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Courage Award to ICLori

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  • #1

    Courage Award to ICLori

    Who better to receive this award, you know? I gush about her on the thread itself where the award is actually posted ---- you can read the gushing and the thread here:

    http://www.ic-network.com/forum/show...397#post310397

    You're a rock, Lori, and an inspiration to me.
    Last edited by vm; 03-13-2007, 02:53 PM.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy
    Tags: None
  • #2
    :woohoo: Congratulations, Lori!! You are such an inspiration to all of us. In spite of everything you deal with concerning your own health, you still always manage to come here and post to others offering support, information, and hope.

    I am always amazed at all the research you put up on the boards. You are definately one sharp lady! Thank you for always keeping us so informed. And thank you for all that you do!! We are all very proud of you!

    Thank you, Kim, for giving this award to Lori. She is definately an ICN star!

    Hugs,
    Amy

    Comment

    • #3
      Congrats Lori

      This was an excellent post... one of many excellent posts by you, I should say
      ****
      Jen

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment

      • #4
        I agree with the gals - oustanding!!!
        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf


        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment

        • #5
          Truly deserved!

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment

          • #6
            You deserve this award Lori:woohoo:
            Hugs
            Ronda

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


            Link to Patient Handbook:
            http://www.ic-network.com/handbook/

            Diet Reference Sheet:
            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

            • #7
              Thank you so much, Kim, (blushing) and thank you all so much for your support! I'm truly glad if I can be helpful in any way. I feel like we are all sisters in this disease, just like men feel they are brothers in combat. I feel like this disease we are facing, is very similar to being in combat.

              Thank you all so very much!

              Blessings,
              Lori

              Comment

              • #8
                Congrats Lori! Well deserved!!!
                http://www.TheCraftyEwe.etsy.com

                Comment

                • #9
                  For Lori...*Applause...Applause*
                  Sharon

                  Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                  Where I can be found most days.



                  Link to the ICN Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Link to the IC Diet:
                  http://www.ic-network.com/diet/


                  IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment

                  • #10
                    Thanks, you guys! I've been talking things over with my husband, and we both feel that I should be able to receive part or maybe even all my care, off-base. I feel that would best serve my healthcare needs at this time, and I think I have a strong case for requesting this.

                    Sometimes we just have to speak up for ourselves, and advocate for ourselves, in order to get the best medical care possible for ourselves.

                    Blessings,
                    Lori

                    Comment

                    • #11
                      Lori- Very well deserved- Congratulations.

                      Comment

                      • #12
                        Congrats Lori!!!!!

                        Thank you for being here for us all!!!!!!

                        :woohoo: :woohoo: :woohoo:

                        God Bless ,
                        MARY


                        Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....

                        Comment

                        • #13
                          Lori...I think that is a wise decision. There is a world of difference between on base and off base medical care.
                          Sharon

                          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                          Where I can be found most days.



                          Link to the ICN Patient Handbook:
                          http://www.ic-network.com/handbook/

                          Link to the IC Diet:
                          http://www.ic-network.com/diet/


                          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                          Comment

                          • #14
                            :woohoo: :woohoo: :woohoo: :woohoo:

                            Erika
                            IC diagnosed officially via cysto/urodynamics 1/26/07

                            Grade II Endometriosis diagnosed via lap 12/11/07

                            "Fall down seven times, Stand up eight."

                            "Life is a tragedy for those who feel and a comedy for those who think."

                            Current Treatments:
                            Interstim Since 5/25/07!
                            Birth Control

                            Comment

                            • #15
                              Well done, Lori! That post and all of the discussion that follows is outstanding. And I have to agree with whomever said that you ALWAYS offer as much or more support to other members here than you ask for yourself. I've followed your posts for a long time now. You are one brave woman, and after all you've been through, though I don't know you in person, I can tell by your words...they show through this monitor... that you are a kind and strong woman. You deserve this award and, as always, I wish you the best in your current and future treatments and hope that you get the relief that you deserve. Best wishes.

                              Comment

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