hear they're a good group! I couldn't make the meeting you spoke at via Skype, but I hope to go to the next one.
      ----------------------
      -Amanda
      34 years old, bladder symptoms all my life
      diagnosed with PFD and VV October 2009; IC May 2010

      Current meds:
      Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
      Other past treatments:
      IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
      Tried and didn't work:
      Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture

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